General Discussion
Related: Editorials & Other Articles, Issue Forums, Alliance Forums, Region ForumsI'm having bariatric surgery next week and trying to prevent from becoming homeless.
My health condition started with a rare lung disease called Pulmonary Langerhans Cell Histiocytosis. Cysts filled my lungs, I was on oxygen, and didn't have the lung function to be able to move much. I gained a lot of weight and now I have been diagnosed with Lipedema. Lipedema is a painful fat disorder. It's not really my fault I am like this. I am explaining this because someone from DU who I will not call out here.. posted on my facebook that I should get a job and stop begging for money. I thought I do owe people a more detailed explanation of what is going on in my life, no matter how embarrassing it is.
I'm having Duodenal Switch Procedures - SADI-S surgery a week from today on 7/21/22. I'm 7 days into my fat free milk diet. I can having nothing but fat-free milk for 14 days to shrink my liver for a safer surgery. Because I also have Lipedema, there will have to be more surgeries in the future to get rid of the remaining painful fat.
On top of the health issues, being on the brink of homelessness, my son who just lost his step father, Tommy has been disowned by his bio dad and bio family. Tommy came into my life when my son was 4, Tommy was his dad, they were close. My son is gay. It's not a big deal to me and wasn't to Tommy but his bio father is Egyptian and Muslim. My son's father snooped in his laptop while my son was visiting him. That whole side of the family instantly disowned him. He is devastated. We're going through a lot. I thought I needed to explain more of what is happening after getting told to get job and stop begging. I promise you, this is not easy. I don't want to ask. It's a lot easier to try and deal with this now than later if I have an eviction on my record. If you have a little extra, please help me. I do genuinely appreciate all the help I get.
P.S please forgive my grammar. I'm not a good writer.
This is my gofundme or Paypal to avoid fees. mary.wheeler055@gmail.com
https://www.gofundme.com/f/rent-and-bills-for-the-next-3-months
Joinfortmill
(14,378 posts)BlueLucy
(1,609 posts)I appreciate prayers. All the prayers I can get are welcomed.
XanaDUer2
(10,489 posts)I have homelessness fears too. But I'm so sorry you're going through this. I wish you health.
BlueLucy
(1,609 posts)I appreciate your caring heart.
XanaDUer2
(10,489 posts)Elessar Zappa
(13,896 posts)I can kick in then. Sending you good vibes in the meantime!
BlueLucy
(1,609 posts)I really need good vibes and appreciate all the good vibes sent my way I can get.
Samrob
(4,298 posts)I did what I could.
BlueLucy
(1,609 posts)You have helped a lot!
ProfessorGAC
(64,827 posts)And, i hope you have a speedy recovery.
BlueLucy
(1,609 posts)XanaDUer2
(10,489 posts)BlueLucy
(1,609 posts)BlueLucy
(1,609 posts)mvd
(65,156 posts)I know how it can feel embarrassing, but there are many caring people here. Dont worry. K&R
Yes! There are a lot of caring people here. Just when I nearly lose faith in humanity DU comes through.
mvd
(65,156 posts)I really wish I could donate. I will kick the thread from time to time.
My mom is in a similar situation with a foreclosure. Her lawyer, who is expensive to keep, can help for a while. But the time will come when she has to move. And she would be better off moving when she can find a place. I am also autistic, so we have some similarities in our stories.
BlueLucy
(1,609 posts)Thank you for sharing that. It helps to know we're not alone. v
mvd
(65,156 posts)I really hope our lives improve soon.
yardwork
(61,533 posts)Kick for visibility.
Hekate
(90,538 posts)You deserve so much more from this life.
BlueLucy
(1,609 posts)I hope so too. Honestly, if it wasn't for my son and my grandson who I know love and need me...I wouldn't keep trying. Lucky for me, they do love me and need me.
nolabear
(41,930 posts)Im curious (and you dont have to share. Ill understand) about what you were told about gastric bypass and lipedema. It wont address the problem, though I know there may be other non-lipedema weight to shed. It is debilitating and painful for sure. Im trying to figure out whether to have the liposuction procedures. Insurance often doesnt cover it.
