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yardwork

(61,408 posts)
59. There was extensive communication, over months, with the parents.
Sun Aug 28, 2016, 12:33 PM
Aug 2016

They didn't want to accept what was said. They are not reliable narrators of what happened and now the situation is being used by right wing political operatives with an agenda. I'm sorry for the parents' loss, and especially sorry about how they are being used, in their grief.

You do realize he was brain dead, or no? LisaL Aug 2016 #1
Yes I can read. NWCorona Aug 2016 #3
You clearly don't know the story. LisaL Aug 2016 #5
And how does that change the qoute I provided? NWCorona Aug 2016 #10
He was declared brain dead in April. LisaL Aug 2016 #17
Diagnosed in April, taken to other doctors for second opinions. Not heartless at all. cleanhippie Aug 2016 #55
They even went to Guatemala. Historic NY Aug 2016 #177
Exactly. cleanhippie Aug 2016 #179
What would be the explaination? ProudToBeBlueInRhody Aug 2016 #102
Doesn't matter. The parents should decide PERIOD!!!!! yeoman6987 Aug 2016 #77
And sometimes it is kinder to remove the decision to Ilsa Aug 2016 #84
He was declared brain dead in April. LisaL Aug 2016 #86
I wasn't speaking to this case specifically. I was speaking in general terms. nt Ilsa Aug 2016 #89
Relatives of brain dead patients might be given a few days for final goodbyes. LisaL Aug 2016 #92
Actually, sometimes it can go on for a couple of weeks. Ilsa Aug 2016 #97
He was declared brain dead in US hospital. LisaL Aug 2016 #98
Hey, I get that. Ilsa Aug 2016 #101
I don't think his family would ever accept it. LisaL Aug 2016 #114
Yes they would have, but they were not allowed to grieve and accept their loss NoGoodNamesLeft Aug 2016 #117
How could they possibly ever accept it, if they don't believe that brain dead person is dead? LisaL Aug 2016 #123
No, the hospital started pushing to test and remove life support within 24 hours of transfer NoGoodNamesLeft Aug 2016 #128
There might have been a facility willing to take the baby and keep him on machines Blandocyte Aug 2016 #144
And brain dead patients will still remain brain dead. LisaL Aug 2016 #169
That was utterly, utterly scandalous. Diabolical. Joe Chi Minh Aug 2016 #166
Very good points. yeoman6987 Aug 2016 #99
Kinder, schminder -- Who should have the right to "remove the decision" from the family? whathehell Aug 2016 #105
At some point the parents have to understand that the patient isn't Ilsa Aug 2016 #112
"Not everyone wants to make that life/death decision about a family member" whathehell Aug 2016 #137
Maybe someone else needed that equipment and all the man hours put into caring... TipTok Aug 2016 #147
The question was who had the legal right whathehell Aug 2016 #172
That questions seems to have been settled... TipTok Aug 2016 #174
Not with a lawsuit pending... whathehell Aug 2016 #176
Exactly. Hospitals have committees and procedures so the parents don't have to decide. lindysalsagal Aug 2016 #158
Medical resources aren't limitless, not even at big city hospitals Warpy Aug 2016 #91
Perhaps the medical equipment and resources used to keep the baby "alive" Unit 001 Aug 2016 #93
do you have any idea what is involved with keeping someone on life support? tymorial Aug 2016 #106
No the parents should not decide period. mostlyalurker Aug 2016 #118
There comes a point when all hope is gone that it makes more sense to let nature take it's course dflprincess Aug 2016 #119
Who's footing the bill? Lunabell Aug 2016 #135
Two words: Jahi McMath obamanut2012 Aug 2016 #141
We haven't heard anything about her now. Historic NY Aug 2016 #178
and who pays for it? Just keep a brain dead human on life support for decades? snooper2 Aug 2016 #146
Yes because parents are always correct right? titaniumsalute Aug 2016 #180
This is a difficult issue. Chemisse Aug 2016 #2
I'm all for having an SOP in these situations. NWCorona Aug 2016 #4
SOP is to turn these patients off, because in brain death is legal death in most states. LisaL Aug 2016 #6
?SOP? Standardization of Practices perhaps? n/t Chemisse Aug 2016 #8
standard operation procedures NWCorona Aug 2016 #12
Ahh. Thanks. Chemisse Aug 2016 #13
There is an SOP and it was followed in this case. yardwork Aug 2016 #57
A brain dead patient isn't alive. LisaL Aug 2016 #9
That's interesting to know. Chemisse Aug 2016 #11
He hasn't been kept alive. His organs were kept alive. LisaL Aug 2016 #20
'Legally dead ?' Is that your legal criterion ? You are confused. Joe Chi Minh Aug 2016 #161
Brain dead = legally dead tammywammy Aug 2016 #162
That's called, 'begging the question'. Joe Chi Minh Aug 2016 #164
So that explains skepticscott Aug 2016 #71
