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ronatchig

(575 posts)
Mon Oct 5, 2020, 08:28 PM Oct 2020

I have a personal story that I need to tell.

In 2015 ,the Drs. found a brain tumor. They put me on dexamethasone to control brain swelling and to reduce fluid pressure in my head. This led to a psychotic break on my part. The doctor reduced the dosage by 2/3. This relieved my mental turmoil.
This occurred in the cancer ctr.a t Wake Baptist
and the head of oncology dept. visited me daily with his bevy of ducklings. He told me he had researched the use of this drug in older patients and had found that my reaction was quite common and that the older the patient the greater the risk of psychosis
I was saved by surgery and the tumor turned out benign . I went through 8 mos. of rehab to learn to walk again but the worst of the post surgery was the steroid. I was on it for 3.5 mo.and it was harder to kick than cocaine. Every time I got to zero mg. my Brain would swell and back on it I would go. It was terrible!.

The moral of this story is that any one on this drug is unfit to work imho.
Also I m finally thru that episode and am eternally thankful for the life that the surgeon and his staff along with the rehab workers gave
me the chance to live.
YOU ROCK Dr. Laxton.

43 replies = new reply since forum marked as read
Highlight: NoneDon't highlight anything 5 newestHighlight 5 most recent replies
I have a personal story that I need to tell. (Original Post) ronatchig Oct 2020 OP
I'm glad you're OK. Solly Mack Oct 2020 #1
Thanks for the personal experience! Karadeniz Oct 2020 #2
Thank you for this information MaryMagdaline Oct 2020 #3
Thanks for sharing your story. Glad you made it! n/t livetohike Oct 2020 #4
Thank you for sharing this with us and so glad it was benign and you're doing well octoberlib Oct 2020 #5
What an ordeal. BeckyDem Oct 2020 #6
Congratulations on your recovery!! That's great. Maraya1969 Oct 2020 #7
Glad you made a recovery. Wellstone ruled Oct 2020 #8
Important info from someone with first hand experience . . . thank you! . . . OneBlueSky Oct 2020 #9
Wow, what an experience! mcar Oct 2020 #10
I cannot imagine having to go through that. Dem2theMax Oct 2020 #11
Thank you for sharing Demovictory9 Oct 2020 #12
Thank you for your story. 58Sunliner Oct 2020 #13
Glad you made it thru the ordeal. TruckFump Oct 2020 #14
Sure helps to have a knowledgeable & trusted doctor. You have really been through a lot! Illumination Oct 2020 #15
Congratulations mgardener Oct 2020 #16
Thanks for sharing your story! Happy you're doing well. RestoreAmerica2020 Oct 2020 #17
So glad that you came through that ordeal. volstork Oct 2020 #18
You mean Wake Forest Baptist Hospital in Winston Salem? ms liberty Oct 2020 #19
Congratulations on your recovery! gademocrat7 Oct 2020 #20
Glad you survived, thanks for info. Nt marlakay Oct 2020 #21
Hey, are you in Winston-Salem? nolabear Oct 2020 #22
I'm west of W/S by an hour or so. ronatchig Oct 2020 #30
So in the mountains? I lived in NC for years and in-laws are all there. nolabear Oct 2020 #34
Outside of Hickory, it makes it ronatchig Oct 2020 #42
Oh I know Hickory. Beautiful area! nolabear Oct 2020 #43
Thanks for the story, ronatchig. I'm so glad you're here to tell it. Kind of Blue Oct 2020 #23
Thank you for sharing your story! What a wonderful blessing! Aviation91 Oct 2020 #24
Thanks for the firsthand report Kitchari Oct 2020 #25
YOU ROCK, ronatchig Skittles Oct 2020 #26
Wow.. that's quite a harrowing journey Cha Oct 2020 #27
Thank you for sharing your experience with us. So glad that you are okay now. niyad Oct 2020 #28
Thanks folks for the good vibes, n/t ronatchig Oct 2020 #29
Prednisone? Maxheader Oct 2020 #31
This is useful info. Instructive. calimary Oct 2020 #32
Thanks for sharing your story. ohtransplant Oct 2020 #33
Thank you for sharing. Trump is already psychotic/psychopathic though. lagomorph777 Oct 2020 #35
The potential for very negative effects is real. Texin Oct 2020 #36
You rock malaise Oct 2020 #37
Thank you for sharing your story, ronatchig. crickets Oct 2020 #38
Great to know you came through True Blue American Oct 2020 #40
You're so right. Bozvotros Oct 2020 #39
Trump just announced he was cancelling negotiations for the virus relief True Blue American Oct 2020 #41

MaryMagdaline

(6,853 posts)
3. Thank you for this information
Mon Oct 5, 2020, 08:30 PM
Oct 2020

The more people who share their medical history, the more we learn what’s going on.

Maraya1969

(22,474 posts)
7. Congratulations on your recovery!! That's great.
Mon Oct 5, 2020, 08:33 PM
Oct 2020

I've been on steroids several times in the last year for asthma. Doctors are very cautious with these drugs. You don't want to be on them but they can also be a life saver.

 

Wellstone ruled

(34,661 posts)
8. Glad you made a recovery.
Mon Oct 5, 2020, 08:54 PM
Oct 2020

My SIL had a similiar side effects from dex. And yes she had one hell of a time,mostly Sleep Walking and total delirium. Caught her walking down her country road at 3 am not aware of where she was,this happened twice in three days . Her dosage was changed after the second event.

