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In reply to the discussion: Vascular dementia and Trump [View all]yardwork
(68,872 posts)I can check a lot of those same boxes.
It's very lonely, embarrassing, impossible to explain to people who don't experience it.
One thing that was frustrating was that mom could fool medical professionals and home health aides into thinking she was fine. She'd make up stories about how she got up every day, cooked breakfast, played bridge with the girls, etc. I'd have to chase the social worker down the hall and say it was all made up, mom never got up, she wasn't eating, bathing, or taking her meds. Then they'd give me side eye like I was the problem. They'd assess her as independent and then I'd get the calls a few weeks later, upset because she was incontinent, hiding her meds, locking home health out and yelling at them to go away, etc. That went on for years until I talked her into moving into assisted living.