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Related: Editorials & Other Articles, Issue Forums, Alliance Forums, Region ForumsLittle Star, my mom
Little Star my mom, went to the hospital last October around the time of her 73rd birthday. She was complaining of stomach pain. They ran a CT scan where they caught a glimpse of a left lung mass. They ran another CT of her lungs which showed a large mass. She also had an immense amount of fluid around her heart.
The next few days were a blur, but she had major surgery and where they placed a tube to drain the fluid and they took biopsies. The biopsies were all negative for cancer. However that hope was short lived as a month later when they removed the tube they completed a radiologic guided biopsy. Those results were positive for lung cancer.
We met with surgeons and geriatric oncologists. Mom did not want treatment and all the doctors agreed. It would hasten her death. She has lived with me in an in-law apartment for many years. So, I took her home and moved her in with me and have been caring for her.
She has a decline which is expected. I dont know how much longer I have with her, but my only prayers are to have limited suffering. If you believe in prayer, please pray for the same for her. She has led quite a life where she escaped a brutal marriage and found love again. She has four, daughters who she worked multiple jobs to keep food on the table and roof over our heads. We were always first. She is the best mom anyone could ever want. I am going to miss my best friend and rock when she is called home.
I am working with hospice, but have not needed them again until yesterday. She is in pain. It is a weekend. They helped to get her some pain meds. The medication is helping a little bit. With the COVID, things are screwed up. I am doing my best and expect to see them on Monday. I cannot have her removed from this house. If I do, I and my sisters will never see her again due to Covid and no visiting restrictions. Plus My solemn promise to her is to not ever put her in a home and I intend to keep that promise.
Any how, I am also writing for her. She has been a member of DU for as long as I have. DU for a decade and a half has been our political home and family. DU has given rise to many conversations between us and also an education. It has pissed us off and has given us joy. She loves DU and I want you all to know that.
Love to all,
Little Star and boston bean
Squinch
(50,922 posts)I am so glad you are together and will remain together through this.
Boston, take care of yourself while you take care of your mom.
CottonBear
(21,596 posts)🧡💛🧡⭐️ Little Star ⭐️🧡 💛🧡
Skidmore
(37,364 posts)and thoughts at this bittersweet precious time you have together.
uponit7771
(90,304 posts)... diagnosed with lung cancer
https://erj.ersjournals.com/content/52/suppl_62/PA2856
If your mom was a smoker this might help
SammyWinstonJack
(44,129 posts)livetohike
(22,124 posts)family. Holding you all in my thoughts for comfort
japple
(9,809 posts)from Hospice. Are they able to provide morphine on a regular basis? Can you get marijuana gummies or drops?
Asking the Universe to send calming, pain-relieving energies. Your mom sounds like an angel.
babylonsister
(171,036 posts)to you and your sisters. You're lucky to have each other.
blogslut
(37,985 posts)May love wash over you and your mother.
malaise
(268,724 posts)Your mom knows she is loved,
Ohiogal
(31,928 posts)For strength for all of you to deal with this
Please take care of yourselves,too
Atticus
(15,124 posts)believe that love survives our physical death.
Know that you both are being held in many hearts.
Glorfindel
(9,720 posts)All best wishes to Little Star and to you and your family at this (already) difficult time.
Maeve
(42,271 posts)Be with her as much as you can, just being there, remembering the good times, the funny stories, the love...give her space if that is what she needs (everyone has their own path on the final journey--my mother-in-law wouldn't die until the family left her bedside, my step-dad sent Mom on an errand so she wouldn't be there when he passed but my Dad wanted to hold a hand as he went). And it's okay to feel however you do and to cry whenever you do...and to laugh, as well.
May you all feel the warmth of love surround you as you pass through this time.
sinkingfeeling
(51,438 posts)how trying it is to watch your loved one slip away.
kentuck
(111,056 posts)Her name is very familiar.
littlemissmartypants
(22,594 posts)Stay encouraged, Little Star. Know that you are loved.
❤ lmsp
FM123
(10,053 posts)Sending you both my love, Boston Bean & Little Star.
CousinIT
(9,225 posts)..but do remember to take care of you so you can take care of her. Keep her home and comfortable as best you can. Let her know you're there and she is loved. That's all you can do. I don't blame you for not wanting her to be taken away. If you haven't done so it would be good to let any hospice, doctors, hospitals know your wishes (and likely, hers). They should be able to bring in oxygen, pain meds, whatever is needed to keep her comfortable until she goes. I don't know if in-home nursing is an option but sometimes it is.
Anyway, PLEASE take care of yourself, too. If your sisters can help, call upon them as well. Don't be afraid to ask for help and make your intentions known.
