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Related: Culture Forums, Support ForumsIMAGE: My skull, sliced open, brain removed, view from the inside looking toward the hole in my head
Some of you might remember that last May I suffered a SAH, was airlifted to Stanford, had a seizure and surgery and totally dodged a fatal bullet.
Lucky me, my surgeon is the best in the country, maybe the world, Gary Steinberg. He invented modern brain surgery.
In June they determined there was infection and opened me up and then later in November they went in again and removed the bone flap, which was necroptic and septic and icky, they tell me.
On March 31 the will insert a bone flap made of polyetheretherketone. I hope this will be my last surgery. The post-op pics of staples and stitches and such are not pretty but this pic is COOL, I got it on Monday!
Note the crescent shaped area where my temple should be, that 4cm x 6cm area will be filled with a computer created filler piece.

Does that hole in my head make my ass look big?
Kali
(56,829 posts)OK, while we seem to be on a similar medical timeline, yours is uh...a bit more dramatic!
finally doing my leg surgery next Thursday, no foreskins so far either
just going to remove some scar tissue and see if that gets things going again.
that is a way cool image, I need to see if I can get a digital copy of my stuff
NYC_SKP
(68,644 posts)What would MFM say?
Seriously, what would he say?
I'll be thinking of you Thursday.
femmocrat
(28,394 posts)Your positive outlook probably helped in your healing. Best wishes on your next and LAST surgery!
NYC_SKP
(68,644 posts)Outlook and attitude are everything!
Blue_Tires
(57,596 posts)Take your heathen mysticism elsewhere
NYC_SKP
(68,644 posts)And it's like it's right there in front of me.
Somewhat unsettling!
steve2470
(37,481 posts)NYC_SKP
(68,644 posts)And thanks, Obama!
Covered California, though imperfect, paid the lion's share of the close to a million dollars in costs.
MADem
(135,425 posts)interchangeable?
How wonderful that you survived!
NYC_SKP
(68,644 posts)Yes to subarachnoid hemorrage, followed by a debridement with PICC line, then a bone flap removal.
The cool part was how good I felt the day after the necroptic dead chunk of skull was removed. In the recovery ward they thought I was high because I was so exuberant and happy.
When there's something dead in yer head it brings ya down!
MADem
(135,425 posts)I really am delighted for you!
And I can totally understand how you felt about the euphoria--it probably felt like a great weight was lifted off your shoulders~!
LiberalFighter
(53,544 posts)At least you had something that was fixable.
mackdaddy
(1,976 posts)on a lighter note, It is a good thing they removed the "necroptic dead chunk of skull" next to your brain, or you might have had an overwhelming urge to vote Republican.
In_The_Wind
(72,300 posts)These trips into the operating room must be getting boring to you by now. So. Here's what I'm prepared to do: crossing all fingers, arms and legs as often as possible for good luck so that you won't need another operation.
[img]
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NYC_SKP
(68,644 posts)I got some Stanford swag on sale in the gift shop, too, and several staff and I are on a first name and hugging basis.
It's true!
redwitch
(15,261 posts)My goodness you have had some amazing stuff going on, glad it is nearly over and you are doing so well.
Liberal_in_LA
(44,397 posts)NYC_SKP
(68,644 posts)sheshe2
(97,627 posts)NYC_SKP
(68,644 posts)And he replied, "So you can smell the shit but you can't smell the roses!"
And I said, yeah!
Actually, I'm hoping for it to come back, so many things smell good!
druidity33
(6,915 posts)anosmic, as in you are anosmic because you don't have a sense of smell. Or anosmia as the condition. Maybe you're "near anosmic"?
http://en.wikipedia.org/wiki/Anosmia
NYC_SKP
(68,644 posts)Although traumatic anosmia sounds right too.
http://en.wikipedia.org/wiki/Hyposmia and can be caused by head trauma.
I had a girlfriend who at age 20 came off a motorcycle, banged her head, and lost her sense of smell, too!
