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csziggy

(34,189 posts)
Thu Jun 6, 2024, 05:58 PM Jun 2024

Saw my cardiologist today and got news and bad news - and good news

The back story - Last December I had an echo cardiogram which had my doctor send me for a CT scan. They found a thrombus (aka clot) on my aortic valve - which had been replaced via TAVR (TransArterial Valve Replacement) in 2017. So they put me on warfarin to dissolve the clot.

The night of January 5, I couldn't breath when I laid down to go to sleep. My husband headed us towards the hospital but on the way we stopped at the local fire station and they called an ambulance. I passed out before it got there. I woke up in the hospital the next day, intubated and doped up. Spent four days total there.

While there, to cardiothoracic surgeon who oversaw my TAVR stopped by. He told me about 10-15% of TAVR patients get clots. If the clots don't respond to warfarin, they have to do open heart surgery since they can't take the chance of breaking the clot loose which could cause havoc somewhere else in the system. Goody.

Yesterday I got another echo cardiogram. Today was the followup to all of that. The good news is that the clot is gone. The bad news is that the aortic valve is no longer working right and leaking so I am back to where I was before they replaced it.

The other good news is that they can do another TAVR and put in a new aortic valve! But I have to get additional tests before that can happen. So I am not sure when anything is happening.

20 replies = new reply since forum marked as read
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Saw my cardiologist today and got news and bad news - and good news (Original Post) csziggy Jun 2024 OP
eek and good . AllaN01Bear Jun 2024 #1
THE GOOD NEWS Dan Jun 2024 #2
What an ordeal! 2naSalit Jun 2024 #3
Awww, fingers crossed for you, csziggy blm Jun 2024 #4
Stay strong, csziggy. You're an inspiration. LuckyCharms Jun 2024 #5
TAVR's are like Russian Nesting Dolls, another thru the groin, yours lasted a decent time Shellback Squid Jun 2024 #6
That's a lot to take in. Fla Dem Jun 2024 #7
It is barely even a surgery, so I'm not worried about that part csziggy Jun 2024 #8
Regardless, all the best to you. Fla Dem Jun 2024 #12
Hoping all goes well going forward and no more clots next time around. Solly Mack Jun 2024 #9
Wish you the best, csziggy. Take care. Love Debbie debm55 Jun 2024 #10
All I can do is send everything positive your way...... a kennedy Jun 2024 #11
Notice to her many Friends csziggy Oct 2024 #13
I am so sorry... GiqueCee Dec 2024 #15
You may not know, but we didn't see your post until now. Dem2theMax Dec 2024 #16
I am so sorry. csziggy was a good egg. Solly Mack Dec 2024 #18
i just found out this very sad news tonight orleans Dec 2024 #19
We just found out. I'm so sorry. LeftInTX Dec 2024 #20
My sympathies to you mercuryblues Dec 2024 #14
I remember her Figarosmom Dec 2024 #17

2naSalit

(98,957 posts)
3. What an ordeal!
Thu Jun 6, 2024, 06:11 PM
Jun 2024

Glad you're okay and that future maintenance is possible to fix the problem.

Fla Dem

(27,308 posts)
7. That's a lot to take in.
Thu Jun 6, 2024, 07:01 PM
Jun 2024

I know you've been through it before so at least you know what to expect with the surgery and recovery process.

All good wishes the replacement surgery goes well.

csziggy

(34,189 posts)
8. It is barely even a surgery, so I'm not worried about that part
Fri Jun 7, 2024, 02:14 PM
Jun 2024

They sedate you - no anesthesia - and do the procedure while you're sort of awake. You get to feel odd sensations in your chest while they are doing stuff. But I can deal with that.

Recovery is easy - just get used to have 100% blood flow rather than 40%.

a kennedy

(34,868 posts)
11. All I can do is send everything positive your way......
Fri Jun 7, 2024, 05:38 PM
Jun 2024

Prayers, vibes, wishes, healings, and hopes for excellent results.

csziggy

(34,189 posts)
13. Notice to her many Friends
Sun Oct 20, 2024, 10:01 AM
Oct 2024

I am her husband. This note is to announce she has had a heart attack and could not be revived Monday Oct 7 2024. I got her started with my family's history of political action. She was very active in local national campaigns.

GiqueCee

(3,042 posts)
15. I am so sorry...
Sat Dec 28, 2024, 09:16 PM
Dec 2024

... to see news of your wife's sudden passing. She lives on in your memories of her. Stay well.

Dem2theMax

(11,005 posts)
16. You may not know, but we didn't see your post until now.
Sat Dec 28, 2024, 09:46 PM
Dec 2024

I am so sorry for the loss of your beloved wife. I really enjoyed her posts here on DU. She was a valued member of our family as well. My sincerest sympathies to you and your entire family.

Solly Mack

(96,084 posts)
18. I am so sorry. csziggy was a good egg.
Sat Dec 28, 2024, 10:40 PM
Dec 2024

I'm especially sorry I didn't see this until now.

orleans

(36,544 posts)
19. i just found out this very sad news tonight
Sat Dec 28, 2024, 11:19 PM
Dec 2024

when kali posted and it made the front page of du
https://www.democraticunderground.com/10182118006#

i am so deeply sorry for your loss
and our loss too

i have thought about her, wondered why i hadn't seen more of her posts lately but i just thought that she, like so many others, decided to take a break from politics after the election

if you left here after you posted back on october 20 thinking we didn't care enough to respond to you i am really sorry. that isn't true, we didn't see what you had written, otherwise i'm sure there would have been many people replying, sending their love and sympathy to you and her family.

with light and love for csziggy
and heartfelt condolences for you,
orleans

Figarosmom

(9,112 posts)
17. I remember her
Sat Dec 28, 2024, 09:59 PM
Dec 2024

Last edited Sat Dec 28, 2024, 11:07 PM - Edit history (1)

She's had valve replacements. I remember that because my Mom had valve replacements too.

It makes me sad that her husband was left thinking no one here cared because we missed the post he left.

Hope he does check back. REST IN PEACE csziggy

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