Peace and strength to you my friend.
magicarpet
(14,124 posts)Sounds like you got a handle on things.
She was your angel,.. now you are hers.
(Winchester, Lexington, Concord, Acton, Ayer)
pazzyanne
(6,544 posts)You both appear to be strong people. It takes very strong people to go through hospice in "normal" times. These are not "normal" times and provide so many more challenges for the family. You all will be in my heart, as someone who recently lost a brother to lung cancer. Take care of yourselves, as well as Little Star. Give her hugs from your DU family!
Scarsdale
(9,426 posts)Please know we are all with you in spirit. Your mom is (in some ways, probably the best ways) lucky. She has her children around, who love her and appreciate all she has done for them. Thankfully, you are able to keep her home, as promised. I wish she could live to see tRump soundly defeated at the next election. THAT would no doubt be a big boost for her. Try not to overdo, you have to keep up your strength, too. Hugs to mom, you and your sisters.
yardwork
(61,539 posts)bronxiteforever
(9,287 posts)will see you through these difficult moments.
Peace and a gentle passing for Little Star, with solace to all those whom she loves.
we can do it
(12,173 posts)Laelth
(32,017 posts)-Laelth
raccoon
(31,105 posts)randr
(12,409 posts)The love you are sharing is contagious
milestogo
(16,829 posts)panader0
(25,816 posts)My mom had lung cancer (life-long smoker). She was treated, radiated, etc.
She went into remission and urged me to go to a friend's wedding out of state.
When I returned my dad said she had relapsed and I went to her bedroom and
told her "Let's go to the hospital." She refused and asked to be let to die in her bed.
I couldn't conceive of that and insisted that I drive her to Tucson, where she had been
treated. She died that night and I have always had guilt.
I'm glad your mom is home. It's a great comfort and you have more tlc than anyone else.
WinstonSmith4740
(3,055 posts)Let go of that guilt. You did what you did out of concern for her, and were doing what you thought would give her the best chance of proper treatment and care. Hind sight is always 20/20. You did nothing wrong.
chia
(2,244 posts)Wishing the best possible and the easiest of roads for your mom and you.
Having cared for my mom until her passing, and understanding that no one can 'know' another's journey or another's pain, there are parts of your path that will look familiar to those who've walked a similar one, who can imagine how it may be traveled. You and your mom are in my thoughts, and my heart goes out to you both.
May the road rise up to meet you.
May the wind be always at your back.
May the sun shine warm upon your face;
the rains fall soft upon your fields and until we meet again,
may God hold you in the palm of His hand.
WinstonSmith4740
(3,055 posts)I lost my husband 10 years ago to cancer. He fought it the best he could for two years, but it was caused by a lousy gene he inherited so he was never even going to hit remission. The decision to stop treatment was his & I had to respect it. So I can tell you from experience...hospice workers are angels on earth. I don't know how they do it. The next period of time is going to be tough on you. She'll experience ups and downs. There will be a couple of days where you'll swear shes getting better. Keep those pain meds nearby. If they haven't given her morphine yet, they probably will. Don't be afraid to let her have it when she asks for it.
It's a good thing on so many levels you didn't let her go to an assisted care facility. Just as this virus was ramping up, my best friend's mom was hospitalized. A couple of days after she was sent to rehab, they told Susie she wouldn't be allowed in to visit her mom due to the virus concerns. She pulled her out that day.
I know you have a lot on your shoulders right now, but please take time for yourself. The exhaustion that will hit you when this is all over is normal, but in the meantime, remember to eat, get enough rest, and allow yourself to laugh. Pull as many stories out of your mom as you can...there's got to be SOME family legend she hasn't told you about yet. Maybe something her grandparents told her when she was a kid. Record her voice telling you.
The following poem was in the pamphlet the hospice people gave me. I have offered it to everyone I've come across since then who is on this journey. I hope it brings you as much comfort as it brought me. Message me if you want to talk.
https://www.bing.com/videos/search?q=Watch+Gone+From+My+Sight&ru=%2fvideos%2fsearch%3fq%3dWatch%2bGone%2bFrom%2bMy%2bSight%26FORM%3dVDMHRS&view=detail&mid=2A6054A60E9C150D7C822A6054A60E9C150D7C82&rvsmid=8FB58DF0D04EFEFC025E8FB58DF0D04EFEFC025E&FORM=VDMCNR
2naSalit
(86,345 posts)Wishing the best to both of you, and the rest of your family in this difficult time. A time more difficult than would normally be.
NewJeffCT
(56,828 posts)I'm so sorry to hear this.
