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orangecrush

(30,261 posts)
Tue Feb 6, 2024, 08:19 PM Feb 2024

Nasty surprise from Medicare today

During last year's "window" (from October through November) to change prescription coverage, I got a letter from Medicare, saying in effect "We are moving you from prescription plan bla bla bla to plan bla bla blah.
If you disagree with this decision, you must file for another plan before the window ends".

I think they said something along the lines of "shouldn't change your coverage".

Today I needed three prescriptions. One was low dose Taladifil (Cialis) for prostate flow.

The pharmacist informed me my copay for the Taladifil alone was over $500, and the other two (an antibiotic and nasal steroid for post COVID) were almost $50.

I never paid more than $20 for multiple prescriptions before this with the old plan, the copay for the Cialis was a little over $2.

How the fuck did they get away with this?

Now I am fucked until next October at least.

I hope I don't get seriously sick.



62 replies = new reply since forum marked as read
Highlight: NoneDon't highlight anything 5 newestHighlight 5 most recent replies
Nasty surprise from Medicare today (Original Post) orangecrush Feb 2024 OP
bummer. riversedge Feb 2024 #1
Call them asap. Protest that you were mislead and can't afford it. brush Feb 2024 #2
Will do orangecrush Feb 2024 #6
Try using Singlecare or Good RX lynintenn Feb 2024 #3
Good Rx orangecrush Feb 2024 #9
My pharmacy Rebl2 Feb 2024 #60
Isn't Cialis one of the drugs that Medicare is now negotiating the spooky3 Feb 2024 #4
I don't know but orangecrush Feb 2024 #11
My friend has to get some of their meds pre-approved Marthe48 Feb 2024 #28
Since they are willing to play with changing prices - Ms. Toad Feb 2024 #30
This message was self-deleted by its author brush Feb 2024 #24
Not this year. n/t Ms. Toad Feb 2024 #26
I thought you can change Rx coverage anytime. FloridaBlues Feb 2024 #5
Apparently not orangecrush Feb 2024 #12
Seems Variable ProfessorGAC Feb 2024 #20
Once a year (Oct through Dec for the following year). n/t Ms. Toad Feb 2024 #27
DH gets Taladfil via GoodRx for about $13/month Freddie Feb 2024 #7
I'll look into it orangecrush Feb 2024 #15
Strongly recommend GoodRx -- $13 for 90 days unc70 Feb 2024 #34
I run most of my moonscape Feb 2024 #61
Do you know for certain that you have drug insurance, and brer cat Feb 2024 #8
Medicare changed my drug plan orangecrush Feb 2024 #17
That is really strange. I have never heard of Medicare making a change brer cat Feb 2024 #22
Do you have advantage or regular medicare Demsrule86 Feb 2024 #23
Regular orangecrush Feb 2024 #37
You might want to check Costco, we're generic prices are quite good on RXs. Try GoodRx to get an JohnSJ Feb 2024 #10
You can change plans at other times but only if you meet certain criteria Doc Sportello Feb 2024 #13
That is horrifying... limbicnuminousity Feb 2024 #14
They did orangecrush Feb 2024 #18
I'm guessing the plan OC was on was discontinued, Ms. Toad Feb 2024 #29
Thank you! limbicnuminousity Feb 2024 #36
I'm sure medical marijuana won't be covered until the law changes. Ms. Toad Feb 2024 #38
This happened to us and we missed the deadline for no fault of our own MagickMuffin Feb 2024 #16
Thank you! orangecrush Feb 2024 #19
I started receiving letters after the reply-by date limbicnuminousity Feb 2024 #31
Fortunately, my pharmacy Publix XanaDUer2 Feb 2024 #21
Ouch! Ms. Toad Feb 2024 #25
I am calling Bob Casey tomorrow orangecrush Feb 2024 #39
I now take several meds xmas74 Feb 2024 #47
It definitely pays to shop around. Ms. Toad Feb 2024 #50
I send my Medicare patients to that site often xmas74 Feb 2024 #56
This isn't anything really, but my high blood pressure and ulcer meds copays were $6.00 a kennedy Feb 2024 #32
This entire thread is scary. PoindexterOglethorpe Feb 2024 #33
Your Part D insurance is rolled into your MA plan, Ms. Toad Feb 2024 #42
Medicare is too damn confusing. IcyPeas Feb 2024 #35
Agreed. Ms. Toad Feb 2024 #41
Another possibility might be area51 Feb 2024 #40
Just for grins I looked up all of the plans in my area. Ms. Toad Feb 2024 #43
Those prices seem way way way off Tribetime Feb 2024 #44
I agree orangecrush Feb 2024 #49
Message auto-removed Name removed Feb 2024 #45
Try cost plus drugs. xmas74 Feb 2024 #46
Thank you! orangecrush Feb 2024 #48
Try GoodRx have had some luck with it (when insurance was fighting over drug choice of the doctor) JT45242 Feb 2024 #51
That sucks PJMcK Feb 2024 #52
Get your script filled ivy a Canadian pharmacy Squaredeal Feb 2024 #53
Part D is a horrible Republican mess. Voltaire2 Feb 2024 #54
HEADS UP: You said Medicare. If you (and anyone else) is on a Medicare Advantage Plan... B.See Feb 2024 #55
If you switch to MA from moonscape Feb 2024 #62
Medicare itself snowybirdie Feb 2024 #57
Thanks orangecrush Feb 2024 #58
I got a similar shock last week csziggy Feb 2024 #59
 

