General Discussion
Related: Editorials & Other Articles, Issue Forums, Alliance Forums, Region ForumsVance's 12-Year-Old Relative Denied Heart Transplant due to no covid vaccine
Janeen Deal, who is related by marriage to Vice President JD Vance's half-siblings, said the hospital requires her daughter to receive COVID-19 and flu vaccinations, which Janeen and her husband are unwilling to do
parents should be charged with abuse nd lose custody
https://www.cincinnati.com/story/news/2025/02/11/girl-denied-heart-transplant-cincinnati-childrens/78328436007/
Vinca
(53,934 posts)think even the staunchest anti-vaxxer would be willing to risk it with Covid and flu vaccines.
The parents have drunk the Kool Ade. Nothing gets through to people like this. Nothing
Irish_Dem
(81,119 posts)They are being stubborn over a covid vaccine.
Whatever their pretend issues are about a Covid vax,
they are minor compared to letting the child die.
ananda
(35,079 posts)but it really does look like Trumpers love their hate
and ignorance more than their own lives, or ours.
Irish_Dem
(81,119 posts)Of course these are the same people who think school children being shot to ribbons
as they sit in school is just fine.
karynnj
(60,949 posts)if they appeal they will convince the hospital to add her just because they, against all medical advice, think they are safer unvaccinated.
They don't understand that the heart is a scarce item and the people who "own" it defined what they required for recipients to assure as few are wasted as possible. They see the requirement as park of a culture war and may think Trump could overrule the requirement.
haele
(15,374 posts)She needs her vaccinations to ensure he body can still handle the viral load the flu can hit her with.
Since December, 56 people in our county alone died of influenza type A, including 3 "healthy" unvaccinated teens.
True, our county is larger than about 10 states, but still.
Sanity Claws
(22,408 posts)The child will have to take drugs to suppress her immune system if she get a transplant. It is necessary to prevent the body from rejecting the transplanting organ. She will very susceptible to all kinds of viruses, bacteria, etc. that others would not have a problem with.
Maggiemayhem
(890 posts)Irish_Dem
(81,119 posts)Without the transplant, she dies.
Without the vaccines she is likely to die post surgery.
Unfair to the child and unfair to someone on the waiting list who would follow the
rules defined by medical research.
It will be interesting to see if Trump orders the hospital to do the surgery.
Then the hospital is set up for legal liability when the child dies post surgery.
karynnj
(60,949 posts)so he can't order surgery. I don't even think he can affectively order that the vaccine requirement to be on the waiting list must be eliminated. Even if it were, it would be a factor when determining who on the list is most likely to benefit.
Irish_Dem
(81,119 posts)they may have to consider shutting down the program.
The death rate will be higher, so all the very expensive surgery and post op care
is wasted, and legal liability is higher.
Trump can get what he wants by threatening the hospital, cutting off funding or other tactics.
moonshinegnomie
(4,010 posts)and if a court says no ,he has immunity then ignore the renegade judge just like the GOP wants to do
parents should be arrested for child endangerment.
GoodRaisin
(10,884 posts)12 years old, maybe they should ask the kid? No, magats always seem to think someone else should make their life or death decisions for them.
Cant fix stupid I guess.
LiberalArkie
(19,756 posts)how can they be expected to follow the anti rejection drug requirements. Why should they waste a good heart on someone who will break all the rules and end up loosing a perfectly good heart.
GiqueCee
(4,177 posts)... define themselves by what they hate, rather than what or who they love.
My younger stepson married into a tribe like that. They're beyond logic or reason, and cling desperately to rigid right-wing dogma that is nothing but easily disproven lies. But that would require them to allow new information that would contradict what they've been told to believe to enter their petrified brainpans. Ain't gonna happen. So sad.
I pity the child. The law should step in and save the girl's life. The parents are unworthy.
marble falls
(71,842 posts)... ""I thought, wow. So, it's not about the kid. It's not about saving her life," Janeen (the mom) told The Enquirer."
So mom, the same is what I think about you. You're using this child and her condition to further your own political and "religious" agendas. I use religious litely.
