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I've kind of kept to myself more or less over the past year and a half of my son's (and my) 2 year ordeal since he was born in '06. But his latest surgery is, even personal connection aside, a fascinating one to me with regard to the medical technology involved.
The medical issues he was born with are far too many to list, but the primary one he was born with has now required him to have now at 2 years old what is called a craniomaxillary distraction (AKA a jaw distraction) to basically pull his jaw out further to assit him not only cosmetically but also breathing, eating, etc.. This is, by my count his 10th surgery in 2 years.
For anyone interested in the process, we're tracking it day by day and explaining it on a blog. There's also some links to some interesting other articles on related subjects and some good causes that his surgeon is also involved in.
So, shameless plug here:
www.kjvis.blogspot.com
This experience has taught me many things, and believe it or not all the time in and out of the hospitals have shown me that as bad as he (and I) have had this, there are still soooo many out there who not only have it worse in terms of the hand they've been dealt medically but also with regard to the resources they have to be able to cope and survive with it. It's been tough as hell for my wife and I to keep it all together (especially with a 6 year old daughter as well) and we have as many resources in terms of family, work, nursing, etc. to assist us.
So...no prayers needed or anything of that nature (especially since this experience has if anything hardened my wives and my combined atheism). Just more for anyone interested in the medical technology and a link or two to some good work being done and maybe a moment to think about other people coping with what my family is but who don't have the access and the resources that we do.
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