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pnwmom

(108,955 posts)
36. In my view, the doctor was merely acknowledging the imperfect and imprecise
Sun May 6, 2018, 10:58 PM
May 2018

nature of these determinations. He had clinically diagnosed her as brain dead and an initial brain scan seemed to confirm this -- but, he thought, if his clinical diagnosis was wrong and the boy lived, he would be no more than a vegetable. The doctor turned out to be wrong about that, too.

It also turns out that there is wide variability in the determination of brain deaths. This is from a study last year.

https://www.hindawi.com/journals/neuroscience/2017/6017958/

Objective. Research continues to highlight variability in hospital policy and documentation of brain death. The aim of our study was to characterize how strictly new guidelines of American Academy of Neurology (AAN) for death by neurological criteria were practiced in our hospital prior to appointment of neurointensivists. Method. This is a retrospective study of adults diagnosed as brain dead from 2011 to 2015. Descriptive statistics compared five categories: preclinical testing, neurological examination, apnea tests, ancillary test, and documentation of time of death. Strict adherence to AAN guidelines for brain death determination was determined. Result. 76 patients were included in this study. Preclinical prerequisites were fulfilled in 53.9% and complete neurological examinations were documented in 76.3%. Apnea test was completed in 39.5%. Ancillary test was completed in 29.8%. Accurate documentation of time of death occurred in 59.2%. Overall, strict adherence to current AAN guidelines for death by neurological criteria was correctly documented in 38.2%. Conclusion. Our study shows wide variability in diagnosing brain death. These findings led us to update our death by neurological criteria policy and increase awareness of brain death determination with the goal of improving our documentation following current AAN guidelines.



Here is one set of guidelines, but they say there are alternatives, and this is "opinion based."

http://surgery.med.miami.edu/laora/clinical-operations/brain-death-diagnosis

American Academy of Neurology Guidelines for Brain Death Determination

Many of the details of the clinical neurologic examination to determine brain death cannot be established by evidence-based methods. The detailed brain death evaluation protocol that follows is intended as a useful tool for clinicians. It must be emphasized that this guidance is opinion-based. Alternative protocols may be equally informative.
Not even sure what to say except thank goodness! StarryNite May 2018 #1
yes! Demovictory9 May 2018 #44
I think since he "came back to life" you just have to say THANK YOU... onecent May 2018 #2
Brain dead is dead. longship May 2018 #3
The mother was told he was brain dead -- which is the standard for organ donation. pnwmom May 2018 #4
It's kind of confusing but I don't believe LisaL May 2018 #5
She said earlier he had had "no brain waves"; but they cancelled the "final" brain wave test, pnwmom May 2018 #13
If they were still planning to do more tests then he didn't have an official diagnosis of LisaL May 2018 #18
They were telling her he was brain dead. And they also told her that if they took him off pnwmom May 2018 #21
If you take a brain dead person of a ventilator they heart stops, because a brain dead person can LisaL May 2018 #23
They were making the heart start-up again by shooting him up with adrenaline. pnwmom May 2018 #25
What does that have to do with him becoming a vegetable if taken off ventilator? LisaL May 2018 #27
When the mother questioned the doctor about the doctor's clinical diagnosis of brain death, pnwmom May 2018 #32
Then the doctor didn't believe him to be brain dead. LisaL May 2018 #34
In my view, the doctor was merely acknowledging the imperfect and imprecise pnwmom May 2018 #36
Well, they were wrong, weren't they. longship May 2018 #7
What conditions? He isn't in vegetative states, he can talk and walk. LisaL May 2018 #8
Then he was decidedly not brain dead as was reported in OP. longship May 2018 #16
You don't understand how variable these determinations are. pnwmom May 2018 #38
The important thing is that you have the opportunity to tell others they goofed. LanternWaste May 2018 #50
And you know that how? mr_lebowski May 2018 #10
I know that because of what the mother wrote on her FB page. pnwmom May 2018 #14
If he were officially declared brain dead, they wouldn't be planning to run more brain wave tests on LisaL May 2018 #19
It would make sense that they'd take more than one brain scan pnwmom May 2018 #20
there is a set of steps that must be taken before someone is officially declared brain dead. LisaL May 2018 #22
Why does this matter???? They told the parents he was brain dead. They had a brain scan pnwmom May 2018 #24
Seriously? LisaL May 2018 #28
No, I don't think that. But if they had done the final brain wave test the night before, pnwmom May 2018 #31
I believe they have to wait a certain period of time after a traumatic brian injury before declaring LisaL May 2018 #33
You are right about steps taken.... CatMor May 2018 #29
He has brain damage, sounds pretty severe. LisaL May 2018 #30
I didn't realize that because the article said.... CatMor May 2018 #35
Watch his video. He is walking and talking now, and he is making sense when he talks. pnwmom May 2018 #37
I know that he is walking and talking. LisaL May 2018 #39
i was answering someone else. You're right, he didn't come out unscathed. pnwmom May 2018 #41
I'm sorry about your husband, and grateful to him and to you for his being an organ donor renate May 2018 #51
Thank you so much ....... CatMor May 2018 #53
She seems to have Jesus on the brain... Baconator May 2018 #49
+1... SidDithers May 2018 #6
They correctly reported that she was asked to sign the organ donation papers, pnwmom May 2018 #9
Maybe there's not quite the association with 'official brain-death' and 'being asked to sign papers' mr_lebowski May 2018 #12
It probably says apparent brain death because, obviously, he's alive now. pnwmom May 2018 #15
The thing people take issue with is the click-bait headline, where it says 'brain-dead' ... mr_lebowski May 2018 #26
But wait this is a FOX NEWS report. Right? I'd first verify that this really even happened. The Wielding Truth May 2018 #40
This came from People magazine. Fox also covered it and put the video on TV. pnwmom May 2018 #43
Oh, People Magazine? Well, never mind kcr May 2018 #47
There is no one standard of brain death. Different states have different standards, pnwmom May 2018 #48
I believe he will get the chunk of skull back sarah FAILIN May 2018 #11
Oh no!!! LeftInTX May 2018 #17
Here is a video sarah FAILIN May 2018 #42
A clinical neurologist responds. longship May 2018 #45
If he was alert & talking, he wasn't ever brain dead Bucky May 2018 #46
Oops. Sorry. This was two days ago, and I wasn't the first or even the tenth to post what I posted. Iggo May 2018 #52
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