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MANative

(4,188 posts)

117. Yeah, this has been one of the most distressing elements of this whole ordeal.

Fri Oct 5, 2012, 04:53 PM

Oct 2012

He doesn't seem to want to be "put out" to help her figure out what to do, particularly as someone who is really all alone in the area, except for her daughter and a few acquaintances. Her mother is over 80 and lives in the mid-west, caring for my friend's profoundly disabled sister. Her father is deceased, and she does have other relatives, but none within 1000 miles. She has a cousin whom she's close to, but he lives in CA and has a family, so it wouldn't be simple for him to help provide support. I'm in CT, and she's in south FL, so I'm not close anymore. Before she moved several weeks ago, she was only 45 minutes away, and I'd have been able to do much more.

When I heard the doctor's response, I was thoroughly stunned, and told her she needed to get another opinion, pronto, then we'd work on finding help that this guy seems to be clueless about.

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Just got devastating news - UPDATE [View all] MANative Oct 2012 OP

Hugs to you and your friend. (nt) JaneQPublic Oct 2012 #1

My thoughts are with her and her daughter. lpbk2713 Oct 2012 #2

Wouldn't It Be Nice If One Of These Big Money Donors - To Either Party - Would ...... global1 Oct 2012 #3

And that, theKed Oct 2012 #8

What makes this horrible beyond the pale is... MANative Oct 2012 #10

Wow he won't help the mother of his kids? dkf Oct 2012 #63

He probably thinks she deserves it for divorcing his ass. Ken Burch Oct 2012 #160

The sadistic ex-hubby is essentially executing his daughter's mother. He is a horrible father. LonePirate Oct 2012 #80

Jesus Christ Almighty... Are you able to print out this thread or send otherwise? MrMickeysMom Oct 2012 #95

This is why we need real-life versions of the "Leverage" team. Ken Burch Oct 2012 #161

Amen to that, just found that show, it's GREAT n/t calikid Oct 2012 #172

Don't know the show, personally... MrMickeysMom Oct 2012 #189

That is morally equivalent to murder ashling Oct 2012 #96

Typical ReTHUG A-Hole Auntie Bush Oct 2012 #138

I can't imagine doing that to your own child. Arugula Latte Oct 2012 #144

Go public with her husband's name...go to the media with it...SHAME the bastard into decency. Ken Burch Oct 2012 #159

We need a 50% "political spending tax" James48 Oct 2012 #41

Excellent idea!!!!!!!nt Tumbulu Oct 2012 #104

I second that. I also think it's doable. nt Auntie Bush Oct 2012 #139

Honestly! hamsterjill Oct 2012 #50

All I can offer you is a hug nadinbrzezinski Oct 2012 #4

I am so sorry to hear this awful news. CaliforniaPeggy Oct 2012 #5

I am sorry to hear that. JRLeft Oct 2012 #6

I'm so very sorry. What state is she in? mzmolly Oct 2012 #7

She's in Florida. We're trying to find her some help through... MANative Oct 2012 #14

Have you checked here? Spitfire of ATJ Oct 2012 #37

Thanks for the idea - hadn't thought of them, believing them to work outside the US. n/t MANative Oct 2012 #39

You could try here too.... Spitfire of ATJ Oct 2012 #59

Oh, thank you! And this gave me another idea - my sister works for Emory Medical and... MANative Oct 2012 #66

Isn't it amazing how we are a lot less alone than we think? Spitfire of ATJ Oct 2012 #70

How very sad. mzmolly Oct 2012 #79

I only wish SINGLE PAYER were in effect NOW. area51 Oct 2012 #166

I only wish OBAMACARE were in effect NOW. mzmolly Oct 2012 #188

jeebus h christ, so sorry... K Gardner Oct 2012 #9

Sorry to hear this, I will keep your friend & her daughter in prayer skeewee08 Oct 2012 #11

God, I'm so sorry. Try fundraising? Whovian Oct 2012 #12

The lack of social morality in our nation is appalling. So sorry. nt PufPuf23 Oct 2012 #13

My thoughts and prayers are with you and your friend.... Swede Atlanta Oct 2012 #15