Cyrano
(15,027 posts)Posts to DU are not an idle pass time. Ideas matter in this world. And your current post shows the power of caring, giving, sacrifice, dedication and love.
blm
(113,019 posts)UpInArms
(51,280 posts)Give her love and hugs from all of us
brer cat
(24,525 posts)I am praying for strength and peace for both of you.
monmouth4
(9,686 posts)you take care of yourself.
mokawanis
(4,435 posts)Botany
(70,449 posts)n/
mcar
(42,278 posts)They were only 62, went one after the other.
Their only wishes were to die at home. We worked together, my siblings and I, to make that happen - with the help of hospice for my mom. It meant everything to them.
Little Star is in wonderful, loving hands, boston bean. I pray for a gentle passage for her and love and healing for you.
Silver Gaia
(4,541 posts)I used to post in TV Chat with your mom sometimes. She was great at posting about where to find lists of new shows each season, or about the Emmys, or just discussing a show or episode. I always enjoyed reading her posts and chatting with her.
I am so sorry she is ill. Bless you for being a good daughter.
blm
(113,019 posts)with our Little Star.
My mom stayed at home on morphine to pass. She had 12 kids and 6 dozen grandkids at the time, so we decided against overwhelming a hospice with all of us.
You made a good decision, bb. ❤️❤️❤️
MLAA
(17,253 posts)volstork
(5,399 posts)sobenji
(316 posts)Demonaut
(8,914 posts)Cousin Dupree
(1,866 posts)NoRoadUntravelled
(2,626 posts)It sounds like you and your mom have helped make DU the special community that it is for a long time.
My thoughts are with you both as you move through these days together surrounded by the love you have for one another.
FailureToCommunicate
(14,007 posts)If she were elsewhere, and you couldn't visit at the end, you'd always regret it.
So sorry to lose one of the DU family.
CountMyVote4Reality
(209 posts)bluestarone
(16,872 posts)THANK YOU for taking care of you little star!! Will be thinking and praying for you BOTH!!
stillcool
(32,626 posts)so much love. It's beautiful, as are you both.
Stinky The Clown
(67,765 posts)SheltieLover
(57,073 posts)Phentex
(16,330 posts)I don't think I knew that Little Star was your mom but I recognize the username. My heart goes out to you!
Fla Dem
(23,593 posts)I know your Mom's (Little Star) time is short, and I grieve for you and your family. Know that the DU community has you and your Mom in our thoughts as you both take this journey. May she be with you to the end.
CaptainTruth
(6,576 posts)Marrah_Goodman
(1,586 posts)I am so sorry you are going through this. Love to Little Star.
mercuryblues
(14,525 posts)may you and your family find solace and peace during this time of your lives.
BadgerMom
(2,770 posts)smirkymonkey
(63,221 posts)I am so sorry to hear this. I wish peace for you, your mom and your entire family.
niyad
(113,085 posts)Holding you close in this moment. BB, thank you for sharing your family with. Us, and know that your DU family is here for you both.
Bayard
(22,011 posts)Thinking of you both.
Sunriser13
(612 posts)I'm so sorry y'all are going through this, but so grateful the two of you are together.
BlancheSplanchnik
(20,219 posts)npk
(3,660 posts)Lots of love and support to you and your family.
Tanuki
(14,914 posts)and be free of any pain or fear. It is a blessing that she can be at home and not in a facility where you could not be with her. Thank you for sharing this so that we can all offer our love and support. You are part of a large and caring community here and are never, ever alone.
seaglass
(8,171 posts)This is really tough for both of you
Love to you and Little Star
renate
(13,776 posts)Little Starwhat a perfect name for someone who has always been a sweetly shining light for your family and for your friends, even those who have never met you in person. You and your loved ones are in my prayers.
seta1950
(932 posts)Losing ones mom is never easy, but you are a good daughter for keeping her home , as someone who will be 70 soon being in a nursing home is my greatest fear. My thoughts are with you both.
EllieBC
(2,990 posts)treestar
(82,383 posts)I like that she and you shared DU. Enjoy the time you have left as much as possible. Love to her and you and your sisters.
Tumbulu
(6,268 posts)Sending you my love
Stuart G
(38,414 posts)Baked Potato
(7,733 posts)lillypaddle
(9,580 posts)Thoughts and love to you both.
cayugafalls
(5,639 posts)Stay strong.
live love laugh
(13,081 posts)sheshe2
(83,665 posts)I know exactly how difficult this is for you, Boston Bean.
To you all.
