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debm55

(61,677 posts)
Tue Nov 7, 2023, 01:47 PM Nov 2023

Question--has anyone had a spinal tap. I am scheduled to see the neurologist on Thursday. The results from my electro

prop test came back abnormal. I have been waiting for this appointment since July and I am not looking forward to it. Thank you. deb

48 replies = new reply since forum marked as read
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Question--has anyone had a spinal tap. I am scheduled to see the neurologist on Thursday. The results from my electro (Original Post) debm55 Nov 2023 OP
yeah, many decades ago - worst experience of my life.... getagrip_already Nov 2023 #1
Oh no. debm55 Nov 2023 #3
I had one 5 to 7 years ago. No big deal. Jack from Charlotte Nov 2023 #36
They called me yesterday for all the paperwork I needed. debm55 Nov 2023 #39
Good luck at the appointment...only advice... CincyDem Nov 2023 #2
Why? debm55 Nov 2023 #4
Sorry - a cultural reference to the movie "This is Spinal Tap". CincyDem Nov 2023 #7
Damn, you beat me to it. Redleg Nov 2023 #11
Bagnell Dam it, you both beat me to it. GreenWave Nov 2023 #13
I understand. No need to say sorry. I saw the movie too. debm55 Nov 2023 #17
It is not bad as diagnostic tests go. Big Blue Marble Nov 2023 #5
Like i said..... getagrip_already Nov 2023 #6
Yes I remember. Big Blue Marble Nov 2023 #10
Thank you. I had 70 of the electro props, on my legs and spine and they hurt like hell. I didn;t cry through. I just debm55 Nov 2023 #12
Thank you,friend. debm55 Nov 2023 #18
Thank you.Big Blue Marble. debm55 Nov 2023 #14
I remember being told headaches were possible afterward..... Jack from Charlotte Nov 2023 #38
Not exactly but I've had the steroid shots in the lumbar captain queeg Nov 2023 #8
Thank you captain queeg. I was wondering if they numb it? debm55 Nov 2023 #15
Yeah a local, sort of like Novocain. captain queeg Nov 2023 #19
That's good to know. TY. debm55 Nov 2023 #27
I had the nerve things happen to me twice. It felt like a bolt of lightening went through me. 1WorldHope Nov 2023 #35
Like I said, there were 70 of those electro thing. Person kept yelling at me to relax and it was only going to hurt if debm55 Nov 2023 #40
I understand completely. After the 2nd spinal, an MRI, CT scan, blood work every half hour. No food for 2 days... 1WorldHope Nov 2023 #44
No but I saw the movie Redleg Nov 2023 #9
Thank you Redleg. I know the movie--This is spinal tap and I knew I would get some mention to the movie.. It's okay. debm55 Nov 2023 #16
You are the nicest person here at DU! Good luck with the procedure. Redleg Nov 2023 #21
I have. Ages ago. bamagal62 Nov 2023 #20
I am so sorry to hear that about the meningitis. debm55 Nov 2023 #22
Thanks! It was a bamagal62 Nov 2023 #24
I have a lump on the base of my spine and my legs are numb and keep falling. Mind you I had the first test done in July. debm55 Nov 2023 #26
Oh no. I am so sorry bamagal62 Nov 2023 #41
Same. Mine was viral also. I was in the hospital 3 days, iirc. This was 29 years ago. Raftergirl Nov 2023 #30
Never had one so no 1st hand experience...here's a couple of sources from google with info. Fla Dem Nov 2023 #23
Thank you, The hardest medical test I had was for infertility, I had a biopsy done with nothing to nom my insides. He debm55 Nov 2023 #25
Had it, don't remember it. sakabatou Nov 2023 #28
I hope mine goes that way. TY debm55 Nov 2023 #31
Uh... I don't think you want it to go that way sakabatou Nov 2023 #46
I had one several years ago - no big deal Abnredleg Nov 2023 #29
Never had an epidural. I hope all goes well. Thank you. debm55 Nov 2023 #32
Much respect on the epidurals! ggma Nov 2023 #33
The Doc used an X-ray machine Abnredleg Nov 2023 #37
No experience here, ggma Nov 2023 #34
hurt less than a shot in the arm. EmeraldCoaster Nov 2023 #42
So far, I haven't had a spinal tap. Niagara Nov 2023 #43
Yes. Quite Uneventful, Actually ProfessorGAC Nov 2023 #45
Good luck today, hope all goes well. Fla Dem Nov 2023 #47
I have had a dozen or so, no big deal. Rop LiberalLoner Nov 2023 #48

getagrip_already

(17,802 posts)
1. yeah, many decades ago - worst experience of my life....
Tue Nov 7, 2023, 01:49 PM
Nov 2023

Felt like I was going to die afterwards. I have never been in that much pain.

