Welcome to DU! The truly grassroots left-of-center political community where regular people, not algorithms, drive the discussions and set the standards. Join the community: Create a free account Support DU (and get rid of ads!): Become a Star Member Latest Breaking News Editorials & Other Articles General Discussion The DU Lounge All Forums Issue Forums Culture Forums Alliance Forums Region Forums Support Forums Help & Search

PCIntern

(27,908 posts)
Thu Aug 14, 2025, 02:27 PM Aug 2025

Ok folks, now DIG THIS: 😡

I believe I mentioned some years ago that I rely upon an intermittent catheter to urinate due to a condition known as Teacher’s Syndrome combined with a near-total lack of bladder sensation so that I never ever can feel any amount of urine present which can be a problem, a big problem. Big.

I use a special catheter with what’s called a coude tip and the lubrication is contained in a separate sealed packet within the sterile sleeve so all you have to do is squeeze the lube packet, the catheter self-lubricates, and it works perfectly 99% of the time. I live a totally normal existence and actually better, because I never ever have to run to the bathroom.

The monthly cost billed to Medicare for 150 non-reusable items is about $850.00 of which I have to pay 20%. This is not my issue: for me that’s fair and quite manageable. I elected my insurance and knew full-well what my expense would be. Everything’s been perfect until:

So today I receive from my catheter company the following:


The Centers for Medicare & Medicaid Services (CMS) recently proposed a rule that could potentially limit access to essential medical supplies used by thousands of people like you across the country.

This proposed change would allow urological and ostomy supplies to be added to Medicare’s Competitive Bidding Program (CBP), even though these items are currently protected under law and excluded from bidding.

This proposal does not impact your current orders, and (the company) will continue to provide your supplies. However, we believe it’s important to keep you informed. Because this proposal poses a risk to future access, the time to take action and make your voice heard is now.

What’s at Stake?
If this change goes into effect, it could seriously impact the quality of life of people who live with an ostomy or rely on intermittent catheters. Catheter and ostomy supplies are not one-size-fits-all. They are medically necessary, highly individualized, and prescribed by a physician.

If CMS moves forward with this change, many suppliers may exit the Medicare program, leading to reduced access, lower quality products, and potentially serious health consequences for those who rely on these critical products every day.

Why CMS Needs to Hear From You
CMS is required by law to review and consider all public comments before finalizing proposed rules. You don’t need to be a policy expert. Your personal story is what matters most. Sharing how these supplies affect your health and daily life can make a powerful impact.

How to Submit a Comment (By August 29, 2025):
Visit the official rule page
Scroll down and click “Submit a public comment.”
You can use or adapt the sample comment below to guide your message. Be sure to add your personal experience — that’s what matters most.
Leave the category blank, provide your email information, and submit your comment.
Visit the Official Rule Page
Sample Comment Template
Subject: I Oppose Inclusion of Urological and Ostomy Supplies in Competitive Bidding

My name is [insert name], and I rely on [insert supply type, e.g., urological/ostomy] supplies provided by [insert provider name and location]. These supplies are critical to my health and have been prescribed by my physician based on my specific medical needs. I use products that are specially tailored for me.

I am very concerned that CMS is proposing to include urological and ostomy supplies in future rounds of the Medicare Competitive Bidding Program. Including these supplies in CBP could force suppliers out of the Medicare program and severely limit my access to medically necessary, customized products. My health depends on consistent access to high-quality, individualized supplies, and I’m worried that this proposal will put that at risk.

I strongly urge CMS to withdraw this portion of the proposed rule and continue to protect access to the vital medical supplies that people like me depend on every day.

————————————-

So I can only imagine what quality of device will be selected by these sons of bitches. Probably used garden hose material. Now here’s the deal: wait until all those MAGA motherfuckers lose their particular brand: trust me, it’s like a tobacco brand but 100 times more critical: they will go berserk if this happens. And so will I. Details and consequences to follow.

