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rustysgurl

(1,096 posts)
Tue Nov 4, 2025, 03:42 PM Nov 2025

Rusty Update ...

Doctor visit yesterday - Multiple Myeloma (Kappa). 90% involvement in his bone marrow. Start chemo and immunotherapy next Tuesday for 16 weeks. Adding another drug midway to help with bone damage. After the 16 weeks transfer to KU Medical Center care for autologous stem cell transplant regimen (unless his cardiac MRI shows amyloidosis - which is common in MM patients). Once he goes into remission he will be on maintenance meds.

Rusty is hopeful and excited to start treatment. Holiday gatherings are cancelled. He will mask up everywhere as he will be immunocompromised. Dr is worried about respiratory infections during treatment.

But, in all of this we have food to eat, a roof over our head, and the love and support of so many. We are lucky.

38 replies = new reply since forum marked as read
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Rusty Update ... (Original Post) rustysgurl Nov 2025 OP
Sending hugs and positive vibes as Rusty begins the treatment livetohike Nov 2025 #1
Sending positive vibes your way MustLoveBeagles Nov 2025 #2
Hugs to you both! pandr32 Nov 2025 #3
My brother had an autologous bone marrow transplant Freddie Nov 2025 #4
Sending healing vibes and best wishes for the very best outcome. HeartsCanHope Nov 2025 #5
eggscllent news. AllaN01Bear Nov 2025 #6
Healing Vibes sent your way.... spanone Nov 2025 #7
can you do a virtual holiday thing? Skittles Nov 2025 #8
Hey, medical issues have come a long way in the treatment department. calimary Nov 2025 #9
Sending you vibes of support and health, all the way around. slightlv Nov 2025 #10
Wishing you both a smooth process IbogaProject Nov 2025 #11
Sending all the healing prayers I can gather to Rusty and to you. LoisB Nov 2025 #12
M-I-L was diagnosed with it over 50 years ago. Even with the treatment they had back then, she lived 14 yrs appleannie1 Nov 2025 #13
You are in my prayers Rustysgurl JMCKUSICK Nov 2025 #14
All the best to you both. A tough road ahead for sure, Fla Dem Nov 2025 #15
Sending positive thoughts to you BOTH!! bluestarone Nov 2025 #16
Sending healing vibes to Rusty FakeNoose Nov 2025 #17
I didn't realize you were in Kansas ... Blue_playwright Nov 2025 #18
We are in Olathe ... rustysgurl Nov 2025 #25
Healing energy and comfort to Rusty 💚💖 Clouds Passing Nov 2025 #19
Be sure to take care of yourself BaronChocula Nov 2025 #20
Wishing your family the best, rustysgurl!! 70sEraVet Nov 2025 #21
Healing vibes on the way! Nevilledog Nov 2025 #22
Had a friend in good shape several years after the stem cell procedure. surfered Nov 2025 #23
Sending healing hugs to Rusty gademocrat7 Nov 2025 #24
Sending more love. SleeplessinSoCal Nov 2025 #26
Cyber hugs & good vibes to both of you SheltieLover Nov 2025 #27
I send my good luck with your treatment Snoopy 7 Nov 2025 #28
My husband is 11# yrs on that journey Nanjeanne Nov 2025 #29
As a cancer survivor myself... GiqueCee Nov 2025 #30
I have a friend who's done quite well with this course of treatment NNadir Nov 2025 #31
Best of luck. Prayers. Joinfortmill Nov 2025 #32
Hoping for the very best outcome for you and Rusty! 💗💗💗 58Sunliner Nov 2025 #33
Sending him & your whole family my best wishes! CaptainTruth Nov 2025 #34
Sending prayers for a complete recovery for Rusty. brer cat Nov 2025 #35
Sending you and your Rusty all the very best. hamsterjill Nov 2025 #36
Hoping for a fast recovery and FemDemERA Nov 2025 #37
What really impresses me, as we wish for a successful treatment and recovery is... NNadir Nov 2025 #38

Freddie

(10,075 posts)
4. My brother had an autologous bone marrow transplant
Tue Nov 4, 2025, 04:33 PM
Nov 2025

For non-Hodgkin’s lymphoma. That was 6 years ago, he’s still very much with us. It’s an arduous procedure but worth it. Best of luck!

calimary

(89,294 posts)
9. Hey, medical issues have come a long way in the treatment department.
Tue Nov 4, 2025, 05:25 PM
Nov 2025

Even if the cures aren’t quite there yet, life extension has improved, on average, by a noticeable degree. That’s always welcome news.

slightlv

(7,583 posts)
10. Sending you vibes of support and health, all the way around.
Tue Nov 4, 2025, 05:41 PM
Nov 2025

KU Med is a great place. They helped my Mom several times. I just kept getting lost on campus trying to find her! (LOL)

Blessings to you and Rusty!

appleannie1

(5,434 posts)
13. M-I-L was diagnosed with it over 50 years ago. Even with the treatment they had back then, she lived 14 yrs
Tue Nov 4, 2025, 05:51 PM
Nov 2025

Keep up the positive vibes, do the treatment and he can outlive us all. Will keep him in my thoughts.

Fla Dem

(27,488 posts)
15. All the best to you both. A tough road ahead for sure,
Tue Nov 4, 2025, 05:55 PM
Nov 2025

but it sounds like you've have a very positive mindset. Please keep us posted.

FakeNoose

(40,730 posts)
17. Sending healing vibes to Rusty
Tue Nov 4, 2025, 06:06 PM
Nov 2025

Here's hoping for a quick and positive recovery. It's going to be hard on you both, but try to stay positive.

Blue_playwright

(1,613 posts)
18. I didn't realize you were in Kansas ...
Tue Nov 4, 2025, 06:10 PM
Nov 2025

... I'm in Wichita. Let me know if there is anything I can do... bring a meal... anything?

rustysgurl

(1,096 posts)
25. We are in Olathe ...
Wed Nov 5, 2025, 01:08 AM
Nov 2025

but I am a Wichita girl, born and bred. Three hours might be a little far to bring a meal, but I thank you for the offer.

Snoopy 7

(724 posts)
28. I send my good luck with your treatment
Wed Nov 5, 2025, 06:21 AM
Nov 2025

But, I also sit here and I'm crying about children going hungry. God bless the poor...

Nanjeanne

(6,535 posts)
29. My husband is 11# yrs on that journey
Wed Nov 5, 2025, 07:36 AM
Nov 2025

and we leave for Rome vacation very soon. There is much hope and great improvements with treatment now. Stay positive and best of luck. DM me for any advice or support

NNadir

(37,537 posts)
31. I have a friend who's done quite well with this course of treatment
Wed Nov 5, 2025, 08:34 AM
Nov 2025

All of us are pulling for Rusty's similar success.

My friend is still alive, thriving.

hamsterjill

(17,191 posts)
36. Sending you and your Rusty all the very best.
Wed Nov 5, 2025, 09:47 AM
Nov 2025

My prayers for your both. For him, I pray for healing and strength. For you, I pray for peace and calm. It's hard to watch someone go through an illness. So, please remember to take care of yourself.

Your attitude of gratitude is inspiring.

NNadir

(37,537 posts)
38. What really impresses me, as we wish for a successful treatment and recovery is...
Wed Nov 5, 2025, 12:44 PM
Nov 2025

...your last paragraph:

But, in all of this we have food to eat, a roof over our head, and the love and support of so many. We are lucky.


You are beautiful people to face trouble with this in mind, really wonderful people.

As such, I can only hope on hope that you come through this intact.

May your troubles pass. All the best to the both of you.
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