I lost nearly 200 pounds after being told I couldn't due to lipedema diagnosis. [View all]

[BlueLucy]

Last edited Sat Sep 23, 2023, 11:02 AM - Edit history (2)

I started this journey weighing 360 pounds, my current weight is 165. I still have lipedema, it's very visible and painful. They're nodules that expand, swell and acquire fluid around them. If they are not removed, the fat could easily come back with a small slip away from a very strict 800 calorie anti inflammatory diet. My insurance denied coverage for lipedema surgery saying I was lacking in conventional therapy even though I had done so much conventional therapy work on my own. The problem was they wanted receipts and I did it the low cost way. I have spent hours on the phone the last few days. I am a fighter. I am not giving up! I'm worth it! I want to be pain free! I want to have this excess skin removed! I deserve it! I worked hard, and I want to be more mobile so that I can continue to do more.

I was able to change my Medicare insurance with an effective start date of 10/1/2023 instead of having to wait for the new year to a insurance that is known for being more friendly to lipedema patients according to people in lipedema circles. I'm working with Coverlipedema,com who will help me fight and even have a surgeon in Gig Harbor WA willing to do all the paperwork. I'm close. I can't stop now. I'm on SSDI and work part time on a farm here locally at the fruit stand. My rent is more than I make.. Insurances wants me to pay for lymphatic massages and medical grade compression garments. Also, even though Gig Harbor is only 2 hours away, I will still need hotel stay several times. I'm lucky, many women have to travel out of state for this. I appreciate all the help I can get. I have uploaded some pictures. Please let me know if you an see them. https://ibb.co/album/BGJbrq



https://www.gofundme.com/f/conventional-lipedema-therapy-for-insurance