This may well not be a suitable GD discussion but I thought Id mention that youre not alone. I assume you know about Lipedema Simplified and all the recommendations?
BlueLucy
(1,609 posts)I was told that I would lose weight with this surgery but not anywhere near as much as someone who doesn't have it. I would need liposuction after. UnitedHealthCare was sued in a class action lawsuit for not covering liposuction for lipedema and lost. I don't know about Lipedema Simplified, I was just diagnosed in April. I found a DR. at OHSU who told me how to go about doing everything to get UnitedHealthCare to pay. I have UnitedHealthCare with my medicare advantage.
https://coverlipedema.com/your-insurance/united-healthcare/
nolabear
(41,930 posts)Yes, check out the Lipedema Simplified website. And Dr. Karen Herbst. Shes one of the best in the field, not with liposuction but with everything having to do with the condition itself. As with most things theres a lot of stuff out there, some of which I believe in more than others, but its at least getting some research and potential treatment studies.
BlueLucy
(1,609 posts)Thank you for this! I'm going to be reading here all night! I wish I had known sooner. Thank you! https://lipedema-simplified.org/
nolabear
(41,930 posts)BlueLucy
(1,609 posts)If you send me your e-mail, I am happy to share pictures. It's very painful for me.
nolabear
(41,930 posts)Frankly I dont go on them much any more. You can find some helpful advice but theres a lot of diagnosing en absentia too and varying recommendations that I think are better from a professional. But you do get a good idea whats out there re compression, MLD, surgery, etc.
BlueLucy
(1,609 posts)I look like a classic case. Thank you again,
FakeNoose
(32,556 posts)I can't believe all this is happening to you at the same time. What a challenging situation!
I hope you live in a state or county where there are social services to help you. Some states are helping with rent back-payments, others have medical and prescriptions covered. For sure, you should not be evicted now that you are facing surgery and urgent medical issues. The fact that your son is gay should not matter one iota.
I want to donate however I'm retired and living on a fixed income, so things are tight right now. I'll be happy to help you next month. Also I'm glad that other DUers are able to help right now.
Please ask around about state and county social services. If you don't know, it's OK, Post something here on DU and I promise you SOMEBODY here will be able to tell you where to get help in your area.
Good luck dear.
BlueLucy
(1,609 posts)I live in Cowlitz County in Washington State. I moved here two years ago from Portland OR. I did apply for rent help here at Lower Columbia Cap which is the only place that does rent assistance here. I was denied because it was not COVID related (This is a RED area). I know it would not have been this difficult if I still lived in Portland. Also, there is a 2 month waitlist now even for COVID related.
My son being gay doesn't matter to me at all. It's just that he lost his dad who raised him in home day to day and now his bio father has rejected him, disowned him. The way he did so was incredibly cruel.
I appreciate your hugs and kind words.
FakeNoose
(32,556 posts)I hope you get some replies. Be sure to check there later on, because they might not message you directly. They will more likely reply to the thread. Good luck!
BlueLucy
(1,609 posts)I'm tearing up right now. Your help is so appreciated.
sheshe2
(83,637 posts)BlueLucy
(1,609 posts)I could use all the healing vibes I can get.
Cha
(296,780 posts)find it.. finally had time to Goodgle it.. it's my best Love & Healing Vives to you Blue Lucy! 💙
Focus!
Please Fight to Save Our Democracy💙 in 2022 & 2024!
Thank you! Healing vibes are needed and welcomed.
Cha
(296,780 posts)Focus!
Please Fight to Save Our Democracy💙 in 2022 & 2024!
and good luck. I chipped in a little.
BlueLucy
(1,609 posts)I'm very grateful. Peace and love to you.
BlueLucy
(1,609 posts)I'm on my way to Vancouver for my pre-op appointment. I will be gone for a couple of hours but wanted to stop here and Thank everyone who donated and also those who prayed or sent healing vibes. I'm thankful, grateful and feel loved by everyone here. Thank you all so very much!