JI7
(93,561 posts)Because after a transplant, someone must take anti rejection medication for the rest of their lives
Emile
(42,173 posts)Response to moonshinegnomie (Original post)
Post removed
hatrack
(64,828 posts)And so you don't get sicker than you already will be post-op, and in doing so, lengthen the odds against your survival.
Renew Deal
(85,096 posts)hatrack
(64,828 posts)Good enough?
Irish_Dem
(81,119 posts)If you are just going to end up being dead from the flu after the surgery.
Renew Deal
(85,096 posts)But not vaccinating the kid is certainly not a responsible choice. I think we mostly agree.
Irish_Dem
(81,119 posts)I have worked with heart transplant patients and they are extremely fragile and
susceptible to severe consequences with even a minor illness.
The surgery is extremely difficult and expensive. What is the point of doing it if the patient
is going to die from the flu. A waste of the heart and life.
spinbaby
(15,387 posts)I have a friend who received a heart transplant over a decade ago. The precautions against infection are unreal. She still masks in public and doesnt eat at buffets.
Marthe48
(23,131 posts)My friend followed health and diet rigorously. When she was getting close to getting a transplant, I thought she'd leave some of that behind her. But my daughter cautioned me that my friend would be trading one set of guidelines for another following the transplant. She was so grateful for her second chance, and as long as she lived, she took care of herself. Too bad the anti-rejection drugs are so hard on the body, especially the skin.
She died in Oct. through no fault of her own.
Irish_Dem
(81,119 posts)What you are advocating puts people's lives at risk.
Renew Deal
(85,096 posts)Thats not the point. Some of this stuff is about common sense on both sides. The kid should be vaccinated. The vaccination shouldnt be a requirement to save a 12 year old.
Ms. Toad
(38,581 posts)So it isn't a choice about saving the girl. It is a choice about which little girl to save.
The transplant center has to choose. Rather than base that choice on who has the most money, who is smarter, gender, race, etc. Transplant centers base it on medical criteria, including whether the potential recipient is willing to protect the heart from diseases which specifically attack the heart, as COVID does.
TubbersUK
(1,517 posts)HariSeldon
(541 posts)There are only so many hearts available, and the currently accepted thinking is that they should go to the people who are most likely to get the most additional years out of them. Compliance with medically researched, statistically safe preventative care is strongly correlated with such extended use of the donated organ.
AkFemDem
(2,508 posts)and you can see why there's such a medical ethics debate around transplant rules.
Of course weighing risk:rewards and likelihood of medical compliance with any transplant but it gets really darned murky. For example, a patient living in a low income neighborhood, whose household income is below the poverty line, is far more likely to live a much shorter life than a recipient who lives in a middle/upper middle class neighborhood, with a six figure income, post-surgery.
Obviously lines have to be drawn- some feel a little clearer, eg "does the 60 yr old chain smoker get the heart or does the 16 yr old soccer player?" but I'm not convinced a covid vaccine ought tip factor into that calculus, especially in a juvenile. I'm glad I'm not paid to make such decisions, I don't think I'd be able to sleep at night.
travelingthrulife
(5,143 posts)You want a heart wasted because she is likely to get a preventable disease while she is immune suppressed?
AkFemDem
(2,508 posts)What the heck is up with such a patronizing and nasty toned response to a post that was benign and not enthused about either option? I am more than a little familiar with conflict in medical ethics, as part of my position and believe me nothing escaped me about the quandary here. I already spelled out why, you didnt comment on the actual content of my post so Im not going to further discuss.
MLAA
(19,738 posts)She was 71 when her kidneys failed and began dialysis. Initially she was not put on the transplant list due to her age. My Dad took charge and worked with her for about 12 months to get her in excellent physical condition. By all metrics measurable via blood tests, he got her in tip top shape despite her having to be on dialysis 3 times a week. After assessing her extremely healthy condition (except for her kidneys) she was put on the list. It took me nearly as long to convince her to take my kidney. The Drs had told me that something like 95 plus percent of the time if a kidney fails they both fail and if I ever did have kidney failure, as a donor, Id be moved to the top of the list.
The requirements to keep a transplanted kidney working are onerous. So many pills at regular intervals throughout the day, so many precautions to be taken since you become immune suppressed. It takes a real commitment by the recipient and their partner or parents to maintain this discipline.
The transplant gave my mom 10 additional good years.
