HomeLatest ThreadsGreatest ThreadsForums & GroupsMy SubscriptionsMy Posts
DU Home » Latest Threads » Forums & Groups » Topics » Health » Cancer Support (Group) » Surgery during covid19 Fi...

Wed Apr 15, 2020, 07:28 PM

Surgery during covid19 First topic

I have a mass in my pancreas. My surgery was postponed a month ago because the ORs were closed for covid.
I'll have surgery next week if my covid19 test (scheduled soon) is negative and I have no symptoms.

My husband won't be able to visit me in the hospital. We've been married almost 40 years. Because of his age and as a cancer survivor, it's too risky for him. The mass has grown, though it's still small. They did find pancreatic cancer markers from my biopsy. So they consider my surgery urgent. I'll be hospitalized anywhere from 5-10 days. I won't know how extensive it'll be until they go inside and look.

I'll miss my hubby, cat, and cell phone. Although the room has a phone. It might sound weird but I was thinking about bringing a stuffed animal for my normal "cat space" along with books.

Suggestions for what else I might bring?

22 replies, 4734 views

Reply to this thread

Back to top Alert abuse

Always highlight: 10 newest replies | Replies posted after I mark a forum
Replies to this discussion thread
Arrow 22 replies Author Time Post
Reply Surgery during covid19 First topic (Original post)
Nululu Apr 2020 OP
Walleye Apr 2020 #1
Nululu Apr 2020 #3
moonscape Apr 2020 #16
Nululu Apr 2020 #17
PoindexterOglethorpe Apr 2020 #2
Nululu Apr 2020 #4
PoindexterOglethorpe Apr 2020 #5
Nululu Apr 2020 #6
PoindexterOglethorpe Apr 2020 #7
Nululu Apr 2020 #8
Nululu Apr 2020 #18
PoindexterOglethorpe Apr 2020 #19
lunasun Apr 2020 #9
Tetrachloride Apr 2020 #10
Nululu Apr 2020 #13
MLAA Apr 2020 #11
Nululu Apr 2020 #14
Staph Apr 2020 #12
Nululu Apr 2020 #15
Nululu Apr 2020 #20
Post removed Apr 2021 #21
Nululu Apr 2021 #22

Response to Nululu (Original post)

Wed Apr 15, 2020, 07:46 PM

1. Best of luck. I recently went through the same thing

On my lung. Thankfully it was benign, but I didnít know what to expect when I woke up, most nerve wracking. Iíll keep a good thought for you. 😿I also hate to be away from my kitty

Reply to this post

Back to top Alert abuse Link here Permalink


Response to Walleye (Reply #1)

Wed Apr 15, 2020, 08:01 PM

3. Thanks for words of encouragement

Despite the cancer markers I'm hoping it is benign or hasn't spread. Survivability is low for pancreatic cancer but improves with surgery. My surgeon is head of his department and told me that if it is cancer surgery improves 5-year survivability from 6% to 25%.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to Nululu (Reply #3)

Wed Apr 15, 2020, 10:06 PM

16. Everyone has an anecdotal cancer story, but here's mine:

A good friend was dx'ed with Stage 4 pancreatic cancer, had surgery and that was 17 years ago. She's thriving.

This changes nothing about general odds, but only to say that the one thing I have learned through my own cancer journey is that percentages mean little when it comes to our own lives and paths. I've been on the wrong end of odds a lot, but also on the right one. I can think of many times my odds of something were <1% yet that's exactly where I found myself, and also the reverse.

I'm very sorry you are having to go through this during a time your husband can't be there with you. It's heartbreaking, though I know you'll feel him close and know that he's there.

All the best. Lots of crossed fingers out here for you.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to moonscape (Reply #16)

Wed Apr 15, 2020, 10:53 PM

17. Thanks so much for the encouagement

Of course I'm scared to go through this but hopeful. I have a chronic disease that kills two-thirds before 40 and I'm decades past that.

Here's hoping my streak continues.

And hats off to all the other cancer survivors going through this time.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to Nululu (Original post)

Wed Apr 15, 2020, 08:00 PM

2. You can't bring your cell phone?

Reply to this post

Back to top Alert abuse Link here Permalink


Response to PoindexterOglethorpe (Reply #2)

Wed Apr 15, 2020, 08:03 PM

4. I'm not sure. My husband couldn't for his cancer surgery.

The nurse calls on Friday for my preop meeting and I'll ask.

They're having changes for covid.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to Nululu (Reply #4)

Wed Apr 15, 2020, 08:06 PM

5. Why couldn't he bring it for his cancer surgery?

How long was he hospitalized.

