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In reply to the discussion: This message was self-deleted by its author [View all]pnwmom
(110,346 posts)ABSOLUTELY RIGHT not to trust that Nevada hospital to handle a rare and life-threatening illness. She needed to be near friends and family in CA and near excellent medical care, which she is satisfied with now.
I have had a child who was facing two different diagnoses that were both life threatening. It was the most sad and frightening year in my life. Thank goodness we had a wonderful pediatrician. But it turns out the specialists were wrong -- as they sometimes are. She didn't have the diseases they thought she had and needed no treatment at all. (Fortunately, there WAS no treatment for what they were afraid they had, so they didn't mistakenly remove any organs or pump her with any toxic drugs.)
It took several years before we were out from under that black cloud, but that child is now an adult with children of her own. And I was left with the certain knowledge that even the best doctors are human and can make mistakes. And I KNOW what it is like to be a parent facing the possible loss of a child.