36 replies = new reply since forum marked as read
Highlight: NoneDon't highlight anything 5 newestHighlight 5 most recent replies
Ok folks, now DIG THIS: 😡 (Original Post) PCIntern Aug 2025 OP
Oh, Jeez. You shouldn't have to be worrying about that. I'm sorry. Scrivener7 Aug 2025 #1
"Dr. Oz".... hlthe2b Aug 2025 #2
Dr Oz will more than likely recommend that a person use a soda straw instead LiberalArkie Aug 2025 #5
plastic, not paper..... lastlib Aug 2025 #28
Thanks for putting this "personal" matter up front. Most of us have similar issues, or will. erronis Aug 2025 #3
Aaaaand let me educate people Hornedfrog2000 Aug 2025 #4
Not only that but, UTIs can produce hallucinations MagickMuffin Aug 2025 #6
i had utie qith 1o2 degrees f. fever. wound up in the icu. didnt hallucinations. AllaN01Bear Aug 2025 #14
Yup, Hornedfrog2000 Aug 2025 #24
This is no joke Wifes husband Aug 2025 #11
Get better! BaronChocula Aug 2025 #15
True. My father died from a UTI in this fashion. beaglelover Aug 2025 #35
K&R spanone Aug 2025 #7
JFC Skittles Aug 2025 #8
Somebody should ask Chump what type of catheter he uses FakeNoose Aug 2025 #9
K&R Alice Kramden Aug 2025 #10
Thanks for being so open about this issue MerryBlooms Aug 2025 #12
Mr. Noodle uses them and got a letter as well radical noodle Aug 2025 #22
This is not a "quality of life" issue Bluetus Aug 2025 #13
I had a colostomy then ileostomy LSparkle Aug 2025 #26
One size generally fits no one. Decades of putting people into hospital gowns Warpy Aug 2025 #16
Exactly correct. PCIntern Aug 2025 #17
Hospital gowns... lonely bird Aug 2025 #19
There are usually PJ bottoms Warpy Aug 2025 #31
Thanks! lonely bird Aug 2025 #32
For want of a healthcare system. rickyhall Aug 2025 #18
Unfortunately, I can 100% imagine what's going to happen to people if this occurs. Dem2theMax Aug 2025 #20
And that is true and weird: PCIntern Aug 2025 #23
The fresh hell of Donald Fucking tRump Blue Owl Aug 2025 #21
Will you get a letter of thanks for your contribution to the Greatification????? BurnDoubt Aug 2025 #25
Icouldn't find the Rules page at CMS but I found thison WOCN site TexLaProgressive Aug 2025 #27
Great! Thanks!! PCIntern Aug 2025 #29
K'n'R justaprogressive Aug 2025 #30
My husband has a tube and will be getting it removed soon. He will be able now to urinate naturally. CTyankee Aug 2025 #33
I just now submitted a comment. thucythucy Aug 2025 #34
Oh, this SOB and his minions would love to PCIntern Aug 2025 #36

hlthe2b

(112,432 posts)
2. "Dr. Oz"....
Thu Aug 14, 2025, 02:31 PM
Aug 2025


I'd certainly submit an appropriate comment and try to get as many others directly impacted to do so as well. Your urologist, certainly.

It was a new day a new horror after Jan 20. Now, it is a new hour, a new horror. Sigh...

LiberalArkie

(19,159 posts)
5. Dr Oz will more than likely recommend that a person use a soda straw instead
Thu Aug 14, 2025, 03:26 PM
Aug 2025

Of a prescription

erronis

(22,275 posts)
3. Thanks for putting this "personal" matter up front. Most of us have similar issues, or will.
Thu Aug 14, 2025, 03:17 PM
Aug 2025

There are some very dark currents running through this regime, perhaps best exemplified by rfkjr and his horrid picks. Underlying everything seems to be how to best monetize - quickly healthcare, and maybe even how to kill the American healthcare system. I'm sure the monetization includes some coins that fall into trump's voluminous pants.

