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chriscan64

(1,789 posts)
3. As many times as I have heard this, it brings me comfort to hear it again.
Thu Nov 24, 2022, 01:47 AM
Nov 2022

My wife has meylofibrosis, a rare and untreatable bone marrow disorder. My employer was gracious enough to let me work from home so I can keep the lights on, but I still have to manage work, house work, home repairs and pets on top of giving her care and being good company. She is on home hospice and could pass on any given day. That fact is stressful enough, but I am on month seven of any given day could be today. I have relatives who want updates when nothing new is going on, some in the form of unanswered letters. Nothing ever changes except for the day when it finally does change forever. As hard as every day is, with each one I hope that tomorrow is just like it.

I have to be at my best to provide care, so I have been doing my best to take care of myself. I sincerely thank you for this reminder.

Latest Discussions»General Discussion»For all my DU caregivers»Reply #3