Just got devastating news - UPDATE

[Ms. Toad]

187. It isn't an absolute ineligibility -

but the state has to take the responsibility of finding a stable home that will be able to provide the specialized care those kids will need. Here's a hopeful story along those lines: http://seattletimes.com/html/localnews/2009821351_apwafosterhearthtransplant.html

As for my daughter, the limbo we are in right now is tough. Some people with her disease go into a sort of remission and can live a normal life. So far she has not been able to - she sleeps 12-14 hours a day (and stills as if she has the flu all day long every day), and can only handle half time enrollment at her college. So do I wish her a long time in this condition? That seems cruel. On the other hand, while a transplant would dramatically improve those aspects of her quality of life, she is trading one illness for another kind of illness. I guess I hope she holds out long enough to grow her own liver (probably 7-8 years out) so she will not have the post transplant issues associated with receiving someone else's liver.