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Solly Mack

(96,268 posts)
Mon Feb 15, 2016, 06:23 PM Feb 2016

Just to let everyone know...

Got my latest scan results

Still no sign of cancer. My radiation oncologist released me from care today, as well.

I'll still go to my maxillofacial surgeon every six months, but a lot of what they both do is redundant anyway. I'll get my future scans through my surgeon and should anything arise, I'll deal with it then.

I was surprised to be released. A little worried, but then fewer visits means less travel. I have to travel 100 miles for one doctor and over 300 miles for the other.

I suffer from lymphedema but I can get that treated locally. Mainly massages and compressions, with pain medicine when it gets too bad.

But - the good news still remains: Cancer has not returned after 2 years.

Love you all!

Solly

47 replies = new reply since forum marked as read
Highlight: NoneDon't highlight anything 5 newestHighlight 5 most recent replies
Just to let everyone know... (Original Post) Solly Mack Feb 2016 OP
that's the best news I've heard all day and brought the biggest smile to my face. NRaleighLiberal Feb 2016 #1
Thanks, NRaleighLiberal. Solly Mack Feb 2016 #3
LOVE YOU! elleng Feb 2016 #2
lol! Well, 3 is a magic number, I'm told. Solly Mack Feb 2016 #4
This is very awesome news, Solly. Blue_In_AK Feb 2016 #5
Thanks, Blue! Solly Mack Feb 2016 #7
Oh Solly, what wonderful news!!!! dixiegrrrrl Feb 2016 #6
Thank you, dixiegrrrrl! Solly Mack Feb 2016 #8
And we love you Solly Mira Feb 2016 #9
Thanks, Mira! Solly Mack Feb 2016 #10
Hooray! NV Whino Feb 2016 #11
Thanks, NV Whino! Solly Mack Feb 2016 #12
Wonderful! CurtEastPoint Feb 2016 #13
Thank you, CurtEastPoint! Solly Mack Feb 2016 #14
Omigod, I am so glad, my dear Solly Mack! CaliforniaPeggy Feb 2016 #15
Thank you, CaliforniaPeggy! Solly Mack Feb 2016 #16
That is wonderful news. Curmudgeoness Feb 2016 #17
Thanks, Curmudgeoness! Solly Mack Feb 2016 #18
Very good news, Solly. yourmovemonkey Feb 2016 #19
Thank you, yourmovemonkey! Solly Mack Feb 2016 #21
Excellent news, Solly! Adsos Letter Feb 2016 #20
Thanks, Adsos Letter! Solly Mack Feb 2016 #22
Yes!! alfredo Feb 2016 #23
Thank you, alfredo. Solly Mack Feb 2016 #24
I know now that this is my life. Tomorrow morning is my PET scan, then Starbucks. alfredo Feb 2016 #25
Nice song. I went for coffee after each treatment until I could no longer taste the coffee. Solly Mack Feb 2016 #26
I have tea, lots of tea. alfredo Feb 2016 #27
There was a time when a coffee IV sounded good to me. Solly Mack Feb 2016 #28
It might just taste like warm water. alfredo Feb 2016 #31
It is, and I missed enjoying the aromas. Solly Mack Feb 2016 #32
No more sniff tests of my shirts. alfredo Feb 2016 #33
lol! That's one way of looking at it. Solly Mack Feb 2016 #34
Like snowflakes! alfredo Feb 2016 #35
Yes, but I get to be the snowflake your mother warned you about. Solly Mack Feb 2016 #36
Ha! alfredo Feb 2016 #37
What great news, Solly! mnhtnbb Feb 2016 #29
Thanks, mnhtnbb! Solly Mack Feb 2016 #30
Wonderful news! CC Feb 2016 #38
Hey! Thanks, CC! Solly Mack Feb 2016 #40
Sounds like a great way CC Feb 2016 #47
Made me smile! Behind the Aegis Feb 2016 #39
Thank you, BtA! Solly Mack Feb 2016 #41
Very GOOD News!! 2naSalit Feb 2016 #42
Thanks, 2naSalit! Solly Mack Feb 2016 #43
Isn't that a major driver for 2naSalit Feb 2016 #44
(((2naSalit))) Solly Mack Feb 2016 #45
Thanks! 2naSalit Feb 2016 #46

Solly Mack

(96,268 posts)
10. Thanks, Mira!
Mon Feb 15, 2016, 07:13 PM
Feb 2016


A little scary being released but my other doctor can also do the scans, and he's one of the best in the country at cancer surgery of the head/face/neck.

CaliforniaPeggy

(155,995 posts)
15. Omigod, I am so glad, my dear Solly Mack!
Mon Feb 15, 2016, 07:54 PM
Feb 2016

I know you're nervous.........but this too shall pass!

Fabulous news, sweet girl!





yourmovemonkey

(275 posts)
19. Very good news, Solly.
Mon Feb 15, 2016, 09:15 PM
Feb 2016

I hope you have many more years of good health! My mother also suffers with lymphedema in all of her limbs. I know how difficult it is to live with.

Solly Mack

(96,268 posts)
24. Thank you, alfredo.
Tue Feb 16, 2016, 01:39 AM
Feb 2016

Last edited Tue Feb 16, 2016, 11:17 AM - Edit history (1)

ETA to change, and it's an important change because I said it wrong, and it matters. Not that I had a 20% survival rate, but that only 20% of those diagnosed with my type cancer and its stage are still alive after 5 years.