I wouldnt trust this poor childs parents to follow the strict discipline determined by the doctors if they cant even follow the guidance of the CDC both during the pandemic and afterwards even as risks abate but do not disappear. Its heartbreaking, but so easily solvable by her parents.
karynnj
(60,949 posts)Not everyone who needs one will get one. Here, they are not at the step of getting one but getting on the waiting list. When a heart becomes available someone who is on the waiting list who is the most compatible and most in need will get it.
This girl is not on the waiting list because her family won't follow the guidelines.
dsc
(53,386 posts)the child has to listen to tons of medical advice once the transplant is done, so therefore his unwillingness to do so now, with a fairly simple thing it should be noted, matters a great deal.
Response to hatrack (Reply #7)
Post removed
Ms. Toad
(38,581 posts)It is the lifelong immune suppression you must maintain so your body does not destroy the new heart.
With it without a vaccination, people on immune suppressants are more likely to get COVID, and more likely to have a serious case or die from it.
And COVID specifically targets the heart, so it is particularly important to protect someone seeking a heart from an illness that targets the heart.
Blues Heron
(8,791 posts)Response to Blues Heron (Reply #11)
Post removed
hlthe2b
(113,824 posts)What a callous statement.
Renew Deal
(85,096 posts)And I know that they are trying to minimize risk for the patient. It just seems wrong to take the opportunity to save the patient out of the patients hands, especially when they dont have a choice.
hlthe2b
(113,824 posts)receive the necessary vaccines to keep them AND the heart viable. How can you possibly justify giving a heart to someone whose refusal of COVID and FLU vaccine would make them extremely likely to die or for the heart to be rejected directly from infection with these viruses for whom they would have zero protection and zero opportunity to MOUNT an immune response, given the rejection drugs.
What about the 5-year-old or 12-year-old or 30-year-old and 60-year-old Nobel Prize winning research who are likewise waiting for THAT heart and who ARE fully vaccinated? What about THEM?
Johonny
(26,110 posts)And I believe they put you on immune system blockers after the transplant, so the chances of a bad case of flu or covid are much higher.
But dont worry RFK Jr. will probably eliminate all this plus thr girls insurance in a month or two.
Bettie
(19,655 posts)you need to be fully vaccinated as your immune system must be suppressed to avoid rejection.
Organ transplants are not "basic medicine".
Renew Deal
(85,096 posts)Heart transplants happened long before Covid vaccines. Letting someone die over their risky choice to avoid a vaccine is not a good enough reason to avoid a life saving surgery.
Bettie
(19,655 posts)but sure, just transplant organs into people who refuse to vaccinate.
How about giving livers to people who won't stop using alcohol, lungs to people who won't commit to even trying to stop smoking...or just designate the organs to the family members of wealthy people who don't have to follow the rules everyone else has to.
Renew Deal
(85,096 posts)They are 12
Bettie
(19,655 posts)and rendered her unsuitable for the transplant.
Do I feel sorry for this child? Yes, I do.
As a mother, I would do anything to save my child. Getting a vaccine is literally the very least they can do.
Her parents are choosing death for her.
ExciteBike66
(2,700 posts)No reason to waste a heart on a patient who isn't protected (though it is not the kids fault) when other patients are willing to do what the doctor orders.
If there were plenty of hearts for all transplant patients, then these requirements would no longer make sense.
moonshinegnomie
(4,010 posts)they make you much more susceptibleto the disease. the vaccine help prevent that.
If your getting a transplant the hospital lieks to make teh chanes of success as high a possible and will reject you if you dont follow strict guidelines.
Renew Deal
(85,096 posts)The persons risk taking behavior shouldnt exclude them from life saving care.
hatrack
(64,828 posts).
Renew Deal
(85,096 posts)That are the problem
maxrandb
(17,415 posts)Because hearts for transplantation are effing hard to come by, and when this girl dies because she got the flu, or COVID, another little girl dies, because the heart she was waiting for was buried in the ground?
All so people can make some stupid political, or religious point.
You're required to take these vaccinations, because the risk of wasting something that could save another life outweighs the risk of proven safe vaccines.
