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Not Heidi

(1,282 posts)
Wed Aug 10, 2022, 04:30 AM Aug 2022

About my official SS disability

It took three full years for me to get my permanent disability. It should never take that long, not for anyone. It's disgraceful. Every piece of mail I got from SS was trailing red tape.

I'll try to describe my disability simply and without the life story. I hope to hear from others with similar afflictions.

The first part of my disability is ADHD. I was fired from my last two jobs for my inability to understand tasks, do things without numerous errors, etc. Multiple repeated training sessions proved worthless, despite my copious, detailed notes. I couldn't get things right.

The other part is mental illness. Bipolar, MDD, SAD, it goes on.

I'm not ashamed of being on disability. The things that disable me are just part of me, like my gray/blonde hair and my (somewhat inordinate) love for my fishes. 🐟🐠🐡 It took decades for the mental health problems, but now they're just one of the things that make me up.* The ADHD was always there, too; I just didn't know it had a name.

I don't tell people I'm on disability (unless they ask how I make a living). I just say I'm retired, which is true enough.

It makes me feel weird if I say, when asked why I'm on disability,** "ADHD," because half the world has it. It's chic. If I say, "I'm bipolar," I'm looked at like I'm a lunatic.*** And if I say "major depression" - well, one reply was, "Then why isn't half the world on disability?" (She had a point, even though she rolled her eyes at me.)

Hell, I may as well have told you my life story: this has become a tome. Thanks for listening.

Does this resonate with anyone? Please let me hear from you.

* A preposition isn't such a bad thing to end a sentence with.
** Shocked hell out of me the first time I was asked. Isn't that rather private?
*** Happens more than you'd think

27 replies = new reply since forum marked as read
Highlight: NoneDon't highlight anything 5 newestHighlight 5 most recent replies
About my official SS disability (Original Post) Not Heidi Aug 2022 OP
I understand. I made it to retirement without going on disability but it cost lots of personal life Walleye Aug 2022 #1
Thank you, Walleye Not Heidi Aug 2022 #4
you are not required to explain yourself to anyone Skittles Aug 2022 #2
You & DU Not Heidi Aug 2022 #5
It's a supportive safe space XanaDUer2 Aug 2022 #13
Stay strong. sinkingfeeling Aug 2022 #3
Thank you so much Not Heidi Aug 2022 #6
I admire your patience and perseverance. Mousetoescamper Aug 2022 #7
"Our dignity doesn't derive from what we do or did for a living; it's our birthright." Not Heidi Aug 2022 #9
It is a long struggle and can be compounded my misdiagnosing Scalded Nun Aug 2022 #8
Nun, thank you. Not Heidi Aug 2022 #10
This is me XanaDUer2 Aug 2022 #11
It fucking sucks. Not Heidi Aug 2022 #14
Ty XanaDUer2 Aug 2022 #15
Would you believe Not Heidi Aug 2022 #16
Ty! XanaDUer2 Aug 2022 #17
It kinda did take five months . . . Not Heidi Aug 2022 #18
Gotcha, thanks nt XanaDUer2 Aug 2022 #19
Ps oh yeah, I'm saying I'm retired XanaDUer2 Aug 2022 #12
When people ask me what I do I_UndergroundPanther Sep 2022 #20
I think its sick I_UndergroundPanther Sep 2022 #21
+100 Not Heidi Sep 2022 #23
Making money is the only identity that this country recognizes. OldBaldy1701E Sep 2022 #25
how are you feeling? Nt XanaDUer2 Sep 2022 #22
In general, and all things considered, I'm ok. Not Heidi Sep 2022 #24
Good for you. I'm a former SSA Disability Examiner/Adjudicator. As a former nurse it seemed Ziggysmom Sep 2022 #26
Wow. Thank you for your perspective. Not Heidi Oct 2022 #27

Walleye

(30,984 posts)
1. I understand. I made it to retirement without going on disability but it cost lots of personal life
Wed Aug 10, 2022, 05:54 AM
Aug 2022

Good luck. Sounds like the fishes are a great thing to love

Skittles

(153,120 posts)
2. you are not required to explain yourself to anyone
Wed Aug 10, 2022, 06:16 AM
Aug 2022

saying you're retired is good enough for acquaintances, and hopefully you can befriend the kind of people you can confide in without judgement

and you always have us

Mousetoescamper

(3,136 posts)
7. I admire your patience and perseverance.
Wed Aug 10, 2022, 09:46 AM
Aug 2022

Getting your permanent disability wasn't easy and it wasn't a ticket to easy street. Your mental illness and ADHD had to have made the process all the more difficult.

Our dignity doesn't derive from what we do or did for a living; it's our birthright.

I wish the best for you.

Not Heidi

(1,282 posts)
9. "Our dignity doesn't derive from what we do or did for a living; it's our birthright."
Wed Aug 10, 2022, 04:13 PM
Aug 2022

Thank you for this. Thank you.

Thanks for your good wishes.

