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Thu Sep 15, 2022, 12:51 PM

If I was scared before,

now I am terrified.

I don't know how the people here keep up their spirits.

I thought I was getting a pulmonary function test today. Instead, it was just another consultation. The pulmonologist was upset that things were delayed by three weeks. Now she just delayed them more. I am getting a covid test on the 24th and a pulmonary function test on the 27th. I thought my lung cancer had not spread. So did my primary care doc. Now it looks like it may be in my spine. I don't know yet. If it is, they cannot remove it. I will get chemo and radiation only. The only thing I can do is wait.

We don't know what kind of lung cancer this is. We don't know if it is stage three or four. I am beyond anxious.

34 replies, 3783 views

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Arrow 34 replies Author Time Post
Reply If I was scared before, (Original post)
murielm99 Sep 2022 OP
Srkdqltr Sep 2022 #1
TygrBright Sep 2022 #2
Tetrachloride Sep 2022 #3
calimary Sep 2022 #14
Karadeniz Sep 2022 #4
CurtEastPoint Sep 2022 #5
cilla4progress Sep 2022 #6
LoisB Sep 2022 #7
MLAA Sep 2022 #8
irisblue Sep 2022 #9
skylucy Sep 2022 #10
MontanaMama Sep 2022 #11
pandr32 Sep 2022 #12
badhair77 Sep 2022 #13
LittleGirl Sep 2022 #15
gademocrat7 Sep 2022 #16
brer cat Sep 2022 #17
stage left Sep 2022 #18
KS Toronado Sep 2022 #19
Joinfortmill Sep 2022 #20
Evolve Dammit Sep 2022 #21
cate94 Sep 2022 #22
murielm99 Sep 2022 #32
cate94 Sep 2022 #33
AllaN01Bear Sep 2022 #23
Cha Sep 2022 #24
niyad Sep 2022 #25
benfranklin1776 Sep 2022 #26
alfredo Sep 2022 #27
murielm99 Sep 2022 #28
sheshe2 Sep 2022 #29
sheshe2 Sep 2022 #30
murielm99 Sep 2022 #34
peacebuzzard Sep 2022 #31

Response to murielm99 (Original post)

Thu Sep 15, 2022, 12:54 PM

1. Virtual Hugs. Hate that happened to you. Waiting is the worst.

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Response to murielm99 (Original post)

Thu Sep 15, 2022, 12:56 PM

2. Holding you in my heart, Muriel.

It sounds very scary.

Stay as strong and resilient as you can. Your strength is key.

I know I'm not the only DUer holding you in mind and heart.

lovingly,
Bright

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Response to murielm99 (Original post)

Thu Sep 15, 2022, 12:58 PM

3. Go to hospital administrators and call your lawyer

tell your lawyer to put the hammer down .

if that doesnít work in 10 minutes , call a TV station

then do a youtube or tiktok video

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Response to Tetrachloride (Reply #3)

Thu Sep 15, 2022, 02:29 PM

14. Ooooooooh, I LIKE this!

I like the way you think, Tetrachloride!

Hang in there, murielm99. Weíll keep the vigil with you.

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Response to murielm99 (Original post)

Thu Sep 15, 2022, 01:01 PM

4. I like post #3 !!!!

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Response to murielm99 (Original post)

Thu Sep 15, 2022, 01:06 PM

5. My warmest thoughts for you. We are here.

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Response to murielm99 (Original post)

Thu Sep 15, 2022, 01:07 PM

6. Keeping you in my thoughts,

muriel!

Sounds so scary, indeed.

I know Biden is committing to a cancer moonshot. I hope that good strong energy can come your way.

Holding you in light and love.

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Response to murielm99 (Original post)

Thu Sep 15, 2022, 01:24 PM

7. May all the good forces of The Universe combine to send strength and healing your way.

Hang in there, kiddo.

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Response to murielm99 (Original post)

Thu Sep 15, 2022, 01:40 PM

8. Sending you 💗💗💗💗💗murielm99

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Response to murielm99 (Original post)

Thu Sep 15, 2022, 02:12 PM

9. Muriel, has your oncologist/pulmonologist told you *why* things are so delayed?

Do you have a nurse case manager at your hospital?

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Response to murielm99 (Original post)

Thu Sep 15, 2022, 02:15 PM

10. I'm sending you virtual hugs and all the positive vibes I can muster, murielm99.

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Response to murielm99 (Original post)

Thu Sep 15, 2022, 02:20 PM

11. I have no words other than

I cannot imagine how scary this is for you. It seems you deserve answers as to why tests are delayed again. It is difficult to advocate for yourself when you're in a place of anxiety and fear.

