General Discussion
Related: Editorials & Other Articles, Issue Forums, Alliance Forums, Region ForumsWhat's on my mind (quite a lot) and what's to come . . .
The drug I'm taking (Tagrisso) has some side effects, and those include these: The first is fatigue and the second involves the GI tract. This second one has disrupted my existence something awful.
Today things are somewhat better. More normal, you might say. But combined with the fatigue, it's over the top. My energy is scarce and brief.
Tuesday, I will hopefully undergo a PET scan. And hopefully that will show that my tumor is shrinking. After all the fuss, it better be smaller!
What I'm most looking forward to is getting my life back so I can carry on in my normal way. That looks pretty distant right now, so I'm hanging on the best I can.
And if you've read all this, thank you so much! My friends are dear to me. 😃
The Roux Comes First
(2,379 posts)All the best for a steady recovery.
CaliforniaPeggy
(157,078 posts)How sweet of you to say this. I am deeply touched.
Deuxcents
(27,874 posts)CaliforniaPeggy
(157,078 posts)I am truly hoping for a good PET scan.
Deuxcents
(27,874 posts)For a year and on Monday gets tested to see if she remains healthy. I hold you both close to my heart
CaliforniaPeggy
(157,078 posts)May your friend's cancer-free existence continue far into the future!
stopdiggin
(15,708 posts)CaliforniaPeggy
(157,078 posts)And they help me feel better too.
applegrove
(133,343 posts)much to us on the DU.
CaliforniaPeggy
(157,078 posts)Fortunately, the side effects will cease when I stop taking the drug.
I will keep you informed.
blm
(114,794 posts)💐💐💐
CaliforniaPeggy
(157,078 posts)I have to stay aware just to keep any accidents from happening.
jfz9580m
(17,910 posts)You are one of the sweetest people online and I am looking forward to your being back with us..
I will truly keep you in my thoughts.
CaliforniaPeggy
(157,078 posts)I appreciate the sweetness of your words.
niyad
(134,438 posts)your way.
CaliforniaPeggy
(157,078 posts)question everything
(52,498 posts)CaliforniaPeggy
(157,078 posts)I know you're all here for me, and it buoys me up!
summer_in_TX
(4,332 posts)Prayers for the tumor to shrink and for your healing.
CaliforniaPeggy
(157,078 posts)Time will tell! I'm hoping too.
Hope22
(4,923 posts)I hope that you find a rhythm soon! Fingers crossed that you get your scan on Tuesday. Be easy with yourself and catch some rest when you can get it. Keep up the good work! Peace, love and healing light to you!💗🙏🏼
CaliforniaPeggy
(157,078 posts)Not much rhythm to my days right now. And I miss it! I do rest and use what energy I have when I can.
Blessings to you!
3catwoman3
(29,908 posts)Heres hoping that your innards settle down soon.
CaliforniaPeggy
(157,078 posts)Not sure how long I'll have to be on this drug. Someone actually mentioned that I might need to stay on it even after the surgery! Just to mop up any stray cancer cells! I sent a message to my oncologist today to let her know what's happening. I expect to hear from her early next week. So, we'll see.
The Imodium is helping, thank goodness.
Figarosmom
(13,943 posts)🧸🌈 hope you get good news and will be able to get off the drug you are taking. I know the best day I've had this year was when the doctor said I could stop the drug she had me on. The side effects I had were getting worse and worse. I'm glad to be back to my normal.
So I wish you back to normal.🤞
CaliforniaPeggy
(157,078 posts)I'm very hopeful.
JMCKUSICK
(6,703 posts)Please know we wait with you, worry with you, pray with you and hope with you.
God Speed
CaliforniaPeggy
(157,078 posts)They, and you, are greatly appreciated.
spanone
(142,121 posts)CaliforniaPeggy
(157,078 posts)SheltieLover
(82,014 posts)Fingers crossed that your PET scan will be excellent.
Please be gentle with yourself.
CaliforniaPeggy
(157,078 posts)I expect it will be. My doctor told me that between 60 and 70% of the people taking this drug for the same reason I am, see their tumors shrink. I fully expect to be in that group.
murielm99
(33,106 posts)ain't what it used to be. I had the same cancer as you. I had stereotactic radiation and have been cancer free for close to five years. I have shortness of breath due to scar tissue in the lower left lobe of my lung. Otherwise, I am okay. Scar tissue is better than a tumor! I have a scan every six months. I am confident that in a few years, you will be bragging about your long term remission. I know it is stupid to say this, but try not to worry.
