General Discussion

LuckyCharms

(22,683 posts)

7. This is purely anecdotal...

Sun Mar 15, 2026, 10:58 AM

Mar 15

I used to take my mom to all of her doctor's visits.

During a visit when she was around 80 years old, we were told that she had aortic stenosis that was pretty severe, and her options at that time were very limited. The cardiologist balked at surgery, which he said in her case, there was about a 20% chance of failure.

I remember walking my mom back to my vehicle, and then going back in to speak to the cardiologist one-on-one. He told me that she likely had less than a year to live. I broke down in the office and had to compose myself before going back to the car to bring my mom home.

As it happened, she lasted about another 14 years, and died at age of 94 due to something unrelated to her heart.

This was years ago, and I'm sure that there have been improvements in treatment, including the Inclisiran, which appears to have been placed on the market in 2021.

Try to keep positive thoughts, and push the dark thoughts away. You're a smart guy, and you will naturally pursue the options that are right for you in your case.

Tell yourself that you will likely be around for awhile...I'm sure that you will be.

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Swede hay rick Wild blueberry h2ebits area51 hamsterjill erronis Deuxcents skideemon LittleGirl Gosmudgeyourself blm biophile

47 replies

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Highlight:

My Cardiologist Is Applying to my Insurance Company to See if I Can Have a $6,500 Injection. [View all] NNadir Mar 15 OP

I want you to stick around. murielm99 Mar 15 #1

I wish you the best of luck Nnadir. Swede Mar 15 #2

The etymology of my screen name is rather simple. NNadir Mar 15 #5

Do you know that Jeff Tiedrich (smirking chimp) has a substack niyad Mar 15 #34

I know 2 people who just had surgery to replace that valve. Both doing fine surfered Mar 15 #3

Yes, I've looked into it. I find it amazing that it can now be done without open heart surgery, via catheter. NNadir Mar 15 #6

I hope it is approved and that it works. Even a few years more, once we are quite elderly, is a true gift. Let us know ratchiweenie Mar 15 #4

This is purely anecdotal... LuckyCharms Mar 15 #7

Keep up with this optimistic anecdotal stuff and... NNadir Mar 15 #9

. LuckyCharms Mar 15 #10

Hey, who said you could have my dark thoughts??? niyad Mar 15 #32

Oh, geez, do I have to separate you two AGAIN? niyad Mar 15 #31

You are not allowed to leave, just yet. Polly Hennessey Mar 15 #8

Keep us informed. I hope this works for you. OLDMDDEM Mar 15 #11

Need ya to stick around and keep irritating folks with the facts and edumacating the rest of us ;). Good luck !! n/t Cheezoholic Mar 15 #12

I got my aortic valve replaced 5 years ago. EndlessMaze Mar 15 #13

Please stick around as i enjoy your science writings n/t gay texan Mar 15 #14

Positive thoughts for approval. Whatever treatment you ultimately choose, I pray that it LoisB Mar 15 #15

I am sorry to hear that NNadir jfz9580m Mar 15 #16

Hoping for the best for you! AltairIV Mar 15 #17

Mine was rejected. I ended up with Repatha. My LDL's are negligible at this point. Gore1FL Mar 15 #18

I wish you the best. area51 Mar 15 #19

So . . . AverageOldGuy Mar 15 #20

So we can figure a three year review for possible approval? Norrrm Mar 15 #21

Nothing to add to all of the already heartwarming posts, but hamsterjill Mar 15 #22

Ask to see an interventional cardiologist about TAVR dalton99a Mar 15 #23

I've already looked into this case. It's intriguingly cool. NNadir Mar 15 #36

I wish you the best LetMyPeopleVote Mar 15 #24

I know you're a spring cluck, but aren't you on Medicare? And if so, is it covered? erronis Mar 15 #25

Thank you. I needed this today. h2ebits Mar 15 #26

All the best to you jfz9580m Mar 15 #27

Thanks for your thoughts. h2ebits Mar 15 #30

NN, I'm befuddled by this and frustrated with my lack of a response for this news. littlemissmartypants Mar 15 #28

Rooting for you, NNadir. blm Mar 15 #29

Vibes for the very best possible outcome, my friend. niyad Mar 15 #33

Best of luck. I have 4 cardiologist and I proved them all wrong. multigraincracker Mar 15 #35

Do not short change yourself - valve replacements are done every day. harumph Mar 15 #37

I'm sure you've looked into it. What are the outcomes of the replacement vs the injection for a man of your age and retread Mar 15 #38

It sounds to me as if you might have high lipoprotein (a), which is genetic. femmedem Mar 15 #39

Thanks. To be perfectly honest I only see four trials for PCSK9 inhibitors in aortic stenosis, three in China, one... NNadir Mar 16 #43

I understand what you mean about the positives of mortality. femmedem Mar 16 #44

Thanks. The drugs listed in the link are all "me too" PCSK9 inhibitors in the siRNA class except Muvalaplin, which... NNadir Mar 16 #45

Make sure they are measuring your apolipoprotein B (apo(b)) Ms. Toad Mar 15 #40

Wishing you good health for years to come! yardwork Mar 15 #41

not sure which is worse Skittles Mar 15 #42

Fingers crossed for approval . . . . hatrack Mar 16 #46

Have you looked into Repatha? GaYellowDawg Mar 16 #47