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Related: Editorials & Other Articles, Issue Forums, Alliance Forums, Region ForumsStillbirth (a taboo subject) -- w/edit
EDIT TO ADD: I created a blog post based on this discussion. Pain: Our Common DenominatorStillbirth, I believe even more so than miscarriage, has been a taboo subject in our society for a long time. It's not something that is discussed; most people avoid discussion like the plague. It's not just about the loss of the child...you lose all your hopes & dreams for that child and yourself. You grieve the loss of that future.
I know because it happened to me. My first child, Joshua. 22 years ago, though it will always seem like yesterday.
I didn't realize this subject hadn't been covered in a movie before now, but that is what "Return to Zero" is about. They have an amazing cast, including Minnie Driver. I'll announce when a release date is set, but in case you know anyone who has been through this particular tragedy, I wanted to share the Return to Zero site and the trailer (see below).
Even though it is a tragedy, I want to add that most of us would go through the experience again and again if it meant we could hold our child just one more time.
I have said that all these years, that there are no regrets. I was so grateful that I treasured every moment of the pregnancy; of course, I had no idea that treasuring each moment of the pregnancy would be my memories of Joshua. Even though labor and delivery were heartbreaking (I knew ahead of time), I still treasure those moments as they are part of my memories.
Another mom wrote this but it echoes my feelings:
"After everything I went through when Christian died and after everything that I am still going through, I would do it all over again. Why? Because he is my son, my beloved child and I would do anything just to hold him again. I would endure all of that pain and heartache because it would mean that I would get to experience all of that LOVE in its rawest most beautiful form again. I would STILL choose him because I STILL love him."
While I obviously can't speak for everyone, I think that's a very important message many of us want to convey. Please don't pity us or think we wish we never would have been pregnant to begin with. On the contrary, we treasure what little time we had.
I was definitely treated as a leper after I gave birth to Joshua. People were simply so uncomfortable and didn't know what to say or do. I was new to the area when I was pregnant with Joshua, and most of my friends were from childbirth classes, pregnancy yoga classes, etc. I realize they turned away because they couldn't bear to imagine that the same could happen to them; still, it was painful to be ignored, as though I had a disease. (In case you're wondering, I had a perfect pregnancy; no problems whatsoever. We'll never know what happened.)
Hopefully this film will allow for more awareness and nurture more open dialogue.
If you have questions, feel free to ask me anything. This is a large community; I'm sure some of you here have experienced stillbirth as well.
http://www.returntozerothemovie.com/
Happyhippychick
(8,379 posts)OneGrassRoot
(22,920 posts)That's very kind. Thank you.
SoCalDem
(103,856 posts)I understand the "leper" thing.. Their babies were all born just fine (and I was glad for them) , but it was super painful for me when they complained about diaper rash or teething, when our little baby boy had to endure countless surgeries. I listened to their tales of woe, and then would see it creep across their faces when they realized how utterly trivial their complaints were.. Only one remained a friend, as the others drifted away.,.
OneGrassRoot
(22,920 posts)That had to have been very painful, on top of a very stressful situation as it was.
SoCalDem
(103,856 posts)I feel so sad for you having lost your little one and how awful to not even know why..
Arkansas Granny
(31,515 posts)I never got to hold him. He was hooked up to machines and struggled for every breath as the doctors tried to save him. He died after an unsuccessful surgery.
I would not repeat the experience. Had I known the suffering he would endure, I would have probably chosen to abort.
OneGrassRoot
(22,920 posts)First of all, I am so very, very sorry, Arkansas Granny. I'm sorry for every aspect of the suffering involved in your experience.
That is a huge blessing I have always been aware of and stayed focused upon: My child didn't suffer. I feel strongly that he didn't suffer in any way.
I am truly sorry for your ordeal, and I hope me posting this didn't upset you terribly.
Arkansas Granny
(31,515 posts)it's gets easier to deal with.
OneGrassRoot
(22,920 posts)There really aren't enough hugs in the world, but I sure send you many virtual hugs, Arkansas Granny.
No, it doesn't go away.
Skittles
(153,156 posts)LeftInTX
(25,288 posts)I agree with the producer of the film, this is a subject which needs to be discussed and brought out into the open.
One of my co-workers had a stillbirth and she wanted to talk about it, but she was surprised that co-workers didn't know how to discuss it. We were newborn nursery nurses. It was so hard for her to go back to work and see all the healthy babies. But she was also sad that other co-workers did not know what to say etc.
OneGrassRoot
(22,920 posts)The double-whammy of newborn nurses, professionals, not knowing what to say, combined with seeing all the happy new parents and babies....just wow.....
I didn't think about it before, but if this movie ends up being good, it's one healthcare professionals should see as well.
I recall going to see my primary care physician about three weeks after delivery; I forget what for now. I had seen him for something during the pregnancy, so he knew I was expecting. When I came in and told him what happened, I broke down.
He was so cold and simply said, "I can see you're still grieving."
STILL GRIEVING? It was three weeks ago!
I transferred docs after that.
LeftInTX
(25,288 posts)How cold of that doctor to say that.....
Honeycombe8
(37,648 posts)It's just not that common, I think, these days.
OneGrassRoot
(22,920 posts)it is as though it's a taboo subject, simply because (understandably) people don't know how to react.
There are reportedly 26,000 stillbirths in the US each year.
It's not as common because the number of overall pregnancies carried to term is down from previous generations. I know in my grandmother's time, for example, they would often have several stillbirths in the midst of multiple pregnancies and deliveries.
How awful.
Just Saying
(1,799 posts)I agree that we often don't know how to deal with it. Also, people take things differently.