 

Hornedfrog2000

(866 posts)
4. Aaaaand let me educate people
Thu Aug 14, 2025, 03:22 PM
Aug 2025

It is vital to use sterile equipment all the time, because you will get a urinary tract infection. Not a huge deal, right? Wrong. If you dont catch a UTI soon enough, you can actually have it travel up as far as your kidneys, your kidneys filter your blood. When you get a blood infection that is sepsis.

MagickMuffin

(18,040 posts)
6. Not only that but, UTIs can produce hallucinations
Thu Aug 14, 2025, 03:34 PM
Aug 2025

PSA:
Family members have had that happen. They started hallucinating, hearing voices and thinking there was an upper floor to their house, however, they lived in a single one story house.

Medical staff informed us to make sure when you urinate to make sure your bladder is totally empty. Otherwise you are subjected to UTIs because there is still urine needing to be eliminated.

AllaN01Bear

(28,280 posts)
14. i had utie qith 1o2 degrees f. fever. wound up in the icu. didnt hallucinations.
Thu Aug 14, 2025, 04:28 PM
Aug 2025

but lost a whole year. not fun. dang that idiot. wish i had never heard of him and all his crackpots

FakeNoose

(39,779 posts)
9. Somebody should ask Chump what type of catheter he uses
Thu Aug 14, 2025, 03:53 PM
Aug 2025

If he says he doesn't use one, the questioner should say "Well, not NOW ... but you will soon!"

MerryBlooms

(12,125 posts)
12. Thanks for being so open about this issue
Thu Aug 14, 2025, 04:07 PM
Aug 2025

My brother, requires ostomy care. He's a hard-core Trump supporter. Our next conversation, I'll ask him if he's gotten a letter. His gal who took care of all his medical stuff, passed last year from a stroke. She was hard-core Dem! Lots of arguments between them. Unfortunately, my brother can't have a conversation without bringing up politics... but, he's 78, redneck eastern oregon, and in horrible health. I argue, but at the end, we both tell each other we love. Thing is, he's still splitting wood, working on trucks... crazy bastid

Bluetus

(2,071 posts)
13. This is not a "quality of life" issue
Thu Aug 14, 2025, 04:23 PM
Aug 2025

in the sense that a $90,000 prosthetic leg might provide a better quality of life than a $10,000 prosthetic.

These urinary supplies are not optional, and it is not healthy to use them multiple times. It can be life-threatening.

I required an ostomy for about 6 months. Fortunately, I had a wonderful medical team that was able to cure my disease and save enough of my colon that I can live a mostly normal life without a colostomy. Had it been otherwise, these supplies would not be optional.

This is just the tip of the iceberg. The same people doing these things will also be trying to pass rules that would have denied my surgery.

The people driving these things are all billionaires who can afford to travel anywhere in the world (Israel, France, Sweden ???) and pay for the best medical care. Their whole goal is to reduce the health care available to the other 99.9% to little more than palliative care, while putting billions more in their own pockets.

LSparkle

(12,115 posts)
26. I had a colostomy then ileostomy
Fri Aug 15, 2025, 12:22 AM
Aug 2025

Supplies were very expensive but once I found an item that worked right, I would have paid ANY price for it. I’ve been reversed and healthy for 2 years but I feel angry and saddened for all the people who will be hurt by this policy change. Absolutely cruel.

Warpy

(114,321 posts)
16. One size generally fits no one. Decades of putting people into hospital gowns
Thu Aug 14, 2025, 05:14 PM
Aug 2025

taught me that. The competitive bidding was originally supposed to cover drugs. Why the hell they thought they could throw medical devices into that is beyond me, unless Republicans put that in to poison pill the whole bidding process to an early death so the pharma gravy train would continue on.

