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hlthe2b

(114,253 posts)

10. We need the courts to step in and order ADMIN to allow them to remain. First the public has to

Reply to mopinko (Reply #9)

Fri Aug 30, 2019, 07:02 PM

Aug 2019

express sufficient outcry. I belong to ACLU-Colorado. A reporter friend trying to look into this said that a contact at ACLU-CO discussed it today, but are not yet aware whether any similar situations may be playing out here. Undoubtedly ACLU or other groups are looking into it in Miami and Boston where the cases Rachel reported on are receiving care. Call reporters at your leading newspaper and tv networks and ask them to investigate whether this is happening at major medical centers in your locale.

Call your Congressional representatives and Senators to demand they get involved. I made two such calls today. Senator Bennet's office stated they would be sure he watched the TRMS segment and became aware of the situation.

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dear justin trudeau, [View all] mopinko Aug 2019 OP

No solution... Several are getting health care only available here (clinical trials), hlthe2b Aug 2019 #1

feeding tubes arent that hard, and as far as clinical trials, mopinko Aug 2019 #3

The one with the feeding tube is getting experimental treatment via the tube. hlthe2b Aug 2019 #5

Does Canada have the facilities? The reason we have some of the best medical Eliot Rosewater Aug 2019 #2

i can say for certain, but mopinko Aug 2019 #4

For heavens sakes, clinical trials are unique to the facility performing/offering them. hlthe2b Aug 2019 #6

i understand that, although there could be a compassionate use mopinko Aug 2019 #7

Simply not possible for several of them. It isn't a "marketable or packaged drug" and one hlthe2b Aug 2019 #8

so let's figure out how to save as many as they can. mopinko Aug 2019 #9

We need the courts to step in and order ADMIN to allow them to remain. First the public has to hlthe2b Aug 2019 #10

Clinical trials are unique to the facilities carrying them out. luvtheGWN Aug 2019 #11

these are not at the stage that you think. These are genetic manipulations and surgeries in many hlthe2b Aug 2019 #12

Thanks for the explanation! luvtheGWN Aug 2019 #15

i dont want to make them. i want them to stay right here. mopinko Aug 2019 #16

mopinko and luvtheGWN, here is one example of care available nowhere else(since she has gone public) hlthe2b Aug 2019 #13

yeah, this one i knew. very, very rare disease. mopinko Aug 2019 #17

Our hospitals are top notch. There may be some new treatment not available applegrove Aug 2019 #14