My best friend lost her daughter at 5 months when we were in our early 20s and she didn't want to talk about it. She wanted to hang out and do normal things (be distracted I guess.). Years later when I had my kids she pulled away a bit.
It's not always easy to know what someone needs.
OneGrassRoot
(22,920 posts)and I actually have always had tremendous empathy for others who struggle in the face of someone else's pain and grief.
Sometimes silence truly is best.
I feel it's the pulling away from those who are grieving, because of our own discomfort with others' pain and grief, that is so painful. Hopefully this movie will help alleviate to some degree, for some people.
Butterbean
(1,014 posts)Second, most people don't know what to say or how to handle it. I'm not surprised newborn nursery nurses didn't know how to handle it. When we have a stillbirth (I do L&D), they avoid that room like it has a little force field around it. When I have a patient with a stillbirth, it's hard for me to talk about it, even after 16 years of doing it, and I've had extensive training and attended many stillbirths.
It is a taboo, because yes, like you said, people are irrationally afraid that it's somehow "catching." People either don't know what to say, or they say something stupid and horrible (I won't list the examples, I know you've probably heard them all and they're horrible, each and every one of them). Some of the doctors I work with are piss poor at handling stillbirths, too.
I'm so sorry, I wish it were better for you. I know it will never be easier. Just know this: we nurses cry right along with you. Maybe not in front of you (some do, some don't), but we always cry. We treat your baby with tenderness and love, and when we choose the gown and hat and booties to put on your baby, it is an act that is done with the utmost care. We handle your baby gently. Your baby means something to us, too, and the death of your baby is a horrible thing to us, and we ache for you, too. I'm just so damned sorry that any woman has to go through it. It's brutal.
OneGrassRoot
(22,920 posts)Thank you so much for sharing that.
I remember feeling so awful for the nurses and midwives and others on the floor. I know it is so hard on all of you as well. I was fortunate in that they were wonderful...they felt like family by the time I left.
Thank you for sharing part of your experience in this process, and that you carefully dress our babies with love as you do the other babies.
That is one of the kindest things anyone has ever said to me.
Butterbean
(1,014 posts)Don't feel bad for the nurses and midwives, we support each other, and it is the patient and her family that has the much harder road to travel.
Yes, the outfit is chosen with great care, and the babies are always handled very gently. They are precious, and deserve to be handled with care and tenderness.
tavalon
(27,985 posts)one of the things I miss about being a labor and delivery nurse is the fetal demises. Not because it was painless, it wasn't. It was excruciating for everyone but especially the parents. I felt of use when I was able to help parents begin their journey at the place where most would see the end.
I remember once, having a stoic dad who saw me cry with his wife and then he started crying and that's so important. It's hard but important work to be at the birth of a child who has already died.
And yes, we always cried. Not always with the family but always, always, always.
tavalon
(27,985 posts)I never saw it as a taboo subject but that may be because it was part of my vocation to be with women whose child or children had died. I was at so many deliveries of these children and I was blessed to be able to help their parents begin their journey with their child.
Joshua. My son, severely autistic, but wonderful, is named Joshua. I'm sorry that your Joshua and my Joshua wont ever meet on this plane.
OneGrassRoot
(22,920 posts)No words, just gratitude.
Zoeisright
(8,339 posts)"I have no idea what you are going through and what you are feeling. But I know what emotional pain feels like, and I'm so sorry you are in pain."
OneGrassRoot
(22,920 posts)One thing I've learned over the years is that -- regarding grief and pain of all types -- is to never say, "I know what you're going through."
No one knows precisely what another is going through, as every situation is unique. You handled it beautifully, in my humble opinion.
mimitabby
(1,832 posts)honestly, the other women I know who had stillborn children never communicated this to me.
and in regards to being shunned, or taboo; I am a recent widow and I have found that any grief is hard for some people to take
and they will do anything to avoid talking about my departed beloved husband, like not saying his name or changing the subject.
Thank you
OneGrassRoot
(22,920 posts)People have a difficult time with grief and pain in general, and just do not know how to deal with it.
I am sorry you're enduring the pain of the passing of your beloved husband.
Big, big hugs, to you, mimitabby.
BrotherIvan
(9,126 posts)But there is so much love and tenderness on this thread I just wanted to say thank you. There is kindness in the world and that is something to hold on very tightly to in times of hardship. Thank you all. I will think of Joshua tonight and I hope you get to see his smiling face again.
OneGrassRoot
(22,920 posts)Over the last few weeks I've come to realize something.
I am someone who is always trying to find common ground on which to build conversation about matters of import. What I've come to realize is this: Pain is our common denominator. It can be where we find common ground to create genuine connection and experience authentic compassion.
Pain is part of this human experience. Sharing our pain with others, listening to and accepting others' pain -- acknowledging, then releasing the pain -- can be extraordinarily healing.
Being able to openly share and discuss our pain is really important.
Thank you for your kind words, BrotherIvan.
BrotherIvan
(9,126 posts)If we have the courage to allow ourselves to feel pain, we often help others through theirs. That is a wonderful lesson you are sharing.
rl6214
(8,142 posts)My sister had a stillborn daughter 17 years ago so I know what you have gone thru. Stay strong.
fizzgig
(24,146 posts)one of my best friends had a stillbirth about five years ago and it devastated her. she talks openly with me about it, but i don't know that she really talks to anyone else about it.
OneGrassRoot
(22,920 posts)I'm not sure how I made it through the first five years, to be honest, but I did. The five-year mark was a turning point.
I went to the cemetery every single day at 2:12 (the time of birth/death) for the first year. Every single day.
I haven't thought about a lot of this in many years now.