Welcome to DU! The truly grassroots left-of-center political community where regular people, not algorithms, drive the discussions and set the standards. Join the community: Create a free account Support DU (and get rid of ads!): Become a Star Member Latest Breaking News General Discussion The DU Lounge All Forums Issue Forums Culture Forums Alliance Forums Region Forums Support Forums Help & Search

Jilly_in_VA

(9,965 posts)
Sat Oct 30, 2021, 06:24 PM Oct 2021

My brother is in ICU

No, it's not Covid. He has some weird kind of encephalitis and the doctors can't figure out what is going on with him. He was admitted 2 days ago after a "subacute syndrome" of progressive short term memory loss, abnormally increased appetite, and some other weird symptoms including what his S/O referred to as "spells". He was found to have nonconvulsive seizure activity that got worse overnight and didn't respond to anticonvulsants. He was transferred to ICU and intubated to protect his airway because of the medication he required. Spinal tap didn't reveal an acute cause and a whole body CT didn't show any tumors. Doctors are stumped at this point. My other brother, an MD, is on his way. We are not confident of the possible outcome. This brother is the middle of the three of us.

Good thoughts, prayers to whatever gods you may worship, etc. would be appreciated.

50 replies = new reply since forum marked as read
Highlight: NoneDon't highlight anything 5 newestHighlight 5 most recent replies
My brother is in ICU (Original Post) Jilly_in_VA Oct 2021 OP
... alwaysinasnit Oct 2021 #1
praying for good news bluestarone Oct 2021 #2
Is he from VA as well? He has my very best wishes and you are all in my thoughts. hlthe2b Oct 2021 #3
He's in California Jilly_in_VA Oct 2021 #5
I'm glad he's at a good hospital. LisaM Oct 2021 #6
Yes. Ditto on Stanford. He should be in good hands. hlthe2b Oct 2021 #9
If Stanford can't fix him CountAllVotes Oct 2021 #16
Oh, Jilly. sheshe2 Oct 2021 #4
(((((((((((((Jilly))))))))))))) sending vibes for healing and strength and endurance for niyad Oct 2021 #7
Healing vibes on the way! 💗💗💗 SheltieLover Oct 2021 #8
Healing vibes sent......nt Heartstrings Oct 2021 #10
Oh Damn Yonnie3 Oct 2021 #11
My mom had the same symptoms BittyJenkins Oct 2021 #12
Having a dr. in the family Jilly_in_VA Oct 2021 #13
My heart I_UndergroundPanther Oct 2021 #29
I am so sorry to hear this Ruby the Liberal Oct 2021 #14
Speedy recovery for your brother MaryMagdaline Oct 2021 #15
Wishing the best for him, his SO & your whole family irisblue Oct 2021 #17
This message was self-deleted by its author irisblue Oct 2021 #18
Visualizing rapid and complete recovery for your beloved brother n/t KatK Oct 2021 #19
Did they check for tick borne illness or weird parasites? Greybnk48 Oct 2021 #20
+1 Dark n Stormy Knight Oct 2021 #44
My first thought. uberblonde Oct 2021 #49
All the best, and good thoughts, Jilly Hekate Oct 2021 #21
Keeping you and your family in my thoughts. momta Oct 2021 #22
Hope he gets well soon malaise Oct 2021 #23
Good thoughts to you. sinkingfeeling Oct 2021 #24
Healing thoughts for your brother. May The Universe guide the doctors in finding the problem and LoisB Oct 2021 #25
What you describe sunds very similar to what someone I know experienced ... Percy Oct 2021 #26
Best vibes your way...n/t bluecollar2 Oct 2021 #27
Sending prayers for your brother. gademocrat7 Oct 2021 #28
Sending good vibes your way. greatauntoftriplets Oct 2021 #30
May your brother get diagnosed I_UndergroundPanther Oct 2021 #31
Prayers for you and family and for the drs thinkingagain Oct 2021 #32
Best wishes oldtime dfl_er Oct 2021 #33
I will hope for the best for your brother. PoindexterOglethorpe Oct 2021 #34
good luck to all of you Hamlette Oct 2021 #35
Thinking about you all. marble falls Oct 2021 #36
Best wishes for all and excellent care & steady appalachiablue Oct 2021 #37
Hoping for the very best outcome, Jilly. femmedem Oct 2021 #38
Sending you the best thoughts I can muster ❤️ MLAA Oct 2021 #39
Your brother will be in my prayers LetMyPeopleVote Oct 2021 #40
Sending healing vibes MustLoveBeagles Oct 2021 #41
Sending good wishes KT2000 Oct 2021 #42
You bet, Jilly_in_VA! calimary Oct 2021 #43
Wishing him the best. Sending good vibes. Mad_Dem_X Oct 2021 #45
Best wishes to him! n/t PoliticAverse Oct 2021 #46
Big DU virtual hugs and love out to you and your bro, Jilly. KY_EnviroGuy Oct 2021 #47
Oh no! Hugs and prayers for your brother... LeftInTX Oct 2021 #48
My he make it through in good condition. )))healing vibes((( electric_blue68 Nov 2021 #50

CountAllVotes

(20,868 posts)
16. If Stanford can't fix him
Sat Oct 30, 2021, 07:08 PM
Oct 2021

No one can.