I'm hoping that because she is so young, it will work in her favor in getting help. n/t MANative Oct 2012 #35

This should not be a decision about either young or old receiving crunch60 Oct 2012 #71

Sadly, what "should be" and what "is" are two different things in this country lately. MANative Oct 2012 #75

That is very sad. Jennicut Oct 2012 #16

That's what we're trying to investigate now. Hoping that we can find a program that will help. n/t MANative Oct 2012 #21

I'm sorry for your loss renate Oct 2012 #112

Thanks. Jennicut Oct 2012 #120

oh, no... that's terrible renate Oct 2012 #167

Not to mention the unthinkable Horse with no Name Oct 2012 #195

what about the ACA? barbtries Oct 2012 #17

From what we understand, the provisions that would have helped her don't take effect MANative Oct 2012 #44

all the best barbtries Oct 2012 #58

Working on that angle, but not hopeful. He tends to help only with... MANative Oct 2012 #60

I thought there were supposed to be catastrophic pools NOW a2liberal Oct 2012 #109

There are. Ms. Toad Oct 2012 #132

That might be how she can get insurance IF her ex will pay for it karynnj Oct 2012 #135

Her ex clearly wants her gone - it's win/win for him Patiod Oct 2012 #176

This was a political decision. girl gone mad Oct 2012 #173

That is some seriously bad news. Perhaps you could get an article in a news paper, get donations? Liberal_in_LA Oct 2012 #18

That's exactly what I was thinking Iwillnevergiveup Oct 2012 #148

So sorry! cilla4progress Oct 2012 #19

I'm so sorry. Are you in a position to verify or challenge that diagnosis and possible treatments? Egalitarian Thug Oct 2012 #20

Exactly what I told her this morning. MANative Oct 2012 #27

Thoughts and prayers with you and your friend beachgirl2365 Oct 2012 #22

I sit here crying knowning a little girl is going to lose her mother and there isn't anything southernyankeebelle Oct 2012 #23

I am just aching for her little girl. A complication is that the dad is quite a lot older... MANative Oct 2012 #40

Well am 65 and I know I take care of my 6 yr old granddaughter at times. They live next southernyankeebelle Oct 2012 #99

Then the daughter should be getting SS benefits if he's 67... Frustratedlady Oct 2012 #181

There are times I am ashamed to be an... 99Forever Oct 2012 #24

Don't cry, get busy. Go online and search her disease and find either sinkingfeeling Oct 2012 #25

Working on that, for certain. n/t MANative Oct 2012 #31

You would think her M.D. would make it is own personal battle to begin a fight to do something...... busterbrown Oct 2012 #26

Don't they take an oath or something? itsrobert Oct 2012 #91

Their oath is to not cause harm jsr Oct 2012 #122

The problem is that most doctors have too many patients Doctor Jack Oct 2012 #123

I'm sure you're probably right. I do know that he has... MANative Oct 2012 #124

There is a much bigger issue with transplants Ms. Toad Oct 2012 #131

Devastating news. SamKnause Oct 2012 #28

That is because the cure would take away PROFITS from~~ LovingA2andMI Oct 2012 #74

Cure SamKnause Oct 2012 #162

not really. Patiod Oct 2012 #178

This message was self-deleted by its author darkangel218 Oct 2012 #29

How terrible. Mad_Dem_X Oct 2012 #30

Bless your friend, her daughter and herself. She must get on medicaid somehow. Dont call me Shirley Oct 2012 #32

I'm so sorry! LeftofObama Oct 2012 #33

Awful, awful MannyGoldstein Oct 2012 #34

One of the ironies is that she moved to FL less than two months ago, from CT... MANative Oct 2012 #36

I just took a look at Mass. Commonwealth Care MannyGoldstein Oct 2012 #52

Wow - thank you for this. I'll do some digging into what's here. MANative Oct 2012 #57

Very complicated thing to look into, probably MannyGoldstein Oct 2012 #64

Yes, I grew up in the Greater New Bedford area, and still have most of my family there. MANative Oct 2012 #67

If it helps and this is a consideration, I live in NC and my insurance is Inclusive Health..... tpsbmam Oct 2012 #88