Mary Lucy
XanaDUer2
(10,489 posts)BlueLucy
(1,609 posts)Loryn
(942 posts)May you have a speedy, pain & stress free recovery.
BlueLucy
(1,609 posts)I will post updates. I appreciate your help very much!
mvd
(65,156 posts)Thank ou so much for helping me keep this alive. I have been able to get sleep knowing I will have August rent now. Thank you!
XanaDUer2
(10,489 posts)LetMyPeopleVote
(144,890 posts)BlackSkimmer
(51,308 posts)Did you ever look into that?
BlueLucy
(1,609 posts)The person lives in Canada.
Thtwudbeme
(7,737 posts)further away than he thought.
It was an incredibly generous offer, and I am pretty sure that he would not want to see that referred to as "a joke."
BlueLucy
(1,609 posts)I really did not think it was real. It was a very generous offer. I am very appreciative and grateful for all the help I get.
tblue37
(65,215 posts)Omaha Steve
(99,488 posts)BlueLucy
(1,609 posts)I've been able to sleep well these last few nights Thanks to folks here like you. The stress of the surgery, only because of my lung disease coupled with it and then finances, everything else. I was able to get some rest. Thank you! Peace and much love!
Mary Lucy.
mvd
(65,156 posts)I appreciate the support when I start a fundraiser and want to give back.
BlueLucy
(1,609 posts)tanyev
(42,514 posts)mvd
(65,156 posts)Omaha Steve
(99,488 posts)mvd
(65,156 posts)I can see it using the Safari browser. Maybe a browser issue again?
Omaha Steve
(99,488 posts)Omaha Steve
(99,488 posts)BlueLucy
(1,609 posts)My surgery is coming up on Thursday and I honestly would have had to have it postponed if not for the help of all of you. I am humbled and grateful.
demtenjeep
(31,997 posts)how are you feeling?
demtenjeep
(31,997 posts)asking a 2nd time
Baggies
(503 posts)mvd
(65,156 posts)Will give another kick.
Omaha Steve
(99,488 posts)mvd
(65,156 posts)So happy DUers came through again
Rhiannon12866
(204,691 posts)demtenjeep
(31,997 posts)please give us an update
BlueLucy
(1,609 posts)I've been in such pain, I have not been able to come online or even think. I was dealing with an infection as well of the surgery. This surgery is not as easy to do as some say. Maybe, I have a low tolerance for pain or maybe the infection prevented me from healing. Today is the first day that I feel like I am finally on the other side of this. I've been really weak, unable to drink any protein drinks or even much water. I've had to have several IV infusions this week but finally, yesterday... I drank 2 Premier protein drinks and three 16 oz bottles of propel water.
Samrob
(4,298 posts)top wound centers across the country. Made by the makers of Ensure. Check it out.
I have use it for serious bed sores and wounds for my mom as prescribed by Adventist Wound Center in MD.
BlueLucy
(1,609 posts)It sounds wonderful but expensive. I'll look into it more.
demtenjeep
(31,997 posts)we didn't get any updates and I got worried.
BlueLucy
(1,609 posts)I had to go to the ED last night for a IV infusion but I am OK.. I feel like I am now on the other side of this and recovering. I can't wait til next week when I can have something other than protein drinks and water or propel or Gatorade zero. Next week I will be able to add yogurt, pureed beans... That sort of thing.
Sky Jewels
(7,008 posts)It's a pox on the planet.
I'm so sorry about all your hardships and that your son's bio father did that to him.
BlueLucy
(1,609 posts)It's really hard. My husband who was my son's stepdad since he was 4 passed away. They were very close. Now, his bio father doing that to him. My son has been expressing fits of rage, I know what is causing it and he is in counseling but it's not easy to witness.
Sky Jewels
(7,008 posts)I wish you and your son strength and healing.
mvd
(65,156 posts)I am hoping things get better. Were alike in the adversity we face. And being autistic makes things even harder.