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elleng

(131,079 posts)
Mon May 1, 2023, 03:48 PM May 2023

**FOlloW UP, heading to Johns Hopkins for 'consult' with surgeon EDITED

Last edited Mon May 1, 2023, 09:08 PM - Edit history (2)

(whom I haven't yet met) tomorrow @ 12:30.



EDIT:
THANKS, guys. As they've concluded, after fluid 'draws,' that I'd benefit from insertion of stent, what's a 'consult' about?



Windy at home and here Baltimore, HOPE I'll be able to see 'my' ospreys soon, after I get home, like Wednesday!

36 replies = new reply since forum marked as read
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**FOlloW UP, heading to Johns Hopkins for 'consult' with surgeon EDITED (Original Post) elleng May 2023 OP
Good luck. multigraincracker May 2023 #1
Positive vibes to you++++++++ nt spooky3 May 2023 #2
Positive thoughts and vibes. onecaliberal May 2023 #3
Good luck, elleng! cilla4progress May 2023 #4
Positive vibes, elleng. I hope everything you hear is good. LoisB May 2023 #5
Good luck. CentralMass May 2023 #6
Good luck! Irish_Dem May 2023 #7
Sending good thoughts and vibes, elleng Diamond_Dog May 2023 #8
wishing you the best Ellen JohnSJ May 2023 #9
Sending my best wishes! DeeDeeNY May 2023 #10
Best of luck! I was there 20 years ago to donate a kidney using a process they pioneered MLAA May 2023 #11
Be well, Elleng Bayard May 2023 #12
I hope all goes well for the consult and the surgery! Bluethroughu May 2023 #13
Hope all goes well! 2naSalit May 2023 #14
Good luck! ShazzieB May 2023 #15
Sending lots 'o good vibes your way!!! diva77 May 2023 #16
Best docs in the country. Duppers May 2023 #17
Sending positive vibes gademocrat7 May 2023 #18
Well wishes from your DU community. alwaysinasnit May 2023 #19
Sending good thoughts and vibes. Stay positive. c-rational May 2023 #20
I surround you with light and love and a peaceful and successful resolution... fierywoman May 2023 #21
Wishing you the best outcome orangecrush May 2023 #22
Sending you good wishes and hoping for great news. brer cat May 2023 #23
Best wishes on your consult. badhair77 May 2023 #24
Thanks! What's a consult???!!! elleng May 2023 #25
Probably means they will be "consulting" you on what your options are and what they believe you 7wo7rees May 2023 #26
Thanks SO MUCH, 7wo7rees! elleng May 2023 #27
I thought this was about your heart. Your "brain"? I don't know. 7wo7rees May 2023 #28
HEY, Ms! elleng May 2023 #29
I'm certain surgeon will be there. I'll be very surprised if he is not. 7wo7rees May 2023 #30
Yes, and likely I'll meet the surgeon today @ noon, heading to J Hopkins shortly. elleng May 2023 #33
That is what a "consult" is for. For you to have the opportunity to 7wo7rees May 2023 #31
Have already met many on staff @ hopkins, like them all. elleng May 2023 #34
Ellen, Ms 7wo7rees beautifully described the consult. badhair77 May 2023 #32
Thanks, badhair77. elleng May 2023 #35
Ellen, so very glad to hear you met your surgeon and liked him. 7wo7rees May 2023 #36

MLAA

(17,318 posts)
11. Best of luck! I was there 20 years ago to donate a kidney using a process they pioneered
Mon May 1, 2023, 04:52 PM
May 2023

that did not require a match, so anyone to anyone.

7wo7rees

(5,128 posts)
26. Probably means they will be "consulting" you on what your options are and what they believe you
Mon May 1, 2023, 10:56 PM
May 2023

"should do".

Don't at all be afraid of stent. It's a blessing. Almost had a heart attack in early summer of 2012 ( had to have 2 in 2012). Almost happened again last summer. One of stents, after 10 years was blocked. Left side of heart only functioning at 37%. The procedure for a stent, piece of cake. Other options, far more brutal. (Heart attack, heart failure, etc).

You are in my thoughts and prayers. You will be ok. DU is not ready to let you go, dear one. Breathe deep. Remain calm. You will be ok.
You are in the best hands at John Hopkins!
Ms7wo7rees

elleng

(131,079 posts)
27. Thanks SO MUCH, 7wo7rees!
Mon May 1, 2023, 11:01 PM
May 2023

Not really 'afraid,' but the process does give me 'pause,' as requires drilling into skull. and hospital stay for ??? days/weeks? HOPE we 'discuss' such.

7wo7rees

(5,128 posts)
28. I thought this was about your heart. Your "brain"? I don't know.
Mon May 1, 2023, 11:05 PM
May 2023

But, I do know that several of my best doctors at UTSW came from Hopkins. You are in good hands.


And this is Ms7wo7rees. 7wo7rees left the building a year ago.

And in answer to "what's a consult"? They have reviewed your test and records. They are going to go over with you what they think may be causing you issues. Then they are going to tell you what they believe to be your options. Then they will work with you on making right decisions for you.

Rest well. You are in good hands and you have the whole of the DU community with you.

As of December 2022 declared cancer free after 5 years (stage 4 throat cancer). No chemo or radiation required. (And my surgeon was from John Hopkins).

Sleep well tonight. Most important thing you can do. No stress.

elleng

(131,079 posts)
29. HEY, Ms!
Mon May 1, 2023, 11:12 PM
May 2023

Hydrocephalus, fluid (excess) drains from/to brain/etc, usually drains faster than 'mine.'

Happy with staff I've met. tomorrow MAY meet surgeon.

elleng

(131,079 posts)
33. Yes, and likely I'll meet the surgeon today @ noon, heading to J Hopkins shortly.
Tue May 2, 2023, 10:27 AM
May 2023

He's an expert in this field.

7wo7rees

(5,128 posts)
31. That is what a "consult" is for. For you to have the opportunity to
Mon May 1, 2023, 11:25 PM
May 2023

have your questions be answered by a qualified team of doctors and to help for you to make informed decisions on your path forward. Be sure you like them and feel comfortable with them and trust them.

That is most important of all. If anyone of them "scares" you seek another opinion. I learned this when I was fighting throat cancer. UTSW I went to for 2nd opinion.
1st hospital and doctors had botched it badly.
They were prepping me to be "radiated".

elleng

(131,079 posts)
34. Have already met many on staff @ hopkins, like them all.
Tue May 2, 2023, 10:29 AM
May 2023

Today, surgeon and his staff (I think.)

badhair77

(4,220 posts)
32. Ellen, Ms 7wo7rees beautifully described the consult.
Tue May 2, 2023, 12:09 AM
May 2023

I just had surgery and I met the physician’s assistant and the surgeon. Be sure to take a list of your questions. And ask about anything you’re anxious or curious about. They should answer everything to your satisfaction. I would hope they’d also give you printed information concerning your situation. Good luck.

elleng

(131,079 posts)
35. Thanks, badhair77.
Tue May 2, 2023, 07:28 PM
May 2023

Just got home, back to 'my' river, and starting to decompress.

Met more Johns Hopkins staff, and 'my surgeon!' NICE guy, had a good conversation, about lots of things.

Kind of looks like surgery may actually occur way closer in time than I thought, MAYBE 1 month or so, or 'a few weeks!' OMG!!!

7wo7rees

(5,128 posts)
36. Ellen, so very glad to hear you met your surgeon and liked him.
Wed May 3, 2023, 02:40 AM
May 2023

Most important of all, that you feel comfortable and like/trust who is taking care of you.

Best, very best wishes. Always.

Ms7wo7rees

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