Resources for Rare Cancers: Do you have support for the kind you or a loved one have?

[Mike 03]

Do you or someone you care about have a cancer for which there are few online resources?

Please share your experience. This issue means a lot to me, and I desperately want to hear about yoru experiences and, if you are affected by this lack of information, what you would like to see in the way of resources to help you.

Please, if you reply to this post, list the cancer(s) you think are not well covered online.

Thank you in advance for any input you might have. It is very, very much appreciated.

Mike