Listen to what they tell you about drinking fluids and staying still after. It isn't a joke.

Jack from Charlotte

(2,372 posts)
36. I had one 5 to 7 years ago. No big deal.
Tue Nov 7, 2023, 05:48 PM
Nov 2023

Lots of places I'd rather have been but there wasn't any big pain like sticking a hot shish kebab into my spine. I'm not that brave either and am very squeamish. Didn't your doc tell you what to expect?

Oh and it cost me some co payment but not huge. $80 or $100, maybe. My UHC Medicare Advantage paid the big part of the bill.

CincyDem

(7,410 posts)
2. Good luck at the appointment...only advice...
Tue Nov 7, 2023, 01:50 PM
Nov 2023


...if he says "we're gonna turn it up to eleven!" run, don't walk away.

CincyDem

(7,410 posts)
7. Sorry - a cultural reference to the movie "This is Spinal Tap".
Tue Nov 7, 2023, 01:56 PM
Nov 2023

It's a mockumentary about a heavy metal band.

One of the catch phrases from the movie, indicating that no matter how loud it was, they wanted it louder, was "turn it up to 11"...since, at the time, the volume control on all amps was a 0-10 dial.

So...when I think spinal tap, I think turn it up to 11.

Apologies. Sorry to make light of the concerns you've got going into the week. Thought it might be a little lightness.

Big Blue Marble

(5,708 posts)
5. It is not bad as diagnostic tests go.
Tue Nov 7, 2023, 01:51 PM
Nov 2023

I had one years ago. The main thing I remember were the headaches afterward.
They lasted a few days when you are sitting or standing. Plan to spend some time
reclining and you will be just fine.

getagrip_already

(17,802 posts)
6. Like i said.....
Tue Nov 7, 2023, 01:56 PM
Nov 2023

Drink plenty of fluids and get plenty of rest on your back. The headaches come from too little spinal fluid and you need to give your body time to replenish it.

Big Blue Marble

(5,708 posts)
10. Yes I remember.
Tue Nov 7, 2023, 02:03 PM
Nov 2023

I felt fine as long as I was prone. Stand up and the pressure was intense on top of my head.

debm55

(61,677 posts)
12. Thank you. I had 70 of the electro props, on my legs and spine and they hurt like hell. I didn;t cry through. I just
Tue Nov 7, 2023, 02:06 PM
Nov 2023

kept counting. and waiting for the shock to stop.

Jack from Charlotte

(2,372 posts)
38. I remember being told headaches were possible afterward.....
Tue Nov 7, 2023, 05:51 PM
Nov 2023

I didn't have any. So probably like vax side effects, some do and some don't.

captain queeg

(11,780 posts)
8. Not exactly but I've had the steroid shots in the lumbar
Tue Nov 7, 2023, 01:57 PM
Nov 2023

I assume that’s similar though they are putting something in rather than taking something out. They’ll give you that jazz about it being “uncomfortable” which it mostly is. But one time the doc hit a nerve and I almost jumped off the table. Just a short burst of pain but probably the worst I’ve ever felt for a few seconds.

1WorldHope

(2,152 posts)
35. I had the nerve things happen to me twice. It felt like a bolt of lightening went through me.
Tue Nov 7, 2023, 05:42 PM
Nov 2023

I asked for meds before the second one. Same results.
However I have seen many women beg for a spinal during labor. They didn't seem to mind. There are a lot of variables. Good luck. Don't be afraid to ask for something to relax you.

debm55

(61,677 posts)
40. Like I said, there were 70 of those electro thing. Person kept yelling at me to relax and it was only going to hurt if
Tue Nov 7, 2023, 05:59 PM
Nov 2023

tensed up. Didn't know I was getting it until I walked in room. I was pissed.

1WorldHope

(2,152 posts)
44. I understand completely. After the 2nd spinal, an MRI, CT scan, blood work every half hour. No food for 2 days...
Tue Nov 7, 2023, 09:01 PM
Nov 2023

The neurologist told me that I probably had MS. The only way to know, he said, is when it hits you again.
He was wrong. I didn't have MS. Although, I was lead to believe I did. It messed me up for 6 months. I studied up on MS like a master's thesis. It never happened again. In the end, I think it was a migraine that messed with an optical Nerve. I felt like I had been tortured. Not water boarded, but, I did feel like I needed to escape. The more people in the room with you on your side the better. I wish you well. Kick ass and take down names. 🙏

Redleg

(7,026 posts)
9. No but I saw the movie
Tue Nov 7, 2023, 02:02 PM
Nov 2023

I couldn't pass up the opportunity. Probably not in good taste. Anyway, good luck with the procedure.

