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TNLib

(1,819 posts)
51. I'm using Facebook to let friends and Family know about my condition
Fri Oct 5, 2018, 10:54 AM
Oct 2018

I was recently diagnosed with Stage 4 Ovarian Cancer. Statistically speaking I have a 20% five year survival rate but I think those statistics are at least 5 years old and not very helpful since new Parp drugs have come along in the last couple of years.

I would get a prognosis and treatment plan from your medical professional. Also look into trials for your medical condition sometimes new drugs can prolong life expectancy.

Maybe find an online support group of people with your specific medical condition and ask them questions about treatment, and how to deal with symptoms from treatment and when they were diagnosed. I found this to be extremely helpful and hopeful, especially hearing from survivors outside of 5 years.

I got my will and my husbands's, Power of attorney, medical directive and affairs in order. Including making sure my daughter is taking care of in case something happens. This gave me some piece of mind.

Organize your household and life to reduce stress and focus on your health. Allow trusted friends and family to help out as much as they can. I'm currently working on this but haven't quite gotten there.

As for your grandchild I don't know maybe you could make some tentative arrangements just in case, so you and he won't worry so much. I think my husband might be on the spectrum he usually doesn't show much emotion but when he worries it's usually physical signs of anxiety like dizziness, sweating and gastrointestinal issues.

Not sure how long i have left. [View all] tiredtoo Oct 2018 OP
When my sister had breast cancer her son showed her how to do a website where she Kajun Gal Oct 2018 #1
Thanks tiredtoo Oct 2018 #2
You can irisblue Oct 2018 #6
Prayers for you. You are anonymous here! God bless you always. Kajun Gal Oct 2018 #7
My Brother used a website called CaringBridge Dem_in_Nebr. Oct 2018 #28
Please encourage her to post an update, even if it's a yearly check-in. woodsprite Oct 2018 #66
If he's the only one who needs special help -- and it sounds like he is -- pnwmom Oct 2018 #3
Please do keep us informed rurallib Oct 2018 #4
So sorry you are in this situation, but admire heck out of how you seem to have sorted it out Hoyt Oct 2018 #5
Feel free to vent all you want on DU. We are good "listeners" and often have advice you can Frustratedlady Oct 2018 #8
Sounds like you are holding up well, in a very trying situation. GeorgeGist Oct 2018 #9
you might also want to check in with the Chronic Health Condition subforum if you haven't already 0rganism Oct 2018 #10
Best wishes. Hang in there. scheming daemons Oct 2018 #11
Hugs to you tiredtoo. PA Democrat Oct 2018 #12
Hello, thanks for sharing your personal situation here. magicarpet Oct 2018 #13
Bless you. Rainngirl Oct 2018 #14
Might I suggest the aspies at reddit LiberalArkie Oct 2018 #15
Thanks, just sent link to grandson tiredtoo Oct 2018 #36
I think I may be the oldest aspie on it at 70 years old and really acting and feeling like my 30's LiberalArkie Oct 2018 #43
Thanks for sharing, you sound well organized. Lonestarblue Oct 2018 #16
best of everything to you but onethatcares Oct 2018 #17
I just read online today that a samplegirl Oct 2018 #18
All he very best with your health issues, however... Soph0571 Oct 2018 #19
Hoping that your condition is mild GeoWilliam750 Oct 2018 #20
Wow y're such a thoughtful person malaise Oct 2018 #21
I'm wishing you all good things always eleny Oct 2018 #22
Share your thoughts as often as you feel the need. Fla Dem Oct 2018 #23
Thanks so much for sharing these thoughts, tiredtoo. calimary Oct 2018 #24
"I have written a personal letter to each, sharing my thoughts and memories with them..." chia Oct 2018 #25
That's what I plan to do too, but SoCalDem Oct 2018 #45
Clinical trials Ftrump Oct 2018 #26
Thank you for the links will bring up with doctor EOM tiredtoo Oct 2018 #33
Blessings to you. The 20 year old grandson cares for you, iluvtennis Oct 2018 #27
I hope you will keep posting, tiredtoo. delisen Oct 2018 #29
It's a tough one. I thought I had it 8yrs ago and planned my farewell blm Oct 2018 #30
Hugs to you and your family. Ilsa Oct 2018 #31
Bless you and yours. Jane Austin Oct 2018 #32
I can say NewEnglandAutumn Oct 2018 #34
I hope you are able to make a plan for your grandson. TNNurse Oct 2018 #35
Maybe you could do a trust for your grandson. cate94 Oct 2018 #37
Thank you all for the replies tiredtoo Oct 2018 #38
We share the same birthday. Not year, but day. LakeSuperiorView Oct 2018 #39
Hang in there ... kooth Oct 2018 #40
Pulmonary Fibrosis (pf) Danang1968 Oct 2018 #41
i have copd tiredtoo Oct 2018 #42
... spanone Oct 2018 #44
All the best of my thoughts for you. Roland99 Oct 2018 #46
You can set up a trust for your grandson. MoonRiver Oct 2018 #47
Set up a Special Needs Trust for your autistic grandson SayitAintSo Oct 2018 #48
Thanks for this mountain grammy Oct 2018 #49
A couple of clarifications tiredtoo Oct 2018 #50
This I know: Any living arrangement the family as a unit can agree on, will be the best, Pinkflamingo Oct 2018 #61
I'm using Facebook to let friends and Family know about my condition TNLib Oct 2018 #51
Is ther a possibility for independent living you see for his future? Can you help transition ? lunasun Oct 2018 #52
Sending you light and love....... Maraya1969 Oct 2018 #53
I am sorry to hear about your prognosis.. disillusioned73 Oct 2018 #54
I'm thinking of you DesertRat Oct 2018 #55
Holding you in my thoughts. lillypaddle Oct 2018 #56
I'd suggest talking to a lawyer renate Oct 2018 #57
that's a good point Grasswire2 Oct 2018 #59
My sympathies. And my admiration for your clear thinking. Please do post. nt LAS14 Oct 2018 #58
My father had interstitial pulmonary fibrosis. mahatmakanejeeves Oct 2018 #60
When i first heard the diagnosis and googled it tiredtoo Oct 2018 #63
I have two grandchildren on the autism sprectrum HelenWheels Oct 2018 #62
Thank you for your thoughtful post. smirkymonkey Oct 2018 #64
First off, congratulations Bibliovore Oct 2018 #65
What a wonderful man you are. LoisB Oct 2018 #67
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