Hospice

[zipplewrath]

71. Yes, that's a whole other problem

I never intended this to be a Hospice bashing subthread. And we probably shouldn't diverge off into the off topic discussions of the need to be an "active user" of medical care. But you are right, 50% of what happened to my family were associated with our lack of preparedness to engage with Hospice. That lack can quickly be interpreted as uncaring or incapability to deal with the situation and many professionals reaction will be to immediately "take over".

And it is no different with almost any medical care. One needs to assert to the medical industry at all levels that they engage with you and explain (not justify) what they are advocating doing. It is equally important to engage with them on what they may NOT be doing. Things do get overlooked, especially in the fragmented care system that is our healthcare industry we have create. There is far too much "boilerplate" care going on. They'll call it "following the protocol", but when pushed, it is often determined that the protocol isn't intended to be quite that strict or unadaptable to the individual patient and what's really going on is they're just "turning the crank".