I have spoken with several people who had spontaneous hip and also spinal fractures(not from stopping it) and other serious side effects and read about many more so I will never take it. It is in your system for at least six months, probably a lot longer I suspect. I try not to take any medications like that because if you do have serious side effects they can't be stopped.
I remember when they tried to put me on that before my doc at the time had even read the bd report. I knew something was up because they get kick backs to rx things. He later said he didn't know about it- someone from the office called offering to start me on it right away which was very suspicious to say the least.
My former neighbor's friend was on prolia and developed a severe itchy rash which never subsided and regretted it. Due to this as well and the gastro symptoms I would never be able tolerated any bisphosphonates even without all the other potential severe effects.
At the time my hematologist said forteo would be the safest for me but my doc would not rx it, he said it was going to cause bone cancer. Now after the fracture he says he never said that! Lol- I need to start recording my office visits. I have been on Tymlos for about 1.5 years now- bd has improved , I'm not sure how much exactly yet since my scan was done on a different machine.
If you are on prolia be careful not to stop it without starting another bisphosphnate, it has caused rapid and multiple spinal fractures from stopping it.
I hope one day they come out with something safer. However a rheumi I saw said they are all going to be just as bad most likely with some serious potential side effects. Right now forteo and tymlos are still the safest ones.
Your friend should ask to take the pills or better yet, forteo or tymlos. Tymlos is cheaper. No medication is going to reverse that unfortunately.
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