You would only support the parents in this case, if you believe that the medical professionals are trying to make a political point, and their requirements aren't based on years of scientific research, and millions of pages of peer reviewed studies showing that the risks are too great to chance.
There are NOT just billions of hearts waiting around to buy off the shelf, especially when there are so many heartless and ignorant people in this country saying; "this rule just doesn't make sense to me".
hunter
(40,668 posts)Thank you.
eShirl
(20,223 posts)mucholderthandirt
(1,783 posts)The parents have made the decision that they won't follow protocol, so this child will die.
I have three kids. I could crawl over broken glass, be shot at, put in the middle of shark-infested waters,, whatever it took to give my child the best chance possible.
I feel sorry for this child. She has no say in this, she's a minor. She has ignorant parents, and unless the state steps in, she will not be put on the transplant list. Then her parents will bitch and moan about how awful Joe Biden is, even though this is how transplants have worked for decades, if not since the beginning.
hlthe2b
(113,824 posts)because of the rejection drugs over the next years of life. The requirements for organ recipients include COVID and influenza because they are the most transmissible respiratory viruses that continually circulate. Recipients are likewise required to be up to date on all childhood vaccines (including MMR, tDap, polio, Hep B, etc and if not they would be required to be vaccinated for these as well and likely have the transplant delayed if an organ was available).
To think of wasting a heart on a patient who had such an extreme risk of dying from influenza or COVID is unbelievably irresponsible and a horrific disrespect to the donor and their family--as well as a horrible betrayal of the other patients waiting for that heart.
Renew Deal
(85,096 posts)They are 12.
hlthe2b
(113,824 posts)The case I mentioned previously of a Jehova's witness refusing blood in a life-and-death situation for their child. An emergency court guardian CAN be appointed to make all medical decisions. That could be done in this instance but in some states, they may not be so willing to do so.
The child can speak out but they cannot make the decision as they are only 12.
tintinvotes
(143 posts)My nephew had a liver transplant at Cincinnati Children's Hospital and even though his parents voted for Trump they weren't stupid enough to think that they would receive that liver if they didn't follow all the Dr. recommended guidelines.
yaesu
(9,293 posts)Im questioning manmade requirements
VMA131Marine
(5,266 posts)These werent just conjured up out of thin air.
Somewhere theres another 12-year old waiting for a heart transplant who will get the required vaccines because of which she is more likely to have a positive outcome. Triage 101: identify the patients you can save.
tavernier
(14,433 posts)a better chance of survival when being vaccinated against disease. Accredited hospitals choose to follow those findings and statistics to give the patient and transplant organ the best chance for success. I see nothing about those steps that involve man made requirements one either accepts the science or prefers to make his own determination. Hospitals and doctors have an obligation to base their methods of patient care on the very best and latest science. But certainly the patient or responsible caregiver have the right to choose their own health solutions, be it the advice of their clergyman or political representative or neighbor or friend. But there are no man made requirements; ultimately just choices that you make and live with.
hunter
(40,668 posts)You don't want to give them to patients who are more likely to die because they refuse medical advice.
A transplant patient has to go with the whole program. They (or their parents) can't pick and choose.
mgardener
(2,346 posts)Do you have any medical education? Any degrees in any medical field.
IT appears you do not understand the relationship between COVID, Flu and rejection drugs that transplant patients have to take.
Your ignorance is astounding.
Educate yourself.
Renew Deal
(85,096 posts)tintinvotes
(143 posts)It's a gift not something you are owed, and it is only bestowed upon people willing to take the best care of it.
mgardener
(2,346 posts)Do you have any medical education? Any degrees in any medical field.
IT appears you do not understand the relationship between COVID, Flu and rejection drugs that transplant patients have to take.
Your ignorance is astounding.
Educate yourself.
Girard442
(6,885 posts)The organs should not go to someone who is self-destructive (or compelled to be), and deprive someone who will comply with sensible practices.
I feel bad for the child.
pinkstarburst
(2,018 posts)The bottom line is there are not as many organs available as patients who need them. They have to prioritize giving the few organs they have to patients who will actually follow protocols and give themselves the best possible chance at surviving post-transplant.
