Reply #50: Same for me, I never know how

[DemBones DemBones]

I'll feel on any given day. I have to reschedule most of my appointments with doctors.

I have 2-4 good days a month, meaning I feel well enough to get dressed and go out. Of course I fix my hair and usually put on make-up. I always pay for going out, though, with lots of fatigue and pain for a week or two afterwards.

Like you, I have to get up and walk around every few minutes if I'm sitting in a wooden chair or just about anywhere except at home, where I have comfortable furniture. It's amazing how many people have uncomfortable furniture! I still belong to several groups that meet in members' homes, though I don't get to attend very often and when I do I have to be one of the early arrivals so I can get a comfortable chair -- some people only have one.

I can't go to a lot of peoples' homes because of their stairs so if I feel good on a day when a meeting is at one of those homes, I can't go. I don't expect them to put in a ramp, of course, but hand rails are a safety feature all steps and stairs should have, especially those that have more than a standard riser height (i.e., their builder didn't follow code.) Not having them is asking for a lawsuit.

People just have no idea what we're dealing with and most don't care to find out.