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Thu Mar 17, 2016, 05:06 PM

Tinnitus.........this is the only place I saw to post this in.....

I've had buzzing in my ears for over 5 year (it sounds like locusts). Could this be caused by a meningioma? I've been diagnosed with one.

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Reply Tinnitus.........this is the only place I saw to post this in..... (Original post)
mrmpa Mar 2016 OP
tblue37 Mar 2016 #1
tblue37 Mar 2016 #2
eastwestdem Jun 2016 #4
tblue37 Jun 2016 #5
tblue37 Jun 2016 #6
dlwickham Mar 2016 #3
otohara Dec 2016 #8
PoindexterOglethorpe Aug 2016 #7
otohara Dec 2016 #9
Ohiogal Jan 2018 #10

Response to mrmpa (Original post)

Thu Mar 17, 2016, 10:15 PM

1. Tinnitus is super common--both among those with hearing impairment

and those with normal hearing.

I actually have FIVE different tinnitus sounds! As a girl I had just one, but over time new ones have added themselves to the old ones.

On my deaf/hard of hearing site (I'm Listening as Hard as I Can!) I have a couple of articles about tinnitus that might help you make peace with it:

"The Sounds of Silence"
http://deafnotdumb.homestead.com/tinnitus.html

"The Sound the Universe Makes Is Really Just Tinnitus"
http://deafnotdumb.homestead.com/om.html

BTW, some time after I posted that "Sounds of Silence" article, in which I suggest "making friends with your tinnitus," discussion threades popped up on tinnitus support groups with names like "Making Friends with Tinnitus." I suspect they borrowed their names from my article, since it is a rather idiosyncratic phrase, don't you think?

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Response to tblue37 (Reply #1)

Thu Mar 17, 2016, 10:30 PM

2. BTW, I just visited those pages--and one of them actually quotes my article--

in its entirety--as the starting point for a discussion thread. I am going now to check out the other pages to see if they are based on my article.

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Response to tblue37 (Reply #1)

Mon Jun 13, 2016, 06:51 PM

4. Just wanted to say thanks for linking your articles...I've been looking for help for my daughter! nt

 

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Response to eastwestdem (Reply #4)

Mon Jun 13, 2016, 10:54 PM

5. You are very welcome. nt

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Response to eastwestdem (Reply #4)

Mon Jun 13, 2016, 11:03 PM

6. I might also add that my (even deafer) sister and several other

severely hearing impaired people have told me that when they could not get their bosses, friends, spouses, or other family members to understand about their hearing impairment or about what sorts of accommodations they need in order to be able to fully participate in family or group get togethers or at work, sending them to my website helped a lot of recalcitrant "hearies" to understand how unnecessarily hard (and unpleasant) they make it for us when the slightest effort would make our lives so much easier.

About once a month here at DU I used to post a plea for other members to please, please, please include a brief summary of the main point of a video so that we deafies could have some idea of what it was about. Closed captioning on most videos is ridiculously bad. Usually there is little connection between the words in the captioning and the words being spoken in the video, but most hearies, since they don't need to use CC, have no idea of how hopelessly bad it is. Unfortunately, when I request a brief summary I often get back a snappish, "Why don't you just turn on the closed captioning?"

Understand, I am not requesting a transcript, just a brief heads up--one or two sentences--about the subject of the video.

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Response to mrmpa (Original post)

Fri Mar 18, 2016, 12:26 AM

3. I have an appointment with an ENT tomorrow about this


I've had it for at least 20 years that I can pinpoint. It's just so bothersome any more and I want to see if I can do anything about it.

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Response to dlwickham (Reply #3)


Response to mrmpa (Original post)

Fri Aug 12, 2016, 04:11 AM

7. I have tinnitus. Most of the time I don't notice it,

but when I do, it's severe. Very loud. A lot like cicadas, for those of you who live where they are common. And yet, as loud as the tinnitus sounds are, they don't interfere with my normal hearing.

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Response to mrmpa (Original post)


Response to mrmpa (Original post)

Sun Jan 14, 2018, 06:50 PM

10. I have it too

It's like a high pitched whine, like the sound you hear when you used to turn on an old TV set.

I had chemo ten years ago (for breast cancer) and I was told that tinnitus is often a side effect.

Very often I have a hard time understanding people talking, especially in a restaurant or store where there's a lot of background noise. I've been to a hearing specialist, but they say there's nothing you can do for it. And my insurance will not cover hearing aids. Very discouraging! to say the least.

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