I think there's some fear that cell phone stuff supposedly interferes with the many machines and devices in the hospital, which is utter nonsense, as most of the staff are constantly using their own cell phones.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to PoindexterOglethorpe (Reply #5)

Wed Apr 15, 2020, 08:19 PM

6. Don't know

He was hospitalized for 5 days after surgery for colon cancer. They removed a foot of his colon and lots of lymph nodes. It was contained so he has a 95% chance it won't return.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to Nululu (Reply #6)

Wed Apr 15, 2020, 08:20 PM

7. Definitely ask about bringing your cell phone when you have the

consult.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to PoindexterOglethorpe (Reply #2)

Wed Apr 15, 2020, 08:22 PM

8. I hope I can bring it.

No visitors is bad enough. I saw they have 21 covid patients in the hospital but cancer patients are in a separate building for recovery.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to PoindexterOglethorpe (Reply #2)

Sat Apr 18, 2020, 06:14 PM

18. I can bring my cell nt

Reply to this post

Back to top Alert abuse Link here Permalink


Response to Nululu (Reply #18)

Sat Apr 18, 2020, 09:43 PM

19. Oh, I'm so glad.

Thank you for letting me know.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to Nululu (Original post)

Wed Apr 15, 2020, 08:28 PM

9. The cat space filler sounds comforting . Take care and do keep up informed on progress

Reply to this post

Back to top Alert abuse Link here Permalink


Response to Nululu (Original post)

Wed Apr 15, 2020, 08:37 PM

10. a really comfortable soft cloth and ear plugs.

to lay over your eyes for better sleep. as for me, terry cloth is very nice.

soft cloth

very good kleenex in a zip loc bag.

extra zip lock bags

ear plugs

Reply to this post

Back to top Alert abuse Link here Permalink


Response to Tetrachloride (Reply #10)

Wed Apr 15, 2020, 09:29 PM

13. Thanks. I hadn't thought of ear plugs or baggies

Reply to this post

Back to top Alert abuse Link here Permalink


Response to Nululu (Original post)

Wed Apr 15, 2020, 08:44 PM

11. I would bring a favorite pillow (with colorful pillow case or two)

Hand sanitizer, Clorox wipes if you have any. And heíll yeah, Iíd bring a stuffed animal if it will give you some comfort 😊

Also, house slippers that are safe but easy to get in and out of so you donít have to walk on their floors. Flip flops for when you are up for getting a shower. Comfy laze around clothes for when you are feeling better and get tired of mooning everyone with their gown with the split down the back 😬.

List of all your prescriptions ( I would actually bring any inhalers if you use them just in case). My husband was use to taking Tylenol PM at night, the hospital he was in last year didnít carry it. I slipped some in for him since he reacts badly to sleeping pills. Depending on how busy your area is with COVID-19 ID, I would take in bottles of water, a few health bars, crackers, snack portion of diced peaches etc. If they are understaffed you might not have the normal luxury of getting something to eat when you are hungry.

Puzzle book or books...something to do towards the end of your stay when you can concentrate and need something to do.

Good luck!

Added on edit: face wipes if you have any so you can wash your face if you want without too much trouble.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to MLAA (Reply #11)

Wed Apr 15, 2020, 09:30 PM

14. Thanx MLAA great ideas nt

Reply to this post

Back to top Alert abuse Link here Permalink


Response to Nululu (Original post)

Wed Apr 15, 2020, 09:23 PM

12. I spent a lot of time in the hospital the last year.

I would always bring my cell phone and tablet (for reading books!), the appropriate charging devices, an afghan for warmth and comfort, a couple of pairs of leggings for warmth as well, my own toothbrush and toothpaste (I hate the taste of the hospital's brand and their toothbrush had very hard bristles), shampoo, Chapstick or equivalent (I like Burt's Bees), facial moisturizer and hand lotion, and a few old lady necessities (small compact with magnifying mirror, nail file and nail scissors, and tweezers).

Your mileage and list will vary!




Reply to this post

Back to top Alert abuse Link here Permalink


Response to Staph (Reply #12)

Wed Apr 15, 2020, 09:30 PM

15. Love the old lady ideas :) nt

Reply to this post

Back to top Alert abuse Link here Permalink


Response to Nululu (Original post)

Wed Apr 29, 2020, 02:28 PM

20. Back from the hospital

Surgery was 8 hours but they did it orthoscopically. Lost half my pancreas, my spleen, lots of lymph nodes but glad it's over. Six days in the hospital were eerie. Numerous rooms were empty. Only one visitor per patient allowed. Hospital admissions relocated away from the ER. I'll be taking it easy for a while but it's getting better. They are trying to limit narcotic use. They don't want more than 5 days.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to Nululu (Original post)


Response to Nululu (Original post)

Sun Apr 11, 2021, 04:15 PM

22. Big thank yous to all the great suggestions

You made my hospital time easier.

Reply to this post

Back to top Alert abuse Link here Permalink

Reply to this thread