CaliforniaPeggy
(156,619 posts)Best of luck for your final (we hope!) surgery and recovery!
We cannot afford to lose you..........you are important!
NYC_SKP
(68,644 posts)There's much work to be done, I'm done with this world yet, dammit!
UTUSN
(77,795 posts)NYC_SKP
(68,644 posts)Unknown Beatle
(2,691 posts)the unforeseeable future and beyond.
ETA: Glad everything is okay.
NYC_SKP
(68,644 posts)That's got to mean something!
840high
(17,196 posts)lovemydog
(11,833 posts)Haha, just kidding. Glad you're alive. Amazing what doctors can do.
WillyT
(72,631 posts)jtuck004
(15,882 posts)left when you pull the trailer hitch, about that size, though you could file it down Some have your favorite sports team.
You might save a few bucks by getting one, probably cheaper than the one at the hospital. And if you don't like what they have on it, you could repaint it or glue on a pic of your favorite dog?
Sounds like you are in very good hands.
TexasTowelie
(127,350 posts)They discussed artistic, ethical and medical uses of 3D printing. One of the exhibits shown was a 3D digital sculpture of a human skull.
NYC_SKP
(68,644 posts)I've printed things and even built CAD CAM equipment, but I'm still not sure if this PEEK piece is cut from a block of stock, or created in an additive fashion.
I only learned the name of the material on Monday. (off to check the internet)
OK, Polyetheretherketone is a thermoplastic and can be injection molded, but I doubt that they build a unique mold for each patient.
I also doubt that they'd use it in a 3D printer that uses stock from a spool, the tolerances aren't there unless it's one hell of a machine.
I lean toward subtractive milling from a block.
If you know any more about this I would be fascinated to learn. Maybe I'll ask them about it the morning of surgery or in post-op.
http://www.medicalpeek.org/pub_reports/view/182
Hi:
secondwind
(16,903 posts)cab67
(3,749 posts)that the one thing you can never actually see is your own skull. And I stand by that, with the reservation that one's skull can be imaged (which is a different thing).
Dont call me Shirley
(10,998 posts)How did you get this SAH? It looks and sounds terrifying. Good thing you're an upbeat person, that helps with those way too many visits to the various medical establishments. If I could have taken an actual trip for each medical visit, I could have seen the world by now. Good healing vibes to you.
NYC_SKP
(68,644 posts)Change in employment led to change from expensive COBRA to affordable Obamacare, but I failed to renew my medications.
One warm day after working too much and eating too little, after walking my girlfriend's dog downhill to the beach and back I passed out and the dizziness wouldn't go away.
Thankfully, it was a small, not massive, bleed and caught at the local hospital and communicated to the nearest high-end surgical center, Stanford University Medical Center.
Thanks.
Dont call me Shirley
(10,998 posts)BlancheSplanchnik
(20,219 posts)I actually didn't know what all happened to you, NYC-SKP
Wow. What great good fortune that you're here!
NYC_SKP
(68,644 posts)The day I keeled over.
Have you seen them on my FB page? Loree and Millie?
BlancheSplanchnik
(20,219 posts)I'll have to go say hi.
BIG
bearssoapbox
(1,408 posts)So glad that you're doing better and sending good vibes for the healing.
Just in case...for the icky. Also goo, if needed.

TexasTowelie
(127,350 posts)mountain grammy
(29,035 posts)and you're still around. That's amazing.. Thank good care, thank good medicine, thank science.
NYC_SKP
(68,644 posts)I'm very fortunate in many ways.
Thanks, mountain granny!
slumcamper
(1,787 posts)My sub-arachnoid hemorrhage occurred in 2003. Surviving the initial rupture was half the battle, but remarkably I was conscious and cogent. Prior to surgery I asked what my chances of survival were; 50% survive the surgery, and of those less than 5% recover with no deficits (not good odds). Staring in the face of mortality and contemplating the worst, I decided that I might as well leave something behind so I elected to participate in an International Hypothermic Aneurysm Surgery research study. My body temp was lowered to 94 degrees and I underwent surgery. After 4 days in ICU and another 3 weeks in the recovery, I went home. Incidentally, my uncle died in the mid-70s at age 32 of this same condition. That certainly imbued me with perspective.
