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Floyd R. Turbo

(26,549 posts)
Sat Sep 4, 2021, 09:26 PM Sep 2021

Shit's fucked up. My bil has suffered from Parkinson's for several years. His wife of fifty years

has provided for and taken care of him. She has now been diagnosed with rapidly advancing Alzheimer’s. Both of her parents and two of her siblings died from the disease.

Some times I think we are living too long!

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Shit's fucked up. My bil has suffered from Parkinson's for several years. His wife of fifty years (Original Post) Floyd R. Turbo Sep 2021 OP
When my dad was 93 the doctor told him he didn't see any reason why he wouldn't live to be 100. LakeArenal Sep 2021 #1
there was a time I would not have understood that. dixiegrrrrl Sep 2021 #5
I worked at a cemetery when I was in my early 20s. C Moon Sep 2021 #17
LOL peacebuzzard Sep 2021 #24
yep,,, Quality of life matters. n/t KarenS Sep 2021 #2
My BIL Passed Away Yesterday Jim G. Sep 2021 #3
I am so sorry to hear that. Sending love to your sister MLAA Sep 2021 #10
Thanks Jim G. Sep 2021 #12
My BIL died of glioblastoma, too DFW Sep 2021 #14
I'm so sorry, Jim. brer cat Sep 2021 #15
My condolences to you and yours, Jim G. Niagara Sep 2021 #23
Alzheimer's dementia can be passed through families FakeNoose Sep 2021 #4
He's my wife's brother. Floyd R. Turbo Sep 2021 #20
It's a difficult time for you and your family FakeNoose Sep 2021 #21
Floyd, I can relate to this entirely True Dough Sep 2021 #6
Is she still early stage? wackadoo wabbit Sep 2021 #7
Sorry to hear hurl Sep 2021 #8
So horrible. I am sorry. Laffy Kat Sep 2021 #9
Heartbreaking. MLAA Sep 2021 #11
We are not living too long. We are all just suffering from poor allocation of resources. colorado_ufo Sep 2021 #13
I'm sorry, Floyd. brer cat Sep 2021 #16
Really Sorry... Snackshack Sep 2021 #18
So very sorry. I understand how you are feeling. 7wo7rees Sep 2021 #19
Dearest Floyd, Niagara Sep 2021 #22

LakeArenal

(28,827 posts)
1. When my dad was 93 the doctor told him he didn't see any reason why he wouldn't live to be 100.
Sat Sep 4, 2021, 09:28 PM
Sep 2021

My dad asked if he was sure.

Then Dad said, “ oh shit”.

C Moon

(12,218 posts)
17. I worked at a cemetery when I was in my early 20s.
Sun Sep 5, 2021, 12:18 AM
Sep 2021

We were talking about the afterlife, and one of the managers (60ish) popped up and said, “I hope there’s no afterlife—I’m tired!” And we all laughed. End of conversation.

Jim G.

(14,811 posts)
3. My BIL Passed Away Yesterday
Sat Sep 4, 2021, 09:44 PM
Sep 2021

I only met him a couple times but he was a real nice guy. He had the same kind of brain cancer that Beau Biden & Ted Kennedy had. He lived nearly two years after they removed the tumor, after they told them he had a year to 18 months. It's been rough on my sister though.


Jim G.

(14,811 posts)
12. Thanks
Sat Sep 4, 2021, 11:01 PM
Sep 2021

I probably shouldn't have posted it here though. I'm not trying to hijack Floyd's thread.






DFW

(54,414 posts)
14. My BIL died of glioblastoma, too
Sat Sep 4, 2021, 11:55 PM
Sep 2021

He was 51, and he fought it for 2 and a half years, which was 2 years longer than the surgeons to thought he would live. It’s a cruel cancer, since it has never been cured.

FakeNoose

(32,659 posts)
4. Alzheimer's dementia can be passed through families
Sat Sep 4, 2021, 09:47 PM
Sep 2021

... however it's not always inherited genetically.

If your brother-in-law suffers from Parkinson's, does that mean his wife is your sister?

True Dough

(17,312 posts)
6. Floyd, I can relate to this entirely
Sat Sep 4, 2021, 09:54 PM
Sep 2021

My wife's mother has been fighting Parkinson's for a remarkable 22 years (and she never underwent deep-brain stimulation). However, she's now 78 and falling daily, sometimes multiple times per day. It's taken more than a year of convincing but she now uses a wheelchair most of the time, which reduces the falls.

Her primary caregiver is her husband, who has worsening dementia. Fortunately, between them, they have four children within a 20-minute drive who can provide support. And there's a private caregiver in the picture now most days for about five hours.

It's heartbreaking many times, but there are still some beautiful moments. We're grateful for them, as rare as they've become.

All the best to you and yours.

wackadoo wabbit

(1,167 posts)
7. Is she still early stage?
Sat Sep 4, 2021, 10:15 PM
Sep 2021

A neurologist at UCLA has actually reversed Alzheimer's if it's still early stage. The one patient he tried his protocol on who was late stage didn't improve, though.

I'm so sorry for both of them and for you, too.

hurl

(938 posts)
8. Sorry to hear
Sat Sep 4, 2021, 10:31 PM
Sep 2021

My mom has some unspecified kind of dementia and is in a nursing home. The decline started slowly but has accelerated. She was in complete denial up to the point she just can't hold a thought that long anymore, so we have to figure out power of attorney.

I agree we weren't intended to survive in this condition, and I firmly believe my time in the haze is coming also.

colorado_ufo

(5,737 posts)
13. We are not living too long. We are all just suffering from poor allocation of resources.
Sat Sep 4, 2021, 11:49 PM
Sep 2021

Per President Biden: Afghanistan cost us $300 MILLION a DAY for 20 years! Every day, $300 million could have gone to find a cure for Alzheimer's. Next day, $300 million for Parkinson's. Next day, $300 million for better housing for seniors, and the next day $300 million for better lives for them. Next, $300 million for child care. How about an entire YEAR of $300 million dollar days to find cancer cures?

We only live too long when we only live for ourselves. There are always other people who need us, if for nothing more then what we have learned and the love we can give.

And - as much as possible, we need to take care of what we have. Ditch the cigarettes, get vaccinated, get up and move, eat good stuff and stop eating just for taste alone! Simple stuff. Can't (as of now) change genetics very much, but we can do the best we can with what we have.

brer cat

(24,579 posts)
16. I'm sorry, Floyd.
Sun Sep 5, 2021, 12:17 AM
Sep 2021

Neither of them have an easy future. I hope there is a strong support network in your family.

Snackshack

(2,541 posts)
18. Really Sorry...
Sun Sep 5, 2021, 12:23 AM
Sep 2021

To see this. Alzheimer’s is a soul crushing disease. Watching me become a complete stranger to someone I loved and had raised me was very difficult.

As for your last sentence.

Yes.

IMO- Once we are no longer capable to function or maintain a quality of life that we all have we should have the option to leave.

🕯🕯

7wo7rees

(5,128 posts)
19. So very sorry. I understand how you are feeling.
Sun Sep 5, 2021, 03:19 AM
Sep 2021

Wish for you all the best. It is very difficult.
Stay with DU, there are many here that can help.

Niagara

(7,632 posts)
22. Dearest Floyd,
Sun Sep 5, 2021, 11:02 AM
Sep 2021

I'm so sorry to read about this.



Please know that DU is only a keyboard away and here for you.



Hugs to you.


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