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Ms. Toad

(34,066 posts)
Thu Jun 2, 2016, 10:12 PM Jun 2016

Post surgical update - near final for this stage of treatment

Ahead of surgery, the largest dimension of the tumor was estimated at between 1.9 and 2.1 cm (either Stage 1 or Stage 2. 2 cm is the split).

The grade was also split ahead of time. Two pathologists reviewed it and offered an opinion. All 3 components of grade run from 1 to 3: similarity to normal structure: 3; nuclear size: 1 or 2 (the pathologists disagreed); amount of cell division: 1. Total 5 or 6 - with 5 making it grade 1 and 6 making it grade 2.

The final post-surgical info:

Stage 1: Maximum dimension - 1.3 cm (60-70% of what they expected based on an MRI. I should not have been able to detect it yet, but I did.)
Grade 1: Similarity to normal structure: 1; nuclear size: 2; amount of cell division: 1 - a solid grade 1.

Yay! Happy dance!

Now I have to figure out how to do radiology that doesn't require a 1.5 - 2 hour round trip every single day for 8 weeks. Ugh.

The fun news of the day. Seriously. I got fired by one of the doctors I'd run screaming from. And it cost him $6.46 to fire me by certified mail.

His office was the next-to-last straw that drove me to the surgeon an hour away from home. My former surgeon had an administrative staff that could not get anything right - but insisted on being in charge of arranging my cancer life. They set up an appointment with the plastic surgeon for me (and, par for the course, called to "remind me" I had an appointment with him - when they had not yet told me about the appointment and, also par for the course, tried to set up a back-to-back appointment to "save me a trip" with a doctor in a facility way across town).

At any rate, I had no contact with his office ahead of time. When I walked in (the only appointment they had open for weeks), I was handed a piece of paper to sign and the word "facilities" was part of the gibberish the admin staff spit out. I made her slow down - and she informed me (when I insisted on concrete information) that I would be charged an additional $95-$200 every single time I visited this doctor.

I was livid - having just calmed down from the last set of miscommunications with my surgeon's office. I had to choose between waiting weeks for another appointment, or paying fees they couldn't even estimate, without the opportunity to get an assessment from insurance about their arrangement with this particular provider. All of that could have been avoided had my former surgeon's staff bothered to warn me so I could make a phone call to insurance and see how much of a disaster it might be and make a calm, reasoned choice, in advance of sitting in his office with only bad options left.

I kept the appointment, but made my feelings about not being informed in advance - and about the practice in general (which I consider unethical for routine office visits). I also sent a note to the practice - since his office insisted he could do nothing about it - even though he expressed some empathy for the patient's position - and is a physician owner of the practice.

Never got a response to my note. I assumed that was the end of it, since I'd moved on. Until the little certified letter arrived today.

Am I wrong to be a bit gleeful that they felt they had to fork out $6.46 to protect their arrogant little hineys?

4 replies = new reply since forum marked as read
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Post surgical update - near final for this stage of treatment (Original Post) Ms. Toad Jun 2016 OP
Nah. You're not wrong. With everything going on in your life right now, you don't need Solly Mack Jun 2016 #1
+1. Hoyt Jun 2016 #2
You can do much better than that. Tab Jun 2016 #3
When you sense something is not right and things might be progressing too swiftly for the wrong ... slipslidingaway Jun 2016 #4

Solly Mack

(90,762 posts)
1. Nah. You're not wrong. With everything going on in your life right now, you don't need
Thu Jun 2, 2016, 10:24 PM
Jun 2016

the hassles of poor communication and a take-over approach to your treatment. I was included every step of the way and that's how it should be for everyone.

I get that someone who has treated cancer for years knows what they are doing - BUT - as the patient, I want to know and understand each and every step.

They needed to include you in the decision making - it is your life.

Take care and keep fighting the good fight!

Tab

(11,093 posts)
3. You can do much better than that.
Fri Jun 3, 2016, 08:34 AM
Jun 2016

My providers at a major hospital were nice, but no one was coordinating my case, and I would argue (can't prove) they made my situation worse - a longer story I won't get into here.

I moved to another provider at a smaller hospital and they were great.

You don't need provider shit with everything else going on. You've got enough to deal with.

Hope it all turns out well,

- Tab

slipslidingaway

(21,210 posts)
4. When you sense something is not right and things might be progressing too swiftly for the wrong ...
Sat Jun 4, 2016, 12:13 AM
Jun 2016

reasons then by all means move away or at least take a break.

But I also know there are times when things move into high gear and you are swept up in the tide with little time to come up for air and it could be a life or death decision if you sit on the sidelines too long, hard choices!

Sounds like you made the right choice

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