brush

(61,033 posts)
2. Call them asap. Protest that you were mislead and can't afford it.
Tue Feb 6, 2024, 08:24 PM
Feb 2024

Have you previous payment amounts handy to show them the outrageous price gouging. Lay it on thick...to a supervisor if you have to.

Rebl2

(17,743 posts)
60. My pharmacy
Wed Feb 7, 2024, 12:29 PM
Feb 2024

has something similar. Our county has a Rx card that can be used by pharmacy to reduce cost of a prescription.

spooky3

(38,634 posts)
4. Isn't Cialis one of the drugs that Medicare is now negotiating the
Tue Feb 6, 2024, 08:25 PM
Feb 2024

price of? I don’t know how quickly any results will be implemented.

orangecrush

(30,261 posts)
11. I don't know but
Tue Feb 6, 2024, 08:30 PM
Feb 2024


It was prescribed for me for flow, not as a boner pill.

The pharmacy said they were sending it back to the Doctor for pre-approval, whatever that means.

Marthe48

(23,175 posts)
28. My friend has to get some of their meds pre-approved
Tue Feb 6, 2024, 08:47 PM
Feb 2024

I think it means the doctor lets Medicare know that my friend has a medical need for it. It is expensive and they'll have to have it for life. The pre-approval gets it paid for a fraction of the cost.

Good luck

Ms. Toad

(38,643 posts)
30. Since they are willing to play with changing prices -
Tue Feb 6, 2024, 08:54 PM
Feb 2024

Go to GoodRx.com and print the coupon for the quantity and frequency of the meds and see if they will re-ring it using that price. It shouldn't be much more than $25.

They often fill ours under insurance and then re-ring it when we show up using the coupon. We haven't walked out of the store with the meds - but since they are willing to think about a price change via the doctor, they might process a GoodRx price change.

Response to spooky3 (Reply #4)

ProfessorGAC

(76,706 posts)
20. Seems Variable
Tue Feb 6, 2024, 08:35 PM
Feb 2024

I searched "can you change part D plans at any time".
The first three things that popped up were:

The good news is most people with Part D are allowed to switch plans once a year, during the Open Enrollment/Annual Election Period (Oct. 15 – Dec. 7).
Nov 8, 2023
How To Change Medicare Part D Plans - National Council on Aging

The National Council on Aging
You can switch Part D plans as much as once per calendar quarter during the first three quarters of the year.
Feb 17, 2022
When Can I Join or Switch a Part D Prescription Drug Plan? - AARP

AARP
If you find a Medicare 5-star rated plan, you can change your Part D at anytime of the year to the 5-star plan*

Not exactly straightforward.