I wouldn't say it was ending just yet. Only 20% of patients with my type and stage cancer survive beyond 5 years. I'm two years in now. I remain cautiously optimistic. That's as far as I can go.

Like a lot of other cancer patients I judge time by the next scan result. I'm OK now. That's good. Now it's time to count off the next 6 months.

It sounds a lot more negative than it actually is. I'm not living in fear for the next 6 months. I'm just aware that anything can change in those 6 months. Cancer isn't my life, but my life does include cancer.

I wish you didn't have to become intimately familiar with the rhythmic measure of time cancer meters out.

(blood work/treatment/xrays/scans, blood work/treatment/xrays/scans, blood work/treatment/xrays/scans )

But, the plus side, when it feels as if everything is out of your control, you realize that you're in control of how you approach your treatment. Stay positive, but don't be afraid to feel the bad times. Some days you will be angry, and some days you will want to wallow. Cut yourself some slack and be angry - go ahead and wallow....but don't allow either emotion to take over.

Above all, laugh. Make jokes. There were times when I laughed so hard during treatment that my nurses had to leave the ward because they were laughing just as hard at something I found funny.

We all love you, alfredo, and we are all here for you. Just as you all have been here for me.







alfredo

(60,250 posts)
25. I know now that this is my life. Tomorrow morning is my PET scan, then Starbucks.
Tue Feb 16, 2016, 11:52 AM
Feb 2016
&list=PLVsMJeKRrFo4eBnesHHL2UoRtRxMpTym3

Solly Mack

(96,268 posts)
26. Nice song. I went for coffee after each treatment until I could no longer taste the coffee.
Tue Feb 16, 2016, 01:03 PM
Feb 2016

Enjoy you tea!

Forgive me if I sound negative, I'm actually not. I am rather straight forward about my cancer though. The glass is neither half empty nor half full for me. It's a glass of water and I need water.

I'm a lot more upbeat with my family...they need me to be.


alfredo

(60,250 posts)
27. I have tea, lots of tea.
Tue Feb 16, 2016, 01:37 PM
Feb 2016

I will partake as long as I can. I might have to funnel it into my food tube.

Solly Mack

(96,268 posts)
28. There was a time when a coffee IV sounded good to me.
Tue Feb 16, 2016, 01:40 PM
Feb 2016

You never know, tea might retain its flavor for you. I could taste tea long before I could taste coffee again.

alfredo

(60,250 posts)
31. It might just taste like warm water.
Tue Feb 16, 2016, 03:19 PM
Feb 2016

The sense of smell is a big part of taste. I hope that isn't affected too much.

Solly Mack

(96,268 posts)
32. It is, and I missed enjoying the aromas.
Tue Feb 16, 2016, 07:04 PM
Feb 2016

Mine started coming back before my sense of taste.

Solly Mack

(96,268 posts)
34. lol! That's one way of looking at it.
Tue Feb 16, 2016, 08:19 PM
Feb 2016

I got other people to tell me how something smells. Every now and then I would catch a whiff, but it was gone as soon as I did.

When my taste buds began renewing themselves I was able to taste the first bite of a dish but no bite after.

It gets frustrating and truly disappointing a times, but it does get better.

Besides, as anyone in the Cancer Group will tell you, no two people are the same. I keep saying that but it's true. Certain things are common, but each experience is a little different for everyone.



CC

(8,039 posts)
38. Wonderful news!
Wed Feb 17, 2016, 02:24 AM
Feb 2016

So glad to read this Solly! Keep taking care of yourself and be sure to go out and celebrate.

Solly Mack

(96,268 posts)
40. Hey! Thanks, CC!
Wed Feb 17, 2016, 08:24 AM
Feb 2016

I did celebrate, of sorts. I made a homemade chocolate cake with homemade frosting and had a few bites.

Everyone else enjoyed it. The baking part is fun for me.

2naSalit

(99,633 posts)
42. Very GOOD News!!
Wed Feb 17, 2016, 10:45 AM
Feb 2016

I could use that right now and I am really glad that you have been given such a good diagnosis... that means lots of good pictures to come!!


2naSalit

(99,633 posts)
44. Isn't that a major driver for
Wed Feb 17, 2016, 12:22 PM
Feb 2016

any of us? I wish I had time for all my artistic stuff but being poor usually makes me choose only one at a time, since digital is inexpensive, that's what I have going on right now. I want to get back into music, what I do best of all, but that requires relocation... and I'm getting ready for that this year.

I know it takes encouragement when the news is harsh but it also helps to inspire us to go for those things - goals, ideas - that we had previously set aside for more pragmatic reasons. I'm looking at the last decade or so of my working life and maybe my life but I have to keep going forward because there is no going backward, no matter what the issue may be.

2naSalit

(99,633 posts)
46. Thanks!
Wed Feb 17, 2016, 12:36 PM
Feb 2016

I am going out "prospecting" for a new location in the coming weeks. One friend who has "connections" is taking me to meet some of these "connections" to see what I can stir up. If that isn't doable, I may go to a different location where a friend has a house and a new job and has invited me a chance to get restarted there. Whichever strikes gold first wins! I hope it's the musical thing. If I were to tour as a subordinate musician for a couple summers, I would be able to retire within my means... time will tell.

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