I feel your pain BobbyBoring Oct 2012 #38

But don't let your friend waste time trying alternatives INSTEAD of western medicine Patiod Oct 2012 #179

Devastating. LoisB Oct 2012 #42

Good advice. For profit "health" "care" likely DOES tend to rush to prognosis. nt patrice Oct 2012 #46

Please accept my apologies, the commoditization of death seems only to make me more angry patrice Oct 2012 #43

This makes me so angry I could toss chairs out of windows DFW Oct 2012 #45

I hate to ask this question BigD_95 Oct 2012 #47

Pre-existing condition of another type disqualified her. MANative Oct 2012 #49

I figured it was something like that BigD_95 Oct 2012 #65

too late now but a2liberal Oct 2012 #119

You were right in the first place Ms. Toad Oct 2012 #133

hmm a2liberal Oct 2012 #150

Different portions of HIPAA provide different benefits Ms. Toad Oct 2012 #155

Thanks! :) (n/t) a2liberal Oct 2012 #194

if she's been uninsured for more than six months... MrsBrady Oct 2012 #142

Thoughts and prayers for your friend, her daughter, and you Catlover827 Oct 2012 #48

That was one of my first thoughts, and we're trying to find out if there is a program. n/t MANative Oct 2012 #51

University medical schools do research and they grow all kinds of human cells DhhD Oct 2012 #174

My thoughts and prayers are with you and your friend. Liberalynn Oct 2012 #53

in most industrialized nations she would be provided with healthcare....god bless the usa spanone Oct 2012 #54

I know I'm posting the obvious here, but this is not right. hamsterjill Oct 2012 #55

This happens every hour in this brutal country. RagAss Oct 2012 #61

I do. I know where I live, thank you. hamsterjill Oct 2012 #69

Ohhhh my thoughts and prayers are with you and your friend and families!!!! onecent Oct 2012 #56

More stem cell research is needed DaveJ Oct 2012 #62

That's another major factor, even if by some miracle she could get coverage or $$ help. MANative Oct 2012 #72

Partial transplants are not just for very young. Ms. Toad Oct 2012 #127

About 8 years out from being able to grow your own liver - Ms. Toad Oct 2012 #134

Absolutely Patiod Oct 2012 #180

nt. Johnny Noshoes Oct 2012 #68

Just a thought chloes1 Oct 2012 #73

Not sure if that would help, because from what my friend was told, the decision... MANative Oct 2012 #77

Obamacare can help! Now! MoonchildCA Oct 2012 #76

Oh my God, Bless you! As much as I thought I knew about ACA, I was sure that the MANative Oct 2012 #78

Also, contact Social Security Admin and ask about Compassionate Allowances Emit Oct 2012 #82

WOW, just WOW, I sure do hope this is true and your friend gets help. GumboYaYa Oct 2012 #89

I thought 2014 was the date. But upon further research I found information on a "bridge." Here: mzmolly Oct 2012 #90

This is a bridge program MoonchildCA Oct 2012 #92

Thank you so much for providing this life saving information. myrna minx Oct 2012 #84

Here is the link for the PCIP plans Ms. Toad Oct 2012 #128

well, that's a heck of a way to make a (almost) debut on DU! renate Oct 2012 #114

I am so very sorry. My thoughts are with her. bluerum Oct 2012 #81

THANK YOU so much, everyone, for your kind words and your ideas. MANative Oct 2012 #83

We're all here in full support of the two of you. myrna minx Oct 2012 #86

Have her get a second opinion! proReality Oct 2012 #85

I Suggest This Protocol and this Website triplepoint Oct 2012 #87

don't give up, here call the phone numbers on the pre existing condition Gov site Sunlei Oct 2012 #93

you need to get this on the news. okieinpain Oct 2012 #94

Can she get help by way of Obamacare? marezdotes Oct 2012 #97

She needs to apply for Social Security Disability right now; she'll be immediately Medicare eligible REP Oct 2012 #98

Contact Social Security Admin and ask about Compassionate Allowances Emit Oct 2012 #100

What about medicaid? Isn't there something that could get her on the donor list? glowing Oct 2012 #101