CaliforniaPeggy
(157,078 posts)It actually may sound weird, but I'm not worried. The cancer was discovered very early, before any lymph node involvement.
That is a significant advantage and I was really happy to find that out. I'm sure I'll have scar tissue too; they're planning to remove the top lobe in its entirety in my right lung. I can live with that.
Thanks for your very good words!
CaliforniaPeggy
(157,078 posts)Bless all of you for your comments!
Good night . . .
Maru Kitteh
(32,035 posts)I dearly hope you are. I wish I could bring you a nice warm blanket from the dryer, and give you some cocoa and a hug.
KitFox
(604 posts)Nemo when Dory kept saying Swimming, swimming, just keep swimming . Well I propose a DU collective shout at that tumor: Shrinking, shrinking, shrinking, just keep shrinking!!!!! We all care so much and will be wishing and hoping for the best news for you with every test! Sending love and hugs dear heart ❤️ ❤️❤️
HeartsCanHope
(1,767 posts)Sending healing vibes and lots of love. Hope things get easier very soon.
Dear_Prudence
(1,196 posts)I am hoping for good news. It is stressful waiting fir medical results. So take care of yourself, please, dear CaliforniaPeggy.
brer cat
(27,719 posts)I hope they can do something different that won't have those side effects. Best wishes for good results from your PET scan.
LoisB
(13,618 posts)LuckyCharms
(23,168 posts)Sometimes, when you are feeling bad, things suddenly take a turn for the better.
Medicine side effects can be rough, especially GI problems. I understand...GI issues can make you feel like a different person.
But don't let those problems trick you...you are still yourself! You're going through a rough patch, but you are still yourself.
And you're going to feel better!
You sound like a fighter, Peggy. You stay strong...I have a feeling that everything is going to work out.
Easterncedar
(6,542 posts)You are loved
malaise
(298,526 posts)of the medicine we need.
Please take care - I hope things improve
Celerity
(55,109 posts)HAB911
(10,629 posts)sinkingfeeling
(58,126 posts)mwmisses4289
(4,876 posts)Kid Berwyn
(25,218 posts)Please know you are loved completely, unconditionally and infinitely by all who know you. Every life is a miracle. The universe itself and our earth and the life it holds are miraculous. Sometimes, when we stop to look and listen, we can clearly hear and know that reality. Most special and powerful of all are those who love others as you completely, unconditionally and infinitely.
bluestarone
(22,487 posts)We ALL hope and pray for your speedy recovery. You ARE a big part of this family here!!
Grim Chieftain
(2,146 posts)I hope you realize in your times of struggle and frustration, that someone here has you in their thoughts and is sending loving, healing vibes your way. Take care, friend, we're with you.
MiHale
(13,222 posts)Hoping for the best for you.
Clouds Passing
(8,224 posts)Diamond_Dog
(41,278 posts)This place just isnt the same when youre not on here as much. If Im short on time, I always read your postings first.
Those drugs that cure can surely have life disrupting side effects! I totally understand. Hope its all over with soon and youre as good as new!
surfered
(14,619 posts)Whatever that is for our age.
lark
(26,129 posts)Waiting for you to join me as a cancer survivor!!
peggysue2
(12,624 posts)All sending vibes and blessings your way.
Sorry to hear of the physical side effects. Cancer treatments can be cruel. Here's hoping the nasties will be manageable in the near future and you can put this chapter behind you.
Take care.
Solly Mack
(97,330 posts)Polly Hennessey
(8,998 posts)Targrisso your side effects will lessen. I know that you are going to come through this stronger. 💕
highplainsdem
(63,357 posts)but you should be getting very good health news soon, so you can get your normal life back.
Pas-de-Calais
(10,298 posts)mnhtnbb
(33,526 posts)Sorry to hear of the side effects of your treatment. Wishing you resolve and strength in your determination to overcome this challenge.
Hang in there!
TygrBright
(21,400 posts)popsdenver
(2,709 posts)in your courageous battle. Our hearts are all with you in this challenge......
FemDemERA
(925 posts)wrapping you in positive healing love right now. Let me add mine too. Sending my wishes for easing of the pain and Negative side effects and for healing to happen quickly for you.
orangecrush
(31,446 posts)11 Bravo
(24,341 posts)I am sending healing thoughts and prayerful good wishes your way.
