I just finished a university course on infectious diseases. MRSA is a nightmare and getting worse.
It is vital that you get into a specialist ASAP. Push your family doctor/internist or any other medical professional you deal with or know to pull strings to get you an immediate appointment, or at least on a waiting list for cancellations. All docs keep a few times open for their patients' emergencies. If you push hard and are flexible enough, you CAN get in quickly. Once you get an appt., find out what lab work the new doc will want, and get a prescription to have that done at once and sent to the doc's office. Get copies of all your medical records dealing with possible source of infection and treatment you've had since it started. Get copies of your lab work and learn how to read your own lab reports - all those abbreviations/numbers - and what the different tests measure, so you can intelligently discuss them with your medical care providers.
I recently needed to see two new kinds of specialists (different medical problem than yours, but serious), and was told there was a four month waiting period for all of them. I made appointments with several of them in each specialty, and asked to be put on the list in case of cancellations. Then I ran into a nurse practitioner, who picked up the phone and got me an appointment with one type of specialist the following week, and another type of specialist within two weeks. I got into see a local endocrinologist quickly, but kept the four month out appt. with the most highly regarded endocrinologist in my area. My insurance allows for second opinions, and that's what I got. The first endo. guy was OK, but the second one was better, and she gave me some valuable advice which makes my life a lot easier.
My ex was suffering for months with a post-op infection, treated in a one-horse hospital in a small town. I had our adult kids push him(cause he'd die before taking any advice from me) to go into the university teaching hospital in nearby Pittsburgh, where they cured his condition. Don't know where you live, but you need to get to a board certified specialist affiliated with a major medical center.
When it comes to being on a waiting list for cancellations, make getting an appt. your first priority. You are dealing with a lethal disease, so don't hesitate to walk out of work on 5 minutes notice, or cancel a social engagement if that will get you into a specialist sooner.
Research the symptoms for MRSA, and if your situation worsens significantly or abruptly, get into the ER of the best hospital in your area.
Here's a link on a promising recent development in speeding up correct treatment. There is a lot more info on the web of course. Knowledge is power, and nowhere more so than when it comes to taking control of your own medical care. Top specialists are pressured to see 50 patients a day. When you are intimately familiar with the disease for which they are treating you, the time they give you is much more beneficial. If you know what symptoms are significant, and what questions to ask, you are ahead of the game.
http://www.kgoam810.com/rssItem.asp?feedid=116&itemid=29666315Test to Help Speed-Up Distinguishing Between MRSA and MSSA
Siri Stafford/Photodisc/Thinkstock(WASHINGTON) -- Health experts will now be able to save time when trying to determine whether Staphylococcus aureus infections in patients are methicillin resistant (MRSA) or methicillin susceptible (MSSA), as the U.S. Food and Drug Administration (FDA) announced on Friday that it has cleared a test that will allow a speed-up in the process.
There are various types of Staphylococci bacteria, some of which are easily treated with antibiotics and some that are resistant to this treatment, such as MRSA.
The FDA has cleared the KeyPath MRSA/MSSA Blood Culture Test for use by doctors, with officials saying that the test makes it possible to determine whether bacteria in a patient’s positive blood culture sample are MRSA or MSSA within about five hours.
“This not only saves time in diagnosing potentially life-threatening infections but also allows health care professionals to optimize treatment and start appropriate contact precautions to prevent the spread of the organism,” said Alberto Gutierrez, Ph.D., director of the Office of In Vitro Diagnostics Device Evaluation and Safety in the FDA’s Center for Devices and Radiological Health.
Best wishes for a speedy recovery!
On edit: I see by your profile, you are married. Keep your wife educated on all this also. If she can go with you to the specialist, you've got someone to take notes, keep track of questions you have, etc. When one is dealing with stressful diseases, it's hard to remember everything the doc or other medical specialist tell you.
On edit II: Re getting an appointment. If you call every day to ask about cancellations, you'll wear down the doctor's gatekeeper/administrative assistant, and she or he will give you an appointment just to get you off their back. But ask in a nice way, of course!