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Response to murielm99 (Original post)

Thu Sep 15, 2022, 02:25 PM

12. Positive vibes incoming!

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Response to murielm99 (Original post)

Thu Sep 15, 2022, 02:27 PM

13. I'm so sorry you have to go through this.

Not having information kicks up the anxiety level. Iím sending you good vibes and hugs with hopes the medical staff can get things moving immediately.

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Response to murielm99 (Original post)

Thu Sep 15, 2022, 02:35 PM

15. Hugs sent your way, nt

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Response to murielm99 (Original post)

Thu Sep 15, 2022, 02:37 PM

16. Sending you love and hugs.

We are with you on this journey.

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Response to murielm99 (Original post)

Thu Sep 15, 2022, 02:39 PM

17. Muriel, I am so sorry. It is stressful enough without delays and incomplete information.

I am sending virtual hugs and keeping you in my prayers.

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Response to murielm99 (Original post)

Thu Sep 15, 2022, 02:48 PM

18. I can't imagine

how terrified you are. Hugs to you.

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Response to murielm99 (Original post)

Thu Sep 15, 2022, 02:56 PM

19. Am I missing something?

Pulmonary function tests (sometimes called a PFT or PFT test) help diagnose lung conditions such as asthma,
bronchitis, or COPD. If you have already been diagnosed with a particular lung condition, a pulmonary function
test can also determine how well the medication youíre taking for the condition is working.

This test normally isn't for cancer.
They run a PET scan on me to find cancer from top of head to just above the knees.

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Response to murielm99 (Original post)

Thu Sep 15, 2022, 02:59 PM

20. I prayed for you. God bless.

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Response to murielm99 (Original post)

Thu Sep 15, 2022, 03:20 PM

21. That must be beyond terrifying. I will hold out for the results and hope for good news. Please

keep us posted.

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Response to murielm99 (Original post)

Thu Sep 15, 2022, 03:21 PM

22. I'm so sorry you are going through this

I canít begin to imagine how frightening this must be. Post 3 has good points. Iíd also call my primary care physician and ask for some Xanax.

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Response to cate94 (Reply #22)

Fri Sep 16, 2022, 08:25 AM

32. I called my primary care physician.

She is not in today. She has continuing education. I let her CNA have it. A message is being passed along. I threatened to go public with this. I let them know about my condition on July 26. It has been nothing but talk for two months. This could have spread to my spine by now.

I am scared, but also angry. And, dying.

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Response to murielm99 (Reply #32)

Fri Sep 16, 2022, 06:17 PM

33. You are right to be angry

I hope you arenít dying, but their foot dragging doesnít help.

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Response to murielm99 (Original post)

Thu Sep 15, 2022, 03:21 PM

23. virtual hugs from here . anything w the heart is serious .

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Response to murielm99 (Original post)

Thu Sep 15, 2022, 03:29 PM

24. Healing Vibes for you, Muriel! 🤷‍♂️💕


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Response to murielm99 (Original post)

Thu Sep 15, 2022, 03:47 PM

25. Sending hugs and vibes for best possible outcome. Your DU family is

here for you.

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Response to murielm99 (Original post)

Thu Sep 15, 2022, 03:56 PM

26. I understand completely and it's a truly horrible experience for you to have to go through this.

And Iím very very sorry that you do as I know how stressful that waiting is as itís horrible on your well-being. That said you still have reason to be optimistic as they found it and now you can focus on treating it which Iím confident you will be able to do!

I would however, as other posters have sensibly suggested, enlist the aid of someone inside or outside of the treatment facility to be your advocate and get them to move with some urgency so you donít have to endure these horrible delays. Iíd start here maybe as they have some good resources to help you find others who will help you through this.

http://cancersupportcommunity.org/

And remember you have all of us who you can vent to any time and who will give you as much support to help you conquer this, which I know you can!

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Response to murielm99 (Original post)

Thu Sep 15, 2022, 04:41 PM

27. I kept my spirits up by seeing it as a challenge.

Good outcomes and long life for you

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Response to murielm99 (Original post)

Thu Sep 15, 2022, 04:59 PM

28. Thank you everyone, for

for all your support. I does help.

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Response to murielm99 (Original post)

Thu Sep 15, 2022, 07:20 PM

29. Sending so much love and many hugs to you, muriel.

We all are here for you.

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Response to murielm99 (Original post)

Thu Sep 15, 2022, 07:20 PM

30. Sending so much love and many hugs to you, muriel.

We all are here for you.

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Response to sheshe2 (Reply #30)

Sat Sep 17, 2022, 12:43 AM

34. My husband says I have to have hope.

Right now I have anger and fear.

I really can't see dying. I see myself alive and doing my activist work for a few more years. I am 74.

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Response to murielm99 (Original post)

Fri Sep 16, 2022, 12:25 AM

31. ❤️ I am sorry about the health issues,

and I pray for a resolution and a full recovery Muriel.
I will look for updates, sending best wishes, stay well,

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