That accounts for Chris Christie then... OnDoutside Aug 2016 #78
NJ's governor is the sole exception. ChairmanAgnostic Aug 2016 #116
It isn't just the cost of treatment. EL34x4 Aug 2016 #16
And costs are astronomical because due to brain being dead, it takes a lot of effort to keep the LisaL Aug 2016 #21
I work in healthcare, and there is a SOP for situations like this. BigDemVoter Aug 2016 #61
Nope, we shouldn't. There are an estimated 10,000 people living on life-support because once Hestia Aug 2016 #75
It was the right thing to do for many reasons (n/t) William Seger Aug 2016 #7
I agree but it seems like there was poor communications with the parents NWCorona Aug 2016 #14
He was declared brain dead in April. LisaL Aug 2016 #18
"... poor communications with the parents" left-of-center2012 Aug 2016 #27
Exactly. It wasn't sudden. Child was diagnosed as brain dead in April. LisaL Aug 2016 #33
Consider the alternatives. Igel Aug 2016 #35
This message was self-deleted by its author left-of-center2012 Aug 2016 #39
No, there wasn't. The parents simply could accept reality for what it was. cleanhippie Aug 2016 #56
There was extensive communication, over months, with the parents. yardwork Aug 2016 #59
As other posters have noted skepticscott Aug 2016 #72
There was good communication awoke_in_2003 Aug 2016 #100
From my personal experience hotrod0808 Aug 2016 #15
This message was self-deleted by its author LisaL Aug 2016 #19
That is an awfully cold response PatSeg Aug 2016 #22
An awful lot of them have turned out to not be dead.Science does not Joe Chi Minh Aug 2016 #28
Israel didn't have half of his brain function. LisaL Aug 2016 #30
Rubbish ! The medical progfession have only taken a stab at defining the point of death. Joe Chi Minh Aug 2016 #54
Well, all the doctors did is to turn off the ventilator. LisaL Aug 2016 #58
'Because the ventilator was the only thing keeping his organs alive.' Therefore, Joe Chi Minh Aug 2016 #159
His organs were alive, not him. LisaL Aug 2016 #170
I'm not sure what you mean by no difference mrs_p Aug 2016 #95
You should inform the scientists who post to Uncommondescent. I suspect Joe Chi Minh Aug 2016 #153
Delete this response. nt msanthrope Aug 2016 #68
Thank you for sharing your own experience PatSeg Aug 2016 #23
Thank you. hotrod0808 Aug 2016 #26
You are so welcome PatSeg Aug 2016 #31
Nothing is worse than what you went through, and I extend my sympathies to you and your still_one Aug 2016 #48
I am sorry for your loss and your experience. nt msanthrope Aug 2016 #67
I'm so sorry that you had to endure the loss of your child, especially without proper support renate Aug 2016 #152
Thank you all for your support hotrod0808 Aug 2016 #175
The poor child was brain dead. Buckeye_Democrat Aug 2016 #24
BLM Elmergantry Aug 2016 #25
Terri Schiavo was white. Buckeye_Democrat Aug 2016 #29
Schiavo wasn't even actually brain dead. LisaL Aug 2016 #32
And her husband was her next of kin TexasBushwhacker Aug 2016 #79
Everyone makes mistakes, and many spouses make bad choices. Joe Chi Minh Aug 2016 #155
He never divorced her TexasBushwhacker Aug 2016 #168
You can see from the photo of her with that ecstatic expression and gesture that Joe Chi Minh Aug 2016 #156
"When people lose sight of God" tammywammy Aug 2016 #160
Do you beleive that the most sophisticated computer-software Joe Chi Minh Aug 2016 #163
which has absolutely nothing to do with this case ..... Lil Missy Aug 2016 #151
I suspect the staff rushed to disconnect because they knew how the parents would respond. Shrike47 Aug 2016 #34
He wasn't in that particular hospital for months. LisaL Aug 2016 #36
Quite possible...Unfortunately for them, it's not a legitimate reason for doing it. whathehell Aug 2016 #138
It already was decided in court. Hospital removed life support after going to court and getting LisaL Aug 2016 #171
It looks like that decision is being appealed.. whathehell Aug 2016 #173
The Terri Schiavo case left-of-center2012 Aug 2016 #37
Schiavo was not brain dead. She was in persistent vegetative state. LisaL Aug 2016 #38
Read the autopsy left-of-center2012 Aug 2016 #41
Her brain was damaged, but her brain stem was still functioning tammywammy Aug 2016 #43
Yep, she was in PVS, not brain dead. LisaL Aug 2016 #46
She had a brain that weighted half of expected-but she still had a brain. LisaL Aug 2016 #44
There was fluid where her brain was supposed to be. rocktivity Aug 2016 #47
Her life support was her feeding tube. LisaL Aug 2016 #49
Way to blow your case, counselor! rocktivity Aug 2016 #40
Hmm - Is it possible? left-of-center2012 Aug 2016 #42
There is a zero percent chance that he was getting better in Guatemala Stryst Aug 2016 #66
Kind of like the McMath situation in the denial of the obvious. n/t cloudbase Aug 2016 #45