Scalded Nun

(1,236 posts)
8. It is a long struggle and can be compounded my misdiagnosing
Wed Aug 10, 2022, 02:58 PM
Aug 2022

We have a history of it. Our granddaughter was misdiagnosed for years when younger (ADHD), later corrected to autism. I believe I am autistic, but have never been tested for it, recognize many of the symptoms and struggled with many things my entire life. Our son (temporal lobe epilepsy) also misdiagnosed early on (ADHD). We believe also undiagnosed autistic. It is a daily struggle for so many, and the 'System' makes it so difficult to get the proper diagnosis. Then the battle for disability and treatment. And once you have traversed that nightmare you have to be careful so as not to jeopardize your status. The constant battle to just maintain your status continues if you are in a red state. Coming out the other end of that gauntlet can so easily leave one beaten down, depressed and spent with feelings of worthlessness and self-loathing. Do not let others define who you are, keep up the good fight and never forget that you are worth it.

Not Heidi

(1,282 posts)
10. Nun, thank you.
Wed Aug 10, 2022, 04:15 PM
Aug 2022

"Do not let others define who you are, keep up the good fight and never forget that you are worth it." Thank you. I try.

I'm sorry to hear of your family's troubles. It is maddening for you, I know.

XanaDUer2

(10,557 posts)
11. This is me
Fri Aug 12, 2022, 01:34 PM
Aug 2022

Bipolar, numerous health issues, 57, 36 yrs working. Had to get a lawyer upon 1 turn down. I am livid. Little more than halfway through the process after 14 months. Disgusted.

Glad you got it. Too depressed to write more.

Not Heidi

(1,282 posts)
14. It fucking sucks.
Sat Aug 13, 2022, 06:00 PM
Aug 2022
Frustrating isn't nearly a strong enough word.

I was turned down twice. I hope yours comes through a lot sooner.

XanaDUer2

(10,557 posts)
15. Ty
Sat Aug 13, 2022, 06:02 PM
Aug 2022

I left work in June 21 on doctors' advice of total disability. Like you, after over 30 yrs, I became totally dysfunctional in my job. Couldn't do anything, including bending, lifting, toting loads.

When you got it, how soon before your payments started?

Not Heidi

(1,282 posts)
16. Would you believe
Sat Aug 13, 2022, 06:09 PM
Aug 2022

I received my back pay a few days before my approval. My monthly payments began two months after that.

Not Heidi

(1,282 posts)
18. It kinda did take five months . . .
Sat Aug 13, 2022, 06:59 PM
Aug 2022

It took about five months from the time the determination was made.

I_UndergroundPanther

(12,462 posts)
20. When people ask me what I do
Mon Sep 26, 2022, 12:04 AM
Sep 2022

I either say art or say wouldn't you rather know who I am? The second response totally throws them for a loop and the topic changes after that.
I refuse to be shamed for being on ssi.

I think its sick that you ask someone what they do to make money rather than ask about who they are.

I_UndergroundPanther

(12,462 posts)
21. I think its sick
Mon Sep 26, 2022, 12:05 AM
Sep 2022

That people ask what you do to make money rather than ask questions to find out who you are.

OldBaldy1701E

(5,092 posts)
25. Making money is the only identity that this country recognizes.
Wed Sep 28, 2022, 12:52 PM
Sep 2022

If you don't make money... well, you are less than dirt. At least dirt grows things. The USA's obsession with money is why this occurs, and there is no way to stop it. Greed is the only 'American Virtue' left.

Not Heidi

(1,282 posts)
24. In general, and all things considered, I'm ok.
Tue Sep 27, 2022, 11:55 PM
Sep 2022

Thank you for asking.

Specifically, I am exhausted. Two days ago my wife and I began the return half of our road trip across the country. I'm almost 60; she's 70; and we fully underestimated the toll that driving all day on most days would take on us.

We left on September 8. We'll be home on October 4. It can't come soon enough.

Too long a non-relevant answer?

Ziggysmom

(3,399 posts)
26. Good for you. I'm a former SSA Disability Examiner/Adjudicator. As a former nurse it seemed
Fri Sep 30, 2022, 03:20 PM
Sep 2022

like a great job at first. Then reality set in - HUGE, unrealistic workloads. People calling begging for decisions who were about to become homeless or even die. It got even worse. As an experienced examiner I was assigned to child SSI cases, with many kids in foster care. I cannot describe some of the horrific abuse I learned about. After less than 10 years I had to leave the job for my own sanity.

The initial disability decision made is based on the Social Security Rules and Regulations as a "medical determination". https://www.ssa.gov/disability/professionals/bluebook/AdultListings.htm

Subsequent appeals are made as a "legal determination". Big difference! There were SO many people I truly felt could not work, but I couldn't approve - it kept me up many nights.

Clogging the system and making the process more difficult are the liars and cheats who fabricate their disability. Time that should be spent on folks like you, but are wasted. Over the years I helped discover many instances of fraud in ongoing disability reviews. It was very sad to see.

The system is vastly understaffed and unfortunately I don't see that changing. Take care and feel free to vent any time. I hate when people ask what you do for a living! Just say you are an investor. You are investing your time listening to their crapola 😉

Not Heidi

(1,282 posts)
27. Wow. Thank you for your perspective.
Wed Oct 26, 2022, 03:13 AM
Oct 2022

It's good to hear from someone who knows the process. Thank you.

I'm sorry it hurt you so badly. 🫂

Your last paragraph: 😂😂

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