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Doctors; 3 year old with Glioma. Can you offer the guardian any hope?

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benburch Donating Member (1000+ posts) Send PM | Profile | Ignore Sun Oct-09-05 09:22 PM
Original message
Doctors; 3 year old with Glioma. Can you offer the guardian any hope?
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tsuki Donating Member (1000+ posts) Send PM | Profile | Ignore Sun Oct-09-05 09:50 PM
Response to Original message
1. This from
www.stjude.org

Some of the more common low-grade astrocytomas are:

*
Juvenile Pilocytic Astrocytoma (JPA)
*
Fibrillary Astrocytoma
*
Pleomorphic Xantroastrocytoma (PXA)
*
Desembryoplastic Neuroepithelial Tumor (DNET)

The two most common high-grade astrocytomas are:

*
Anaplastic Astrocytoma (AA)
*
Glioblastoma Multiforme (GBM)

Incidence

Astrocytomas account for the majority of pediatric brain tumors. About 700 children are diagnosed with low-grade astrocytomas each year. In children, more than 80 percent of astrocytomas are low-grade; nearly 20 percent are high-grade.


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nosmokes Donating Member (1000+ posts) Send PM | Profile | Ignore Sun Oct-09-05 09:55 PM
Response to Original message
2. most definitely there is hope!
i'm a survivor of 10+ years with a glioma , though it has progressed and i now have 2 tumors, but hell, i'm still kickin, still agitatin, still a pain in the ass. i'm not a member at bartcop so please pass along this link for me would ya please?

http://hope.abta.org/site/PageServer

it's the american brain tumor association, a great clearing house fo information and contacts. good luck to her and her son.
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benburch Donating Member (1000+ posts) Send PM | Profile | Ignore Sun Oct-09-05 09:57 PM
Response to Reply #2
3. Consider it passed. nt
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Obamarama Donating Member (1000+ posts) Send PM | Profile | Ignore Sun Oct-09-05 10:03 PM
Response to Original message
4. Have them contact these people:
Edited on Sun Oct-09-05 10:05 PM by KzooDem
1) Dr. Alexa Canady
2) Dr. Ben Carson
(SEE LINKS BELOW)

Both Dr. Canady and Dr. Carson treated my niece who was diagnosed with a glioma at the age of 2. Her local neurologists said there was nothing they could do and gave my niece three to six months.

Drs. Canady and Carson gave her an additional four years of life that offered a considerable amount of quality of life before the tumor eventually took her at age 6.

They are both recognized as the top pediatric neurosurgeons in the country.

Dr. Canady:http://www.outreach.psu.edu/C&I/Achievement2005/?WhichPage=Biography

Dr. Carson:http://www.drbencarson.com/

There is also a GREAT resource they should contact immediately so they can start educating themselves on what they are dealing with:

http://www.pbtfus.org/
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theHandpuppet Donating Member (1000+ posts) Send PM | Profile | Ignore Sun Oct-09-05 11:03 PM
Response to Reply #4
5. Kicking this!
So the information you gave can be shared.
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Czolgosz Donating Member (1000+ posts) Send PM | Profile | Ignore Sun Oct-09-05 11:16 PM
Response to Original message
6. I've spent some time in the Head & Neck Cancer Center at MD Anderson in
Houston. When the doctors I was originally seeing had nothing but dire news, I transferred to MD Anderson and it made a life or death difference with my stage IV cancer. These are many stories of hope at <http://www.acscsn.org>.
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