debm55

(61,677 posts)
16. Thank you Redleg. I know the movie--This is spinal tap and I knew I would get some mention to the movie.. It's okay.
Tue Nov 7, 2023, 02:14 PM
Nov 2023

bamagal62

(4,556 posts)
20. I have. Ages ago.
Tue Nov 7, 2023, 03:20 PM
Nov 2023

But, I had meningitis and the headache from the meningitis was so bad, I never even noticed the spinal tap!

bamagal62

(4,556 posts)
24. Thanks! It was a
Tue Nov 7, 2023, 04:19 PM
Nov 2023

viral, not bacterial. So, it wasn't as dangerous. BBut, the pain was excruciating. I was in college. In hospital for 2 weeks, if I am remembering correctly.

debm55

(61,677 posts)
26. I have a lump on the base of my spine and my legs are numb and keep falling. Mind you I had the first test done in July.
Tue Nov 7, 2023, 04:29 PM
Nov 2023

And this is how long it has taken . I am glad you are better. and so very sorry you had to go through all that. Bless you.

bamagal62

(4,556 posts)
41. Oh no. I am so sorry
Tue Nov 7, 2023, 06:09 PM
Nov 2023

That you have had to wait so long. I am hoping that all goes well and you are better soon. Don’t worry about the spinal tap. It’s better to go through that and get some answers. ❤️🙏🏻❤️

Raftergirl

(1,862 posts)
30. Same. Mine was viral also. I was in the hospital 3 days, iirc. This was 29 years ago.
Tue Nov 7, 2023, 04:46 PM
Nov 2023

What I was shocked about was the second I mentioned I had an excruciating headache they took me immediately into an exam room and immediately began to do a work up. I think they did a brain scan first and when that came back normal I had the spinal tap, it also took several hours before they knew it was viral and not bacterial. Right after the tap I was moved to a private room in the hospital.

Viral meningitis can be pretty debilitating, but it won’t kill you.

debm55

(61,677 posts)
25. Thank you, The hardest medical test I had was for infertility, I had a biopsy done with nothing to nom my insides. He
Tue Nov 7, 2023, 04:25 PM
Nov 2023

called an tech in who laid across me so I wouldn't move. It was hell. I will look up your links. I thank you from the bottom of my heart for doing it for me. Love, Debbie

sakabatou

(46,331 posts)
46. Uh... I don't think you want it to go that way
Tue Nov 7, 2023, 11:28 PM
Nov 2023

As I had brain damage. Still do, and I can barely remember the last two or three days in the ICU.

Abnredleg

(1,266 posts)
29. I had one several years ago - no big deal
Tue Nov 7, 2023, 04:41 PM
Nov 2023

They numbed me and I didn't feels anything. I've also had five epidurals and that wasn't a big deal either.

ggma

(711 posts)
33. Much respect on the epidurals!
Tue Nov 7, 2023, 05:04 PM
Nov 2023

First one was so bad I had my two younger kids natural.

gg

Abnredleg

(1,266 posts)
37. The Doc used an X-ray machine
Tue Nov 7, 2023, 05:48 PM
Nov 2023

On both the tap and epidurals. This allowed him to precisely guide the needle.

Niagara

(12,121 posts)
43. So far, I haven't had a spinal tap.
Tue Nov 7, 2023, 07:15 PM
Nov 2023

I've had an arthrogram done about 20 years ago, if they tell you not to move ...don't move!



Wishing you a speedy procedure and recovery, Debbie!

ProfessorGAC

(77,270 posts)
45. Yes. Quite Uneventful, Actually
Tue Nov 7, 2023, 09:18 PM
Nov 2023

The neuro who did it had a reputation for being especially good at this.
It was the final step in the MS diagnosis, looking for very specific antibodies & proteins.
I felt nearly nothing. A very slight "pulling" sensation when he was removing the needle.
The hardest part for me was lying flat on my back in the recovery room for 90 minutes.
I've heard about people getting severe headaches from the change in fluid pressure, but that didn't happen to me.
I put the seat all the way back for the ride home, minimal movement for an hour or 2.
My procedure was at 4pm. By 9pm, it was like it never happened.

LiberalLoner

(11,467 posts)
48. I have had a dozen or so, no big deal. Rop
Thu Nov 9, 2023, 07:47 PM
Nov 2023

Just make sure you sort of bend over in a good curve, like hunched over, to give them plenty of room.

I would rate a spinal tap or epidural as somewhere between a flu shot and a Novocain dental injection in discomfort. It’s over fast.

The idea of it is way scarier than the reality.

Best of luck and good health to you.

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