More on Obamacare MoonchildCA Oct 2012 #102

Thank you again, MoonchildCA. MANative Oct 2012 #121

Have her move to either Massachusetts or possibly Vermont jerseygal Oct 2012 #103

I'm so sorry. I hope the comments here Ilsa Oct 2012 #105

Another idea is the Mayo Clinic in Jacksonville Lifelong Protester Oct 2012 #106

The Repubs idea of "death panels" regarding Obamacare GaelicWench Oct 2012 #107

Am so very sorry with this news. so, so sorry. secondwind Oct 2012 #108

Her doctor is a scumsucking fuck DainBramaged Oct 2012 #110

Yeah, this has been one of the most distressing elements of this whole ordeal. MANative Oct 2012 #117

A second opinion is essential catchnrelease Oct 2012 #130

Hugs to you, your friend, and her precious daughter catbyte Oct 2012 #111

This should not be happening in the richest country in the world! Third Doctor Oct 2012 #113

Do tell her to contact SS and Medicaid to see if they can help. ProfessionalLeftist Oct 2012 #115

if nothing else, maybe your friend's ex can be persuaded to pay up... renate Oct 2012 #116

I will give the ex credit for one thing: he does love his daughter, BUT... MANative Oct 2012 #118

Since he is paying child support, it seems as if Medicaid could go after him. freshwest Oct 2012 #125

If neither of you has tried this yet, mwblueyarn Oct 2012 #126

If she has been without health insurance for 6 months Ms. Toad Oct 2012 #129

Is that $100,000 for Rx after PCIP? dkf Oct 2012 #154

Different issues Ms. Toad Oct 2012 #156

I guess it's a matter of practicality to make sure a transplant recipient can pay for their care. dkf Oct 2012 #164

I absolutely agree about single payer - Ms. Toad Oct 2012 #182

It broke my heart when I heard that kids in foster care sometimes are ruled Ineligible dkf Oct 2012 #186

It isn't an absolute ineligibility - Ms. Toad Oct 2012 #187

Get her signed up for the PCIP plan IMMEDIATELY. kestrel91316 Oct 2012 #136

+1 PCIP is in effect now! n/t MrsBrady Oct 2012 #143

Yes. And it is easy to get in to MoonchildCA Oct 2012 #157

^^^This. Chorophyll Oct 2012 #175

Such sad news... sendero Oct 2012 #137

Call around to hospitals tblue Oct 2012 #140

:( Catherine Vincent Oct 2012 #141

Oh my Lord that is so heart-breaking. Prayers for all. n/t DebJ Oct 2012 #145

K&R Free health care for all.... midnight Oct 2012 #146

May you and your friend be blessed with good fortune. waterwatcher123 Oct 2012 #147

I wish I had more to offer besides my heartfelt sympathy BlancheSplanchnik Oct 2012 #149

Try Masons and Shriners Pathos1503 Oct 2012 #151

Good suggestions. Indpndnt Oct 2012 #153

Senator John Kerry Savannahmann Oct 2012 #152

Go to the media...NOW(especially any tv in your area) Ken Burch Oct 2012 #158

that is heartbreaking news lillypaddle Oct 2012 #163

MANative littlemissmartypants Oct 2012 #165

This is a pre-existing condition. Can't she get insurance now under Obamacare? Special juajen Oct 2012 #168

Wishing You and Your Friend Good Fortune waterwatcher123 Oct 2012 #169

Damn grr8wine Oct 2012 #170

Coming to this thread late, after so many other great suggestions upthread. riderinthestorm Oct 2012 #171

I left my Ex 30 years ago Plucketeer Oct 2012 #177

I am overwhelmed by your thoughtful responses. MANative Oct 2012 #183

Have you looked into this Sekhmets Daughter Oct 2012 #184

Maybe she could run away to Canada? libodem Oct 2012 #185

Kick for update and thanks n/t MANative Oct 2012 #190

Wonderful thread, great responses. It kind of struck me that this is not quite what Palin thought grantcart Oct 2012 #191

Anything that discredits that pitbull with lipstick is A-okay in my book! MANative Oct 2012 #192

*hugs, vibes, and prayers* GreenPartyVoter Oct 2012 #193