Anyone who receives an organ will have to be on immunosuppressants for the rest of their lives. They will be at increased risk for the rest of their lives for all sorts of opportunistic infections. Being up to date on vaccinations is a MUST. It would be absolutely unfair if this child was given a heart in the place of another child who needed the same organ, only to have her die of covid or flu 2 weeks later because her parents refused to get her vaccinated.
Post transplant care is very complex and requires following LOTS of instructions. They are going to prioritize patients who follow doctor instructions because they have the best chance at a positive outcome (again, with limited organs.)
It's the same reason they do not give liver transplants to people who are still drinking 10 beers per day and don't have their alcoholism under control. What's the point? If you can't follow medical instructions and make lifestyle changes pre-transplant, heartless as it sounds, that organ would probably better go to someone else. Maybe one day this changes if we can synthesize organs and have universal health care.
VMA131Marine
(5,266 posts)COVID is endemic at this point and can still be serious to life threatening in people with compromised immune systems.
Thats why its required, along with all the other normal vaccinations.
Ms. Toad
(38,581 posts)For the rest of your life, making you more susceptible to infections of all sorts. COVID specifically targets the heart, so without a vaccine you are inviting an illness which may destroy your new heart. People die on the waiting list for organs because there are not enough to go around - so everything is done to ensure that the organ will go to someone who will take care of it. Being vaccinated against a disease which leaves many people with heart damage is one of those ways they act responsibly so as to not throw a precious donated organ in the trash can.
Because of immune suppression, organ recipients are more likely to get sick from, and be seriously ill or die from COVID.
As someone whose daughter will someday need a liver transplant, I as applaud Cincinnati Children's, and all other hospitals, that rely on science to ensure that precious organs end up in those who are willing to be responsible enough to care for them.
Scrivener7
(59,444 posts)in some way health-compromised.
A person with a transplanted heart will always be health-compromised.
So the kid doesn't have a vaccine, but gets the heart anyway, catches Covid and dies a completely preventable death.
Another kid who DOES have the vaccine and would not have died of Covid doesn't get that heart. Perhaps, though, that kid dies while waiting for another heart.
It's a waste of a heart.
Americanme
(481 posts)I can understand why they wouldn't want to potentially waste a heart on someone who is unwilling to take every precaution. If a different patient is willing to get all the vaccines, quit smoking and drinking, take care of that heart, maybe they should get preference. But, maybe I'm wrong.
sop
(18,517 posts)3Hotdogs
(15,336 posts)That's so that when Hillary gets to be president, they know where to find us real patriots.
One by one, you'll see some of your neighbors (including probably me) disappear. You'll think they moved to Florida but that ain't what's happening to 'em.
ismnotwasm
(42,674 posts)Nobody wants to waste the gift of life to people with no respect for it. Still, that little girl deserves better
hatrack
(64,828 posts)sop
(18,517 posts)hlthe2b
(113,824 posts)for all the years they are on organ rejection drugs is criminal. We owe it to the families of those lost but whose organs were made available to donate. I will fight anyone trying to change this with every aspect of fight within me.
That child's case should have been taken to court and a medical guardian named, as they do for other life and death issues (e.g., a Jehova's Witness parent who refuses a life-saving blood transfusion to their child or any other number of cases the court has ruled on in recent years).
spanone
(141,524 posts)Passages
(4,091 posts)for so long. Can you imagine selling baby onesies that say, Unvaccinated, Unafraid?
I know of one family who will not get vaccinated for COVID-19, they refer to the vaccine as chemicals.
mwooldri
(10,817 posts)He's had his family vaccinated yet has preached anti vaccination.
And as for the Covid vaccine being called "chemicals" - while technically correct, lots of things are "chemicals". Do they drink soft drinks? What's in Mountain Dew that means its original US formula cannot be sold in some EU countries? Chemicals. Stuff known to cause harm. The Covid vaccine has chemicals that saves your bloody life. Big difference.
Passages
(4,091 posts)I have to wonder if his wives insisted and he is just a lunatic freak as Carolyn Kennedy has suggested.
The family I know who refer to the Covid vaccine as chemicals, do not have a grasp on reality. They correlate chemicals with danger and in their place believe vitamins and such will keep them healthy...that exposure too will eventually keep them safe.
moonshinegnomie
(4,010 posts)they trust the doctors enought to want a transplant but dont trust them enough when it comes to vaccines..
maybe jesus can magically transplant a heart into their daughter...