Unfortunately she past about a month after this happened. The Tumor enlarged with in days causing her body to just collapse all functions.

OneBlueSky

(18,536 posts)
9. Important info from someone with first hand experience . . . thank you! . . .
Mon Oct 5, 2020, 09:06 PM
Oct 2020

and I'm so glad you came through what must have been a frightful time . . .

Dem2theMax

(9,650 posts)
11. I cannot imagine having to go through that.
Mon Oct 5, 2020, 09:46 PM
Oct 2020

I am so glad you are okay. And thank you for sharing a very personal experience with us.

 

Illumination

(2,458 posts)
15. Sure helps to have a knowledgeable & trusted doctor. You have really been through a lot!
Mon Oct 5, 2020, 09:54 PM
Oct 2020

Glad you're here with us @ DU ronatchig!

mgardener

(1,814 posts)
16. Congratulations
Mon Oct 5, 2020, 09:55 PM
Oct 2020

I am so glad you are doing better.
Thanks for sharing your story.
Steroids are nothing to joke about or take lightly.
Trump went to the WH which has a MD and fully functioning medical unit.
He did not go to NY or Florida.

ms liberty

(8,572 posts)
19. You mean Wake Forest Baptist Hospital in Winston Salem?
Mon Oct 5, 2020, 10:27 PM
Oct 2020

Great hospital. I have a friend who was there around that time with leukemia, and had to have 2 bone marrow transplants before he was cured, and it took a couple of years, if my memory is correct. My sister was there after a heart attack a few years ago, too. I'm only about an hour west of Winston, so Baptist is the closest large teaching hospital.

nolabear

(41,959 posts)
22. Hey, are you in Winston-Salem?
Mon Oct 5, 2020, 10:32 PM
Oct 2020

If it’s that Wake Forest Baptist I know docs at that hospital! Surgery though, not oncology.

Edit to say glad you got through what sounds like a dreadful time!

ronatchig

(575 posts)
30. I'm west of W/S by an hour or so.
Tue Oct 6, 2020, 07:05 AM
Oct 2020

And Dr.Laxton is head of neurosurgery who specializes in meningiomas.

Cha

(297,058 posts)
27. Wow.. that's quite a harrowing journey
Tue Oct 6, 2020, 01:43 AM
Oct 2020

you had and you wrote it so interestingly.. Thank you for sharing it with us, ronatchig

calimary

(81,192 posts)
32. This is useful info. Instructive.
Tue Oct 6, 2020, 08:47 AM
Oct 2020

But what I liked best was your description of the head of oncology being followed around by his “bevy of ducklings”.

I love that word picture! I can just see it!

ohtransplant

(1,488 posts)
33. Thanks for sharing your story.
Tue Oct 6, 2020, 09:28 AM
Oct 2020

Good to meet a fellow brain tumor survivor.

You're absolutely right about these medications. They ain't beanbag and that's not to mention the cocktail he's taking. There's not much known about that.

Reach out any time you like.

YOU ROCK!!! ronatchig.

lagomorph777

(30,613 posts)
35. Thank you for sharing. Trump is already psychotic/psychopathic though.
Tue Oct 6, 2020, 11:00 AM
Oct 2020

It's not that easy to tell whether he's getting even worse.

I'm glad you pulled though. I hope the rest of us will.

Texin

(2,594 posts)
36. The potential for very negative effects is real.
Tue Oct 6, 2020, 11:14 AM
Oct 2020

Cheetolini is feeling pretty good right now, and so long as he's on this steroidal treatment he will fee okay, but unless his underlying infection is resolved - and I would be hard-pressed to believe that this early in his infection it is - his condition can deteriorate. I'm not familiar with how they treated Herman Cain, whether he was on dexamethasone or not, but tRump is in real danger of having a very serious relapse of symptoms. And it was very obvious to me last evening with his Megalomaniac on a Balcony moment, that he was having a hard time pulling oxygen into his respiratory system. His mask was sucking back into his nose and mouth quite obviously. He whipped that mask off as much to make him feel like he could breathe easier than it was in defiance of face coverings.

This idiot is NOT out of the woods by a long shot. And, frankly, if I were Joe Biden, I would no more get onstage with this irresponsible idiot for a debate that I'd volunteer for a moon shot through a cannon. I just hope Dr. Jill physically intervenes to prevent Joe from doing it.

crickets

(25,959 posts)
38. Thank you for sharing your story, ronatchig.
Tue Oct 6, 2020, 12:00 PM
Oct 2020

I am so glad that you recovered, and that you're here at DU. 🌻

True Blue American

(17,982 posts)
40. Great to know you came through
Tue Oct 6, 2020, 03:29 PM
Oct 2020

And are now good. I can relate to relearning to walk. A week in a coma when I was 15 caused me to do the same.

Bozvotros

(785 posts)
39. You're so right.
Tue Oct 6, 2020, 03:14 PM
Oct 2020

Last year I caught a rare auto immune disorder that required me to take large injections of methylprednisolone. It didn't work on my condition but I hallucinated wildly for several sleepless days and nights. The perceptions I had were terrifying, sinister and bizarre. Thankfully my early substance abuse training kicked in and I was able to navigate my way through them.

I bet the ochre ogre wasn't so prepared and fell right into the Ninth Gate. Which is just as well. He was going there anyways.

True Blue American

(17,982 posts)
41. Trump just announced he was cancelling negotiations for the virus relief
Tue Oct 6, 2020, 03:31 PM
Oct 2020

Until after his re- election, then he would pass a big bill!

Tell me Trump is not delusional?

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