I'm not familiar with the "bone flap." As far as I understand, Dr. Traynelis at U of Iowa used the cranial bone but repaired it with a special glue after he installed an arterial clip deep inside my brain.
Survival sure changes a person's life--in both good and not so good ways. You likely relate to that. Everyone is a bit different but my first challenge was overcoming guilt--remorse at times--in having had such a miraculous recovery while others--roommates nonetheless--fared poorly or died ("miracle man" the staff at the neurosurgery ward called me). Then, once home, everything small seemed so much larger than life; the intensity of such newfound appreciation was over the top. I was manic. Hardly slept. I became a diet and exercise fanatic but partied all night. 2-3 hours sleep was fine.
Long story...I've thrived in my job in educational testing and measurement. My creativity was unlocked and flourished in new ways and directions as my brain repaired itself. Most importantly, my marriage remained intact (although not without stresses) and my children have grown and are wiser for it all. I'm now a grandpa (soon to be twice over)! I'm so thankful for the lease on life that expert medical treatment afforded me.
I'm so thankful for your recovery SKP. It's the exception to the rule, and sometimes a person feels alone. So if you ever want to chat about it, drop me a line.
Peace!
NYC_SKP
(68,644 posts)IIRC, the odds called in my case were 1/3 don't make it at all 1/3 recover pretty well, 1/3 live but have losses.
My only loss is the sense of smell. I was able to keep my job but my girlfriend and I are now broken up.
The term "bone flap" is odd. I don't know if they remove it altogether and put it back, or if they somehow hinge it during surgery, but it's called the flap.
No glue was involved, there were little titanium stars and screws to hold it in. I didn't need a clip or a coil, they said they "wrapped" the damaged vessel, it was a really low level bleed.
In my case, the infection that followed was really the problem. I was approached after the second surgery and asked to participate in a C-Diff trial and I agreed, so I'm a few months into a three year study for a remedy for this terrible and persistent infectious disease.
I was happy to give back.
I hope we can stay in touch. Thanks for the offer!
Joe Shlabotnik
(5,604 posts)well maybe space for rent... But then again solid social justice intentions, and liberal credentials don't easily show up on a brain scan. Oh well, if its vacant can I fit my hot tub in there? Otherwise....... best wishes man!
keep making good use of that thing.
PS the temple should be wherever you are. om.
Tuesday Afternoon
(56,912 posts)do what?
anyway ... Wowser, dude !!
and what exactly is poly double ether ketone?
oh ... who cares. I am just happy for you that this is all for real and you are on your LAST surgery. It WILL be a success. I just know it.
NYC_SKP
(68,644 posts)State of the art done at Stanford, all 3D and with shading and shadows and the ability to turn the image on the screen it's almost like a hologram or virtual reality.
The material, AKA "PEEK" was developed as a way to avoid using cadaver bone or bone grafts which can become infected or rejected.
This new material is resistant to infection and easy to make into the desired shape. They asked if I wanted to use my own bone and I said no thanks.
Tuesday Afternoon
(56,912 posts)gulp.
I have no problems. I just thought I did. Nope, no problems here at all.
Fairgo
(1,571 posts)Life is mostly style, and you've got plenty. Best wishes with next steps.
greatauntoftriplets
(179,005 posts)Best of luck with the surgery!
NYC_SKP
(68,644 posts)I have kept the medical stuff off my Facebook, mostly.