You've got him at the BEST hospital in the state of California.

I know, I used to work for UCSF!

I hope he recovers fully soon!



niyad

(113,275 posts)
7. (((((((((((((Jilly))))))))))))) sending vibes for healing and strength and endurance for
Sat Oct 30, 2021, 06:40 PM
Oct 2021

all of you. May the doctors discover the answers quickly.

Your DU family is here for you.

BittyJenkins

(409 posts)
12. My mom had the same symptoms
Sat Oct 30, 2021, 06:57 PM
Oct 2021

I took her to the Er. The doctor told me she was old and senile and asked I needed therapy.
I begged him to do a cat scan and he did. It turned out she had a colloid cyst in her ventricles.
They removed the cyst and put tubes in to help drain spinal fluid,
They said she would have died in a day if they hadn’t done surgery.
I hope your brother can help.
Nothing but good thoughts for all of you.

Jilly_in_VA

(9,965 posts)
13. Having a dr. in the family
Sat Oct 30, 2021, 07:01 PM
Oct 2021

is a definite help. I'm a nurse but neuro is definitely not my thing: I'm a cardiology kind of girl. There's a saying in medicine, "When you hear hoofbeats, think horses, not zebras." This seems to be a zebra kind of deal, but this brother is a zebra himself....he has situs inversus, meaning his insides are reversed....so I'm not surprised. As my daughter said, "When your insides are in a parallel universe..."

I_UndergroundPanther

(12,463 posts)
29. My heart
Sat Oct 30, 2021, 08:31 PM
Oct 2021

Tilts way to the left side of my chest.

Guess Im a born to be a liberal.😄

All kidding aside my heart is situated to the left.pretty far to the left too.

Response to Jilly_in_VA (Original post)

LoisB

(7,202 posts)
25. Healing thoughts for your brother. May The Universe guide the doctors in finding the problem and
Sat Oct 30, 2021, 07:44 PM
Oct 2021

fixing it.

Percy

(721 posts)
26. What you describe sunds very similar to what someone I know experienced ...
Sat Oct 30, 2021, 07:47 PM
Oct 2021

which was Lyme encephalitis from longstanding undiagnosed Lyme disease.

Hope you find the answers soon.

thinkingagain

(906 posts)
32. Prayers for you and family and for the drs
Sat Oct 30, 2021, 08:38 PM
Oct 2021

To be guide in the direction of healing.
Family is important at times like this regardless if in the same room or over the phone so it’s good it sounds like you are.

PoindexterOglethorpe

(25,849 posts)
34. I will hope for the best for your brother.
Sat Oct 30, 2021, 08:59 PM
Oct 2021

My own 78 year old older brother has been in an ongoing health crisis for nearly two months now. In and out of hospitals. A week ago today he was supposed to have surgery, but it was cancelled when he came down with a (to quote my sister-in-law) "raging infection". He's back home now, getting intravenous antibiotics.

In his case his mental state is normal, and he's in very good spirits. Still, he's not young, and the rest of us in the family are very concerned. Scans have shown two masses on one kidney, and a different kind of mass on the nearby adrenal gland. The doctors aren't very sure what's going on, but they've told him they are very concerned it might be cancer.

I think one lesson to be learned if only from your brother and mine, that there's a lot that's still unknown out there.

I'm one of six kids, all senior citizens now. My older sister died in 2017, and a younger brother last December. It's weird, because there were so many of us and for so long.





appalachiablue

(41,131 posts)
37. Best wishes for all and excellent care & steady
Sat Oct 30, 2021, 09:18 PM
Oct 2021

recovery for your brother. Pls. let us know how it goes. (((hugs)))



femmedem

(8,201 posts)
38. Hoping for the very best outcome, Jilly.
Sat Oct 30, 2021, 09:29 PM
Oct 2021

As others have pointed out, he's in a great hospital and your brother will be a great advocate for him.

I hope you are able to get some rest tonight and that things look better in the morning.

KY_EnviroGuy

(14,490 posts)
47. Big DU virtual hugs and love out to you and your bro, Jilly.
Sun Oct 31, 2021, 12:30 PM
Oct 2021

Hoping for a positive outcome and speedy recovery.

Please keep us posted on his progress when you can.

KY....... .......

Latest Discussions»The DU Lounge»My brother is in ICU