Freddie

(10,104 posts)
7. DH gets Taladfil via GoodRx for about $13/month
Tue Feb 6, 2024, 08:27 PM
Feb 2024

It’s not covered on our Part D either but it’s a cheap generic

orangecrush

(30,261 posts)
15. I'll look into it
Tue Feb 6, 2024, 08:31 PM
Feb 2024


It really does a better job than flowmax, and helped lower my blood pressure.

moonscape

(5,725 posts)
61. I run most of my
Wed Feb 7, 2024, 12:39 PM
Feb 2024

meds through goodrx and rxsaver to see which is cheaper. About 25% of the time the cost is lower than through my Part D coverage. If it’s close, I run through insurance so get it applied against my deductible.

The process we have to go through is shameful and not all Seniors can manage it (understatement.)

brer cat

(27,588 posts)
8. Do you know for certain that you have drug insurance, and
Tue Feb 6, 2024, 08:27 PM
Feb 2024

that it was applied by the pharmacy? I got a huge co-pay last year and when I questioned it, they found that my insurance had not been applied. From $2 to $500 has to be a mistake!

orangecrush

(30,261 posts)
17. Medicare changed my drug plan
Tue Feb 6, 2024, 08:33 PM
Feb 2024


Without telling me my present running prescription would no longer be covered, and copays for everything else would go up drastically.

brer cat

(27,588 posts)
22. That is really strange. I have never heard of Medicare making a change
Tue Feb 6, 2024, 08:40 PM
Feb 2024

without the person requesting it. Wonder if it was some kind of system glitch?

 

JohnSJ

(98,883 posts)
10. You might want to check Costco, we're generic prices are quite good on RXs. Try GoodRx to get an
Tue Feb 6, 2024, 08:28 PM
Feb 2024

idea of prices at different pharmacies without insurance. You might find prices at good Rx cheaper than what insurance prices are.


limbicnuminousity

(1,416 posts)
14. That is horrifying...
Tue Feb 6, 2024, 08:31 PM
Feb 2024

Am I understanding correctly that they can arbitrarily change your prescription coverage without needing prior authorization from you?

Being pushed into Medicare in the next month or so and dreading it. Now, more-so.

Ms. Toad

(38,643 posts)
29. I'm guessing the plan OC was on was discontinued,
Tue Feb 6, 2024, 08:51 PM
Feb 2024

So they enrolled OC in a substitute - which is (at least in theory) better than just dropping coverage.

Medicare is the best health care plan I've ever had - had I had enough time to think and compare I probably would have put my spouse on it when she turned 65, rather than keeping her on my plan until she was 70. Get on original Medicare and a Medigap plan (a one and done choice) and pick the best drug plan you can for the drugs you are currently on. Medicare has a basic app to help you (my parents rely on that). I build a spreadsheet, because we have enough oddball prescriptions that I want to price-shop with GoodRx or Costco prices included. It's an investment of a few hours every year to check to make sure the prices haven't changed. We've made one change in 3 years (total of 6 person-years since there are two of us).

limbicnuminousity

(1,416 posts)
36. Thank you!
Tue Feb 6, 2024, 09:01 PM
Feb 2024

People generally have wonderful things to say about Medicare. It's daunting not knowing exactly what to expect and stories like OC's induce a bit of anxiety. It sounds like Medicare is fine but the bureaucracy sometimes throws a wrench in things?

Now, when will the prescription plans cover medical marijuana? Opiods for chronic pain management are such a lousy option.

Ms. Toad

(38,643 posts)
38. I'm sure medical marijuana won't be covered until the law changes.
Tue Feb 6, 2024, 09:12 PM
Feb 2024

The federal government isn't likely to pay for something it classifies the same as LSD, etc.

Check with your state SHIIP. They are wonderful in Ohio - and I've heard good things about them in every other state where I've talked with anyone who has used them. In Ohio they provided comparison information about the Medigap providers - both COLA adjustments and age-based increases for 3 or 5 years. So you can get a sense of who is likely to end up bieng more expensive over time.

MagickMuffin

(18,318 posts)
16. This happened to us and we missed the deadline for no fault of our own
Tue Feb 6, 2024, 08:32 PM
Feb 2024


Called them up, explained what happened and that I wanted to change providers because the one I had wanted to start charging me monthly. Found a better deal. They helped me without any issues.