Let's hope suppliers realize this and find a way to offer a variety of options because one size fits nobody.

lonely bird

(2,660 posts)
19. Hospital gowns...
Thu Aug 14, 2025, 07:52 PM
Aug 2025

I have been in the ER multiple times with multiple illeus plus bowel obstructions which ended up requiring surgery 4 times. I am 6’8”. Let us say that they don’t keep a lot of large gowns right in the rooms.

Warpy

(114,321 posts)
31. There are usually PJ bottoms
Fri Aug 15, 2025, 01:10 PM
Aug 2025

the only problem is prying them loose from Central Supply. They're not obstinate, attire is j8st a low priority. They'd have ended well above your ankles, but at least you'd have had some coverage. Another alternative is having someone go into the OR changing room and grab a set of scrubs I've had to do that when I was working if some drunk covered me with happy returns--or worse.

In any case, now you know what to request if you're going to be admitted.

Dem2theMax

(11,005 posts)
20. Unfortunately, I can 100% imagine what's going to happen to people if this occurs.
Thu Aug 14, 2025, 07:56 PM
Aug 2025

My dad, who passed away some years ago, had to self catheterize every day. For some reason, no one told him that his insurance would cover catheters. He purchased a few and then kept reusing them. Sure enough, massive infections. While he was in the hospital, a nurse told us that catheters were covered under his health insurance and gave us the information on where to order them.

Between having a clean catheter every day and being told to wash 'everything' that came in contact with that catheter with hibiclens, he never had another infection.

Again, people are going to die because of the GOP.

PCIntern

(27,908 posts)
23. And that is true and weird:
Thu Aug 14, 2025, 08:59 PM
Aug 2025

You can wash and virtually sterilize them, store them perfectly and get infections. I belong to a couple FB groups and this is a giant problem for these people who are forced to limit their use of new ones.

Blue Owl

(58,049 posts)
21. The fresh hell of Donald Fucking tRump
Thu Aug 14, 2025, 08:04 PM
Aug 2025

Just DIE already you miserable fat orange piece of shit

BurnDoubt

(1,318 posts)
25. Will you get a letter of thanks for your contribution to the Greatification?????
Thu Aug 14, 2025, 10:38 PM
Aug 2025

Lousy bastards.

TexLaProgressive

(12,642 posts)
27. Icouldn't find the Rules page at CMS but I found thison WOCN site
Fri Aug 15, 2025, 06:39 AM
Aug 2025
https://www.wocn.org/member-alert-your-action-is-needed-proposed-cms-rule-threatens-access-to-ostomy-urological-supplies/

Call to Action: Submit Your Comments to CMS!
Let CMS know this proposal is unacceptable! Submit comments opposing this proposal here
Encourage your patients to do the same through the UOAA Grassroots Portal
The deadline to comment is August 29, 2025—but we urge you to act now. Your comment, and your patients’ voices, can make a difference.


Link to UOAA Grassroots Portal
https://www.ostomy.org/take-action/

I posted about this in the Ostomy community of Inspire.com

CTyankee

(67,682 posts)
33. My husband has a tube and will be getting it removed soon. He will be able now to urinate naturally.
Fri Aug 15, 2025, 02:08 PM
Aug 2025

This was the best news we could get!

thucythucy

(9,021 posts)
34. I just now submitted a comment.
Fri Aug 15, 2025, 02:46 PM
Aug 2025

Thanks for the heads-up.

I've been a part of the disability community for decades, and know lots of folk who might be affected by this.

My own sweetie used a Foley catheter, which is different but similar.

I hope we're able to stop this latest monstrosity brought to us by the enablers of Mango Mussolini.

PCIntern

(27,908 posts)
36. Oh, this SOB and his minions would love to
Fri Aug 15, 2025, 06:16 PM
Aug 2025

see all the Democrats in a Foley.

Sometimes I’ll tell my Foley story just for kicks.

Latest Discussions»General Discussion»Ok folks, now DIG THIS: ...