Thank you for the well wishes!
greatauntoftriplets
(179,005 posts)You're welcome.
sdfernando
(6,084 posts)I had a large but very slow growing fibrous displasia (kinda like a benign tumor) growing in the area above the left ear. The Doc removed a large doughnut sized area extending almost from the temple, and around the ear to almost the base of the skull. He said he couldn't remove it all because there was too much risk of slicing critical nerves down there. Anyway, I have a titanium mesh keeping what little brains I have from spilling out. I've seen the CT Scans and it is weird seeing your skull...especially with a bit piece missing.
Glad you pulled through and are OK. Really scary when you get your head worked on!
NYC_SKP
(68,644 posts)I'm not alone!
sdfernando
(6,084 posts)You went through much worse. Mine was only the tumor in the skull....yeah they cracked my head open but didn't go inside or do any brain surgery...just removed the skull tumor.
What you went through sounds like much bigger ordeal...and I'm very glad you are doing well now.
cherokeeprogressive
(24,853 posts)GLAD you're going to be A OK.
NYC_SKP
(68,644 posts)We have the technology!
cherokeeprogressive
(24,853 posts)My cranium, inside MY ass, sliced open... brain intact (rolls around like a bb in a boxcar) from the inside, looking toward, well you get the picture.
hrmjustin
(71,265 posts)Remind me as we get closer so we can do a prayer thread for you in the Prayer circle.
NYC_SKP
(68,644 posts)Tuesday the 31st I'm going in for head surgery #4!
#3 went really well-- they're getting better at it!
hrmjustin
(71,265 posts)we will do a prayer circle thread for you.
Surya Gayatri
(15,445 posts)NYC_SKP
(68,644 posts)I think it will go very well!
Kali
(56,829 posts)got my little thing done on Thursday. Hope yours goes as well heals fast and uneventfully!
NYC_SKP
(68,644 posts)I never knew how serious a problem infections are in hospitals.
In any event, you and I need to hang around for a while, right?
There's work to be done!
Who has time for this other shit?
Kali
(56,829 posts)keep us updated as soon as you are able!
and yeah, my thing is so minor compared to yours but what a pain in the ass waste of time, energy, and $$$ it has been. So glad for Obamacare, but tired of it all at the same time, as you well know.
bananas
(27,509 posts)In_The_Wind started a Good Vibes thread for you today:
In_The_Wind Mon Mar 30, 2015, 04:57 AM
~ ~ ~ Requesting vibes for NYC_SKP ~ ~ ~
<snip>
What a doll, a DU treasure!
And thank you, bananas!
sheshe2
(97,627 posts)Best vibes coming at you, SKP.
SoapBox
(18,791 posts)Got to see this as it was linked from In_The_Wind's post.
I think your ass probably looks fine.
Tuesday Afternoon
(56,912 posts)Arugula Latte
(50,566 posts)You are in good hands ... best wishes for a fast recovery!
elleng
(141,926 posts)Your ass has always looked PERFECT, SKP!!!
Doctor_J
(36,392 posts)best of luck
KoKo
(84,711 posts)here's some more:
berni_mccoy
(23,018 posts)Heal fast and well, and may your pain be small and pass quickly.
Voice for Peace
(13,141 posts)love love love your skull with the hole in it.
They ought to install some high tech gadgetry in there.. like Seven of Nine.
best of luck tomorrow!!!!
NYC_SKP
(68,644 posts)And I've asked staff to take a picture of the actual implant unit before it's put in.
It goes in and is kept in place by titanium "stars" and screws.
JustABozoOnThisBus
(24,681 posts)Either way, recover well!
NYC_SKP
(68,644 posts)They're so nice. I've asked for a pic of the actual implant before they put it in, and they will try but need surgeon's approval.
They did send this pic, tho:

I Fucking Love Science!
Aerows
(39,961 posts)makes you look brave!
NYC_SKP
(68,644 posts)Just roll 'em up and stuff 'em in there!
sakabatou
(46,148 posts)villager
(26,001 posts)You need to come back and keep arguing for your myopic gun views!
Or, as you would have it, keep arguing with me about mine!
Outside of all the stuff we agree on, of course.