Good luck!

limbicnuminousity

(1,416 posts)
31. I started receiving letters after the reply-by date
Tue Feb 6, 2024, 08:54 PM
Feb 2024

from Social Security. The paranoid part of my brain says this is part of the chaos inflicted by DeJoy and is intentionally screwing people with policy changes. Nearly got dinged with an unexpected $600 insurance premium for that very reason.

XanaDUer2

(15,772 posts)
21. Fortunately, my pharmacy Publix
Tue Feb 6, 2024, 08:37 PM
Feb 2024

Is excellent and run GoodRX and other discount cards to get you the lowest price. They do this automatically.

Ms. Toad

(38,643 posts)
25. Ouch!
Tue Feb 6, 2024, 08:44 PM
Feb 2024

The massive charge was probaly your annual deductible (ours is around $500 this year - which my spouse spent on Jardiance). The next bills should be lower.

But - your plan may be heading you toward the donut hole. Look for the total cost (paid by insurance and by you). If it really is that high, consider using GoodRx and/or Costco for prescriptions. (The mail order doesn't require local access to a Costco). Not knowing your precise prescription, it looks like it's about $25 for 30 -30 mg tablets. Costco price is similar.

We buy more than half of our prescriptions through Costco because it is cheaper buying them at Costco retail prices than to use insurance. I wish I had known about that option before I hit Medicare age.

I do a spreadsheet every year in October comparing all plans - and comparing the plan cost to the Costco cost. There's one drug that costs $1400 through some of the insurance plans but only about $50 through Costco. These plans change their formularies about every other year (in my experience). They lure you in with cheaper drugs the first year - then figure you'll stop checking and just stick with them. They also don't assume you will even consider GoodRx or Costco, or other non-insurance options. It is a royal pain, but we save thousands every year.

Seriously - even if you have a plan that is not being discontinued (which seems like what happened here), check your plan every year. We switched one of our plans this year because a different one was cheaper overall (premium + known medical costs).

xmas74

(30,058 posts)
47. I now take several meds
Wed Feb 7, 2024, 03:19 AM
Feb 2024

And have found a few on Cost Plus Drugs even cheaper than my insurance and GoodRx. I looked up the generic Cialis and they offered a 5mg pill, 90 pills, for under $11.

Ms. Toad

(38,643 posts)
50. It definitely pays to shop around.
Wed Feb 7, 2024, 09:34 AM
Feb 2024

One of the Medicare plans in my area charges more than $44,000 for a years supply. I'm shocked at how much price variation there is for this med.

xmas74

(30,058 posts)
56. I send my Medicare patients to that site often
Wed Feb 7, 2024, 11:11 AM
Feb 2024

Especially while we are waiting for a Medicaid QMB approval. It saves them so much while waiting for their approval.

a kennedy

(35,995 posts)
32. This isn't anything really, but my high blood pressure and ulcer meds copays were $6.00
Tue Feb 6, 2024, 08:57 PM
Feb 2024

last year, they now are $15.00 copay. Not breaking me but damn…….

PoindexterOglethorpe

(28,493 posts)
33. This entire thread is scary.
Tue Feb 6, 2024, 08:57 PM
Feb 2024

I'm extremely fortunate, and grateful, that my three prescription medications have no co-pay for me. They used to have some small, maybe five or ten dollar, co-pay, which went away a year or so ago.

I have an Advantage plan, for what it's worth.

Ms. Toad

(38,643 posts)
42. Your Part D insurance is rolled into your MA plan,
Tue Feb 6, 2024, 09:24 PM
Feb 2024

(They can be either separate or combined). If your insurance provider discontinues your plan, you would likely be dumped into a new plan. And even if you just roll over you plan every year, rather than shopping for a new one, your insurance provider can change the details of your drug plan (coinsurance/copay) every year in January. Make sure you're watching the announcement about the next year's change which comes out September-ish.

Ms. Toad

(38,643 posts)
41. Agreed.
Tue Feb 6, 2024, 09:19 PM
Feb 2024

The government needs to produce comprehensive material - aimed at a 5th grade reading/comprehension level. As it is, I've had to rescue two law professors who misread things . . . not to mention that even after spending close to 200 hours researching (both the law and plans) it was only the dumb luck of when my parents conceived me that kept me from being without any medical coverage for the month of January 2022.