Very sad situation when parents are unable to face the reality of brain death. mnhtnbb Aug 2016 #50
I find it suspicious and sad arithia Aug 2016 #51
What is their purpose in filing a lawsuit? jalan48 Aug 2016 #52
The purpose was to keep the life support in place even though there was zero chance of a recovery cstanleytech Aug 2016 #63
Thanks. jalan48 Aug 2016 #90
One of many reasons I never became a physician. cab67 Aug 2016 #53
The sensationalist title is deceptive, written to pluck heartstrings. Agnosticsherbet Aug 2016 #60
sad Cryptoad Aug 2016 #62
Time chose to write a deceptive story rather than inform. Agnosticsherbet Aug 2016 #65
THIS--“I was on the phone with his mother when the doctors disconnected him"--IS THE AWFUL PART. No WinkyDink Aug 2016 #64
"Ma'am, it is time. We must disconnect your child from life support." Indydem Aug 2016 #69
Depending on the equipment involved it's a long process, and nurses suggest stepping out LeftyMom Aug 2016 #87
this entire thread is filled with so much supposition, opinion and straight out lies tymorial Aug 2016 #109
My mom spent two weeks on a ventilator in April, so this process is fresh in my mind. LeftyMom Aug 2016 #110
She could have held her son's hand as the machines were disconnected. Sand Rat Expat Aug 2016 #94
I wouldn't want to be kept alive by machines perdita9 Aug 2016 #70
The child was already dead, and this couldn't even be kept alive obamanut2012 Aug 2016 #142
This is beyond my understanding Boomer Aug 2016 #73
Reminds me of the situation with Jahi McMath brain death. SunSeeker Aug 2016 #74
She is in New Jersey. LisaL Aug 2016 #76
She's dead. She's been dead for years. Her body is in New Jersey. LeftyMom Aug 2016 #88
She was transported there from CA. Starry Messenger Aug 2016 #104
I know that. I was responding to a poster who didn't know where she was at now. LisaL Aug 2016 #111
Yeah ProudToBeBlueInRhody Aug 2016 #103
Well, apparently there is one good reason: money. SunSeeker Aug 2016 #115
It would be a very tall order to prove that she is alive. LisaL Aug 2016 #122
This message was self-deleted by its author TexasBushwhacker Aug 2016 #80
Asthma killed him, poor little guy. May his family find peace. Hekate Aug 2016 #81
Second thoughts: if they had the money to go to Guatemala, why was his asthma untreated here? Hekate Aug 2016 #82
I am pretty sure the money to go to Gutemala were collected after he was declared brain dead. LisaL Aug 2016 #85
I know the law. Duval Aug 2016 #83
I suspect they had used up all their 'bedside manner' moments with this couple. Chemisse Aug 2016 #96
I suspect that if the parents had money, they would have been shown more respect & consideration whathehell Aug 2016 #108
The very recommendation I was about to make. Joe Chi Minh Aug 2016 #167
The family was well aware of both the recommendations and the procedure tymorial Aug 2016 #107
Link to a story on this from the Washington Post back in May of this year. Adsos Letter Aug 2016 #113
Were they being scammed by the hospital in Guatemala? Bradical79 Aug 2016 #120
The boy was only put on life support on April 1st NoGoodNamesLeft Aug 2016 #121
There can not be either recovery or healing for someone who is brain dead. LisaL Aug 2016 #124
Perhaps you should tell that to Hanna Lottritz.... NoGoodNamesLeft Aug 2016 #129
None of tehm were brain dead -- brainv dead is dead obamanut2012 Aug 2016 #143
Yes, they were all deemed brain dead NoGoodNamesLeft Aug 2016 #148
No, none of them were obamanut2012 Aug 2016 #165
Dr. Paul Byrne is not a credible source. tammywammy Aug 2016 #127
I looked him up and he appears to be licensed NoGoodNamesLeft Aug 2016 #130
You should read up more on him tammywammy Aug 2016 #131
That is a blog, not anything official. NoGoodNamesLeft Aug 2016 #133
I said he's not credible tammywammy Aug 2016 #134
I'm sorry, but I will not discredit a licensed medical professional based on opinions and not facts NoGoodNamesLeft Aug 2016 #149
Sure you'll discredit licensed medical professionals CreekDog Aug 2016 #157
huh what? woundedkarma Aug 2016 #125
Did you bother to read the article? LisaL Aug 2016 #126
You really need to do more research on this case rather than look at that one article NoGoodNamesLeft Aug 2016 #132
"They performed the tests against her permission"? randome Aug 2016 #145
Since they withdrew permission to do the test NoGoodNamesLeft Aug 2016 #150
He died in April. LeftyMom Aug 2016 #136
+1000 Hekate Aug 2016 #154
Heartless? Seriously? The parents are delusional, it's Terri Schiavo all over again. Odin2005 Aug 2016 #139
Good -- we do not need a redux of poor Jahi McMath obamanut2012 Aug 2016 #140
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