General Discussion

laundry_queen

(8,646 posts)

39. I know that. The blog of the person I'm talking about

Thu Jun 6, 2013, 01:42 AM

Jun 2013

that has had a lobe transplanted has CF. However, I do believe it was her second, in which case her first transplant would stay in while the lobes were put in.

I remember hearing awhile back they were exploring this - clearly they've decided not to. However, I think it's important to point out that even bilateral lung transplant patients with CF get infections from the bacteria that are harbored in their trachea and their sinuses as those areas are also mucous membranes affected by the CFTR. Also, a 'healthy' lung wouldn't get infected with a lot of the CF bacteria that is in CF lungs simply because it has a working clearing mechanism (although this is likely hampered by immune suppressing drugs required post transplant). It would be interesting to see how much they've studied this and what the outcomes were.

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Sebelius: I Can�t Step Into Girl�s Transplant Case (When Other Children Are Just As Sick.) [View all] Purveyor Jun 2013 OP

I have a hard time understanding this rule laundry_queen Jun 2013 #1

I think the issue probably is chest capacity Yo_Mama Jun 2013 #7

I understand that laundry_queen Jun 2013 #8

You can give lungs to an adult where they will fit, or you can give them to a child LisaL Jun 2013 #35

Not talking about sticking lungs from a 6 foot tall guy into a 5 year old. laundry_queen Jun 2013 #41

This must be gut wrenching for Sec. Sebelius... PennsylvaniaMatt Jun 2013 #2

i can understand that but how about changing it so the rule applies to all kids JI7 Jun 2013 #4

I have remarkably less concern for Sibelius than for the child. Psephos Jun 2013 #12

And if that was the case nobodyspecial Jun 2013 #13

All or none for you, I see. Psephos Jun 2013 #14

And you don't think the rich .... oldhippie Jun 2013 #30

So, to prevent meddling by the rich, children may sometimes have to die. Psephos Jun 2013 #32

I made a comment in another thread Puzzledtraveller Jun 2013 #17

well said n/t Psephos Jun 2013 #22

but who gets the lungs? If you make lungs available, who gets it? There are lots of sick liberal_at_heart Jun 2013 #26

The good answer is... Psephos Jun 2013 #33

They are all exceptional cases Politicub Jun 2013 #34

By definition of the word exceptional, they are not all exceptional. Psephos Jun 2013 #38

they are all dying. The doctors do prioritize as best they can. They do try to put the sickest liberal_at_heart Jun 2013 #40

I think the problem here is that the doctors don't think it will work. Am I wrong? freshwest Jun 2013 #42

does anyone know why there is the age rule ? does it have to do with JI7 Jun 2013 #3

It has to do with lung size. Adult lungs don't fit DevonRex Jun 2013 #6

They are able to modify the lungs laundry_queen Jun 2013 #10

When I was hunting around Yo_Mama Jun 2013 #15

All interesting laundry_queen Jun 2013 #23

Apparently they are on the same list, but the criteria are different Yo_Mama Jun 2013 #24

Yes, only bilater lung transplants will work for CF. LisaL Jun 2013 #36

She has CF. LisaL Jun 2013 #37

I know that. The blog of the person I'm talking about laundry_queen Jun 2013 #39

I think once they transplant non-CF lungs Yo_Mama Jun 2013 #43

Me thinks the Secretary's comments are comparable to a governor stating he would not stay the indepat Jun 2013 #5

No, that's not fair Yo_Mama Jun 2013 #9

Not having cut Madame Secretary a bit of slack was not cool: my indepat Jun 2013 #11

It's totally understandable Yo_Mama Jun 2013 #16

I feel for the family, my older daughter is only about a year younger then this girl. Jennicut Jun 2013 #21

Notwithstanding my mea culpa, a Federal judge has reportedly ruled the little girl can get indepat Jun 2013 #25

+1 Raine1967 Jun 2013 #19

Ms. Sebelius is not a doctor -- Raine1967 Jun 2013 #18

Anyone remember the name Sun Hudson? Roland99 Jun 2013 #20

Update: A federal judge has agreed to prevent HHS from enforcing the age rule, giving Sarah a chance Ian David Jun 2013 #27

It seems like there are no good answers here. That said, when you're talking about saving a child's Warren DeMontague Jun 2013 #28

I have to agree with Sibelius about her role. Shrike47 Jun 2013 #29

Death panels...indeed! eom Purveyor Jun 2013 #31