Ms. Toad

(38,643 posts)
43. Just for grins I looked up all of the plans in my area.
Wed Feb 7, 2024, 01:01 AM
Feb 2024

Under the 20 plans available to me, the prescription costs for 60 pills (20 mg of Taladifil) range from $132.20/year to $44,782.90/year.

I thought the variation in cost for Potassium Citrate was crazy. It ranged from $65.94/year to $1407.38 - a 21-fold difference. The difference for your drug is 339 times from cheapest to most expensive.

Moral of the story: Every October - early December, make sure you run the drug costs for the drugs you use in the plans in your area!

Response to orangecrush (Original post)

JT45242

(4,043 posts)
51. Try GoodRx have had some luck with it (when insurance was fighting over drug choice of the doctor)
Wed Feb 7, 2024, 09:51 AM
Feb 2024

GoodRx for generics is often better than a lot of these kind of plans.

Have a friend who is self employed and uses ACA coverage that doesn't have great prescription coverage and she uses GoodRx all the time.

PJMcK

(25,048 posts)
52. That sucks
Wed Feb 7, 2024, 09:54 AM
Feb 2024

There’s a mail order pharmacy in North Carolina that sells generic versions of many drugs at deeply discounted prices. It’s called Marley Drugs and I use them for a couple of prescriptions. (I think their biggest business, based on their advertisements, is ED drugs; I’ve seen their ads for generic Taladifil and Sildenafil.)

Good luck!

Voltaire2

(15,377 posts)
54. Part D is a horrible Republican mess.
Wed Feb 7, 2024, 09:59 AM
Feb 2024

It should be scrapped entirely and a prescription benefit should be rolled into standard Medicare (part B for example) with minimal copays. All drug prices should be set by Medicare.

B.See

(8,505 posts)
55. HEADS UP: You said Medicare. If you (and anyone else) is on a Medicare Advantage Plan...
Wed Feb 7, 2024, 10:04 AM
Feb 2024

you can STILL switch from one Medicare Advantage Plan to another as late as March 30th of this year.

And I'm not sure, but you might still be able to enroll in a M.A. plan if you're on regular Medicare. I switched MA plans in first quarter of 2023 when I realized the insurer I'd been with for some time decided to fk me on prescription co-pays at the start of last year.

Best bet, go to medicare.gov. There you can compare plans, prescription coverages for each, out of pocket expenses, and in network providers. You can even chat with someone re. your options.

Good luck.

moonscape

(5,725 posts)
62. If you switch to MA from
Wed Feb 7, 2024, 12:46 PM
Feb 2024

Original Medicare, you’ll never be able to get back on a Medigap plan without underwriting.

I’d recommend anyone on Original Medicare hold on tightly to their plan and not switch . But then, I have medical issues and would have been screwed on MA.

snowybirdie

(6,687 posts)
57. Medicare itself
Wed Feb 7, 2024, 11:21 AM
Feb 2024

Doesn't insure drug prices. You had a separate provider. Call them.
BTW, there's a plan advertised on tv that sells Cialls for .87 cents a pill. Called something like the Friday Plan.

csziggy

(34,189 posts)
59. I got a similar shock last week
Wed Feb 7, 2024, 12:15 PM
Feb 2024

When I was released from the hospital in January, I had four new prescriptions - two are name brand with no generics available. Those two are over $1000 for a ninety day refill.

I hunted online and found discount coupons from the manufacturers giving the first 30 days of each for free - one offered discounts for additional months. But those coupons cannot be used by anyone on a "federal" plan, meaning Medicare.

I'm lucky to be able to afford those medications, but holy shit, that takes a big bite out of my budget. Of course, if they work, I can avoid open heart surgery, which I guess is worth the money. But it pisses me off that as a Medicare user I have fewer rights to a discount than other people.

Edited to add: I checked Goodrx for the medications - for one, I get offered the same discount coupon as I already found but it is restricted to "private subscription insurance" so doesn't apply to Medicare coverage. The other medication - the Goodrx "discount" price is more than I paid to my pharmacy - at my pharmacy!

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