General Discussion
In reply to the discussion: Not sure how long i have left. [View all]Ftrump
(27 posts)Have you discussed with your doctor the possibility of enrolling in clinical trials. There are several new drug candidates in various phases of clinical trials, which have shown promise (better efficacy, stabilization of lung function, and fewer side effects then current therapies) for the treatment of pulmonary fibrosis.
One of these, PBI-4050, is currently in or will soon enter Phase III clinical trials - if you area candidate, you may benefit
http://www.rtmagazine.com/2018/06/antifibrotic-drug-pbi-4050-lung-function-patients-idiopathic-pulmonary-fibrosis/
https://www.mdmag.com/post-conference-perspectives/ats-2018-perspectives/pbi4050-demonstrates-promising-efficacy-results-for-ipf-treatment
https://www.raredr.com/news/pbi4050-receives-rare-pediatric-disease-designation-treatment-alstrom-syndrome