Marthe48
(23,131 posts)She'd been on a waiting list for about 5 years. To get on the list, she had to get an entire screening for all bodily systems and functions, and be up-to-date on any relevant vaccines. She had to do all of the tests every year until the hospital called with a match. They do that so the transplanted organ and the person has a higher rate of surviving.
I was her caretaker during her recovery, because, part of the transplant deal is that you have to have someone helping you for 6-8 weeks afterward and the transplant social worker has to have a face to face meeting with your caretakers. Anyway, I drove her to her follow-up appointment and while I waited while she had her checkup, met several people in various stages of transplant surgery recovery. They had to go through the same rigorous screening before they got a transplant.
Anybody who thinks they're special, and can pick and choose what part of the process they want to comply with, is not going to get a transplant. Maybe the child's invalid care and early funeral will be cheaper than the transplant. And maybe her survivors can figure out a way to wear their martyrdom that doesn't make them look like cruel, heartless people who used their own child to make a political statement.
Diamond_Dog
(40,496 posts)displacedvermoter
(4,391 posts)coming down the pike in just a day or so, just watch.
Happy Hoosier
(9,529 posts)But the parents are CRIMINALLY irresponsible.
Irish_Dem
(81,119 posts)Child needs to be removed from the home and placed in foster care.
33taw
(3,333 posts)Bettie
(19,655 posts)and needs to put himself out there with his anti-vaxx bullshit.
33taw
(3,333 posts)Bettie
(19,655 posts)One to where money is the overriding factor in who gets organs? I can see him doing that, removing all qualifications from organ donation other than cash.
Texin
(2,851 posts)3auld6phart
(1,683 posts)Self centred ignorent scum. The child has to suffer because of their ignorance,, asshole they be.
Autumn
(48,951 posts)tinrobot
(12,053 posts)Something as simple as the flu could easily kill the kid. And will the parents also refuse medications that will keep their daughter from rejecting the heart?
You don't give something as valuable as a human heart to someone who doesn't respect the gift.
So sad for the kid. And shame on those parents for putting their own egos before their daughter's life.
LeftInTX
(34,209 posts)Oopsie Daisy
(6,670 posts)Wiz Imp
(9,937 posts)dlk
(13,241 posts)As well as too many Americans are practicing medicine without a license. They would rather be right than save their childs life. Just imagine the arrogance.
Remember, these are the same people who blithely walked on after over a million Americans died of COVID.
JT45242
(4,027 posts)No sympathy for the parents...there are rules about eating good organs on people who will not likely survive and use them appropriately.
They know the rules.
They choose the cult over their daughters.
Unless a sane grandparent fights for custody, this kid will likely die at a young age.
You can't fix stupid....period.
They trust doctors to literally cut out her heart and put the heart of a dead person into their daughter, but not to give her shots to prevent diseases.
The stupid is literally deadly.
Dave Id
(279 posts)This needs to be brought up during the RFK Jr. conformation hearing for Health Secretary. Not vaccinating ones' child can have serious consequences, becoming autistic isn't one of them.
bif
(26,971 posts)Sheesh! And I'll bet they're good christians.
bronxiteforever
(11,212 posts)Anything. I would not take away my childs life just because I dont believe in vaccines.
It is amazing to be alive. It is a gift of God or the universe whatever your choice.
I do not understand anyone who would sacrifice the life of their child for their own beliefs. My child deserves life as much as anyone else. To think otherwise is distinctly and disturbingly alien to me.
Raftergirl
(1,853 posts)GusBob
(8,242 posts)I think I know the answer
Can an organ donor stipulate that their bodily parts are only donated to folks that are gonna take care of them, which includes being vaccinated?
I mean it was my kidney after all
Reminds me of that show Shameless when Frank got a new liver, and the donors parents became attached to him
travelingthrulife
(5,143 posts)Just like not wasting a liver on someone who refuses to stop drinking.
VGNonly
(8,484 posts)in my family, in-laws, relatives of in-laws. About ten refused vaccines, three died.
Response to moonshinegnomie (Original post)
Name removed Message auto-removed
Swede
(39,392 posts)She died last year. Stupid.