(I have kicked the ass of three different kinds of cancer - not even counting various skin lesions - and if I can do it, I'm certain that you will as well. Give 'em hell!)
senseandsensibility
(25,739 posts)(something new and different for me, lol) and I'm not sure it paid off, but here goes: I remember an ad for a local dry cleaners that used to appear in our community paper. The ad offered this advice in a blurb at the bottom: "Remember, half of life is showing up." This used to strike me as banal and corny. But over the years, I've learned to apply it to a variety of difficult and complex situations. It keeps me centered and grounded when the anxiety threatens to take over. You are showing up, California Peggy. You are showing up for all your medical treatments. You are doing the very best you can according to the science. And, as a medical professional yourself, I know you believe in that. "Showing up" and having a good attitude are priceless strategies. I will keep you in my thoughts and prayers, my friend.
philly_bob
(2,433 posts)of should I say Empathy, since I've suffered pharmaceutical induced digestive issues.
Hang in there.
mercuryblues
(16,527 posts)horrendous. May you make it through them.
GopherGal
(2,963 posts)because I'm no medical professional, and I haven't faced a challenging medical situation such as yours. I'm just someone who seems to be a canary in a coal mine for experiencing the side effects of medications (less complex than yours, I'm sure). I also seem to have whatever the opposite of a cast-iron stomach is. One thing I've learned from my experiences is "tattle to the doctor". In some cases I've been able to work around side effects via minor changes to the administration schedule. (eg. "it says to take on an empty stomach, but I need to take it with bland food" or "I take it right before bed so the sleepiness etc doesn't bother me"
Not deep advice, but the doctor can judge the payoff between compromising the dosing instructions vs keeping me from puking up all the expensive meds I just swallowed... :-p
Best of luck to you. Take care and don't forget to keep up with whatever self-care keeps your spirits up, too!
gademocrat7
(12,045 posts)You are the epitome of beauty and grace. I am sending you healing hugs.🤗💙
Kali
(56,940 posts)whatever is going on, you have all the healing and strong GI energy I can send. (and MFM would surely have enjoyed lounge posts about GI issues so there can even be a positive side to that
)
Old Crank
(7,368 posts)My wife was just treated for a minor breast cancer finding. Between the surgery and 15 radiation treatments in 3 weeks it really tired her out. Also gave her a certain amount of brain fog.
Hang in there.
malthaussen
(18,638 posts)-- Mal
NewLarry
(174 posts)whichever you prefer. Both is an option.
(edited 'cause I can't spell)
littlemissmartypants
(34,813 posts)OldBaldy1701E
(11,670 posts)Evolve Dammit
(21,829 posts)SergeStorms
(20,910 posts)You're not even close to being finished with your work here. I hope you're back in the fight very soon, but in the interim, relax and recover. We need you!
NNadir
(38,687 posts)pandr32
(14,307 posts)May both your tumor and the malignant one occupying the White House shrink and disappear.
Happy holidays!
Eko
(10,162 posts)And hang in there.
Eko.
barbtries
(31,371 posts)I hope you get relief soon and that the news is all good!!
BaronChocula
(4,843 posts)And pretty damn quick!
cate94
(3,128 posts)And praying you get the best results possible.
MuirHero
(153 posts)VTderry
(141 posts)an unpleasant memory very soon.
MIButterfly
(3,259 posts)I will keep a good thought and my fingers crossed. You are such a bright light here at DU. I hope it all goes well and Tuesday will bring you (and us!) nothing but good news!
In the meantime, lean on your DU family as much as you need. We are here for you and love you.
All my best,
MIButterfly
Miles Archer
(24,709 posts)Surgery, October 2024. Blood tests every 6 months since then. "Cancer free."
There was a price to be paid for that, in terms of day-to-day life. Nothing like cancer to reinforce how the word "forever" means "a long, long time."
My life, post-cancer, is absolutely better than if I'd been told that it was inoperable. This was caught early enough so that it was treatable.
Be well, Peggy. I hope you keep getting better and better.
Grumpy Old Guy
(4,407 posts)Hang in there!
CaliforniaPeggy
(157,078 posts)ALBliberal
(3,401 posts)You are in my thoughts and heart DU Friend.