Hekate
(90,565 posts)Demovictory9
(32,423 posts)KT2000
(20,568 posts)my sister just went through what your mother is going through but she took the other route and they treated a hopeless case. The worst thing to do IMHO. As you care for your mother I wish you a lightness that comes with the love you have for her. Enjoy what you are able to do for her. Peace. And I did read Little Star's posts.
mahina
(17,625 posts)Aloha no Boston Bean.
And Little Star, peace and comfort. Youre a great lady and Mom and an inspiration.
Seeing this image of the seven sisters doesnt show up embedded. We are all your sisters Boston Bean, lifting you up. Lovely lovely Little Stars. Aloha no, a hui hou.
https://images.app.goo.gl/G34JVf2HnFsQEzPm9
TygrBright
(20,755 posts)...may the pain and the sorrow pass quickly, and the blessings they leave connect you and console you forever.
lovingly,
Bright
peacebuzzard
(5,148 posts)Thank you Boston bean for letting us know about her challenges.
home is the best place, now. I will be thinking of you and your mom.
Karadeniz
(22,474 posts)You have each other right now...you've changed places...she once took care of you, and your taking care of her is a testimony that she taught you well what is important, helping one another out. Strength to both of you...❤
Cha
(296,879 posts)a host of Hillary's Group and I communicated with her when I wanted to do that, too. She's so Nice! I could never forget her.
I'm so sorry she's going through all this.. you are the Best Daughter.. I'm in tears for all your family.. with Love, Peace & Aloha, Cha
Cadfael
(1,296 posts)To you both
for Little Star and Boston bean!
Trueblue Texan
(2,420 posts)Rainbow Droid
(722 posts)William769
(55,144 posts)You two are always in my thoughts & prayers.
You Mom was always so very nice to me.
I am so very sorry.
calimary
(81,127 posts)Man -- when it rains it pours.
I hate it that you have to go through this. Just anyway. But to have to go through this ON TOP OF everything else going on now! It's gotta feel like a two-fisted blow to the gut. The psychological load you must be carrying! I'm so sorry.
I guess all I can really hope for, for you and her, would be peaceful passage. Safe passage. Gentle transition. On both of you. You need that, too, boston bean.
Much love and sympathy and empathy, too.
Virtual hug -
cate94
(2,810 posts)Its very tough. You are a wonderful daughter. Sending prayers and hugs.
GeoWilliam750
(2,521 posts)And wishes for strength and comfort
boston bean
(36,219 posts)who commented/reccd this. It warms my heart and is a source of strength.
Thank you ALL. I dont think I have it in me to respond to every post, so please know how appreciative I am!
❤️❤️❤️❤️❤️❤️❤️❤️❤️
SheltieLover
(57,073 posts)And know we will be holding you in comforting, loving vibes.
spooky3
(34,407 posts)JohnnyLib2
(11,211 posts)I admire your devotion to each other and the family.
Raine
(30,540 posts)a hug for you and all the family 💞
Enoki33
(1,587 posts)the fair winds be at your back, and the spirit within light the trail.
emmaverybo
(8,144 posts)later, is. Prayers for you and your beloved mother. What a wonderful love! It doesnt end here.
Tarheel_Dem
(31,222 posts)NurseJackie
(42,862 posts)sagetea
(1,366 posts)Little Star a virtual blanket, wrapping it around her shoulders. And you a virtual shawl. I hope you both feel the warmth.
Thank her for me, for her wisdom, for the life she's lead.
Aho`
sage
PatrickforO
(14,559 posts)be blessed with the love you've always shared. It is good that when your mom's time comes she will be there, at home, with one (or more) of her beloved daughters by her side. That is a wonderful thing.
still_one
(92,061 posts)KitSileya
(4,035 posts)I lost my sister to cancer at the beginning of March. My parents and I alternated staying with her since her diagnosis almost three years ago, and she spent the last 5 weeks at a hospice. I am so glad we could sit by her bed those last weeks - we alternated shifts, as it were (my parents are retired, and I work for the government, so had the opportunity to get family leave.) My parents sat with her when she passed away peacefully, and thanks to the hospice staff, she had continuous care and continuous painkillers (pancreatic cancer is a f¤&%ing horribly painful cancer) so that it was peaceful. We just managed to hold her funeral before the country went on lock down, and I am so infinitely grateful for that too. My heart bleeds for those who are dying alone these days, and their families who must grieve alone.
I cannot imagine how difficult it must be for you, but you have my thoughts, prayers, positive vibes and anything else you want.
Peacetrain
(22,872 posts)Greybnk48
(10,162 posts)I remember you from the Bush v Kerry election when I joined in 2004! What a crazy 15+ years it's been! Love to you too, Boston Bean! And good for you for being such a good child.
Go gently Little Star, and I'll see you on the other side!