General Discussion

pnwmom

(110,251 posts)

62. I had the opposite situation. The doctor tested me for everything from parasites to cancer,

Wed Jul 31, 2013, 12:33 PM

Jul 2013

trying to discover the source of my extremely painful intestinal bleeding, which had been going on for months, after years of irritable bowel symptoms.

I finally mentioned to him that I'd thought giving up milk products had helped, but then things got worse again. Then he said that Celiac disease is uncommon in general, but common among northern Europeans who had lactose intolerance. He gave me blood tests that yielded mixed results, so he said to try eliminating gluten. Within a few days all the bleeding and a lot of other symptoms (G.I. and other symptoms) cleared up completely. And I stayed symptom free for a couple years. I finally figured out that a new generic prescription must have been the culprit (the drug company claimed not to know), so I switched back to the brand name and the bleeding immediately went away.

Since then I've read that there is a gluten sensitive form of Crohn's disease, so that's probably what I have. Celiac or Crohn's doesn't matter -- the diet has given me back my life.

Edit history

Please sign in to view edit histories.

Recommendations

0 members have recommended this reply (displayed in chronological order):

155 replies

= new reply since forum marked as read

Highlight:

Attack of the gluten intolerant sex addicts, Mark Morford [View all] madokie Jul 2013 OP

Mark Morford has a way with words. . . B Calm Jul 2013 #1

And yet I have a friend who nearly died before being (finally) diagnosed with celiac disease. SharonAnn Jul 2013 #129

My neighbor has now decided she is no loner gluten intolerant but has full blown celiac. hobbit709 Jul 2013 #2

This message was self-deleted by its author Cronus Protagonist Jul 2013 #25

I had the opposite situation. The doctor tested me for everything from parasites to cancer, pnwmom Jul 2013 #62

Is she rail thin? They usually are. MADem Jul 2013 #26

She's quite overweight hobbit709 Jul 2013 #29

If that's the case, her small intestine is likely working jus' finnnnnnne! MADem Jul 2013 #34

I knew that from day one. I've known her for over 20 years. hobbit709 Jul 2013 #37

You can't tell who has Celiac or gluten sensitivity by looking at them, pnwmom Jul 2013 #70

That's not true for adults. Many adults are overweight or even obese, unlike children with Celiac. pnwmom Jul 2013 #64

Wrong. In adults they're more likely to be overweight than underweight. It's the body's pnwmom Jul 2013 #71

I've never met an overweight celiac. nt MADem Jul 2013 #140

How many meetings held by Celiac organizations have you attended? pnwmom Jul 2013 #141

chiropractor!?! LMAO. didact Jul 2013 #98

Get thee to a Glutenry, MorFord Berlum Jul 2013 #3

+1. nt proverbialwisdom Aug 2013 #150

Hint: If you get a murderous diarrhea after eating bread, you are gluten-intolerant. DetlefK Jul 2013 #4

Depends on what else you ate. hobbit709 Jul 2013 #5

What's weird is that you can outgrow celiac. DetlefK Jul 2013 #9

Hint: If you get murderous diarrhea after eating bread, you should see a doctor. Pale Blue Dot Jul 2013 #16

Exactly. There may be a more serious diagnosis Ilsa Jul 2013 #27

They will often do a blood test first, because a lot of other problems can mimic celiac. MADem Jul 2013 #40

It involves a two step dance nadinbrzezinski Jul 2013 #80

Being underweight and unable to Ilsa Jul 2013 #116

It is a very serious disease nadinbrzezinski Jul 2013 #120

Or, SalviaBlue Aug 2013 #149

Or if you have irritable bowel symptoms, you might have gluten sensitivity pnwmom Jul 2013 #74

I thought this was going to be about Anthony Weiner. nt LisaLynne Jul 2013 #6

LOL B Calm Jul 2013 #7

Your not alone, it took me a while to realize what he was getting at. Katashi_itto Jul 2013 #33

Glad I wasn't the only one and actually glad it wasn't! LisaLynne Jul 2013 #41

:) Katashi_itto Jul 2013 #46

I love Mark Morford but rainy Jul 2013 #8

I am sensitive to the "modern" gluten JoDog Jul 2013 #14

Yes, anyone can be sensitive and not realize it. In fact we are all affected by it just like we are rainy Jul 2013 #21

I'm diabetic type II. That sounds like good reading, thanks! Katashi_itto Jul 2013 #47

My wife almost died. kchamberlin25 Jul 2013 #10

I was also undiagnosed for decades. I'm glad your wife is better. pnwmom Jul 2013 #75

I am, I read labels and cook a lot because of it nadinbrzezinski Jul 2013 #83

Wow. My brother went undiagnosed for over 20 years before he found the right doctor Neurotica Jul 2013 #124

Good read malaise Jul 2013 #11

It's easy to poo-poo someone else's allergies. fasttense Jul 2013 #12

Exactly. nt pnwmom Jul 2013 #85

This guy is uninformed, to say the least. Dash87 Jul 2013 #13

He's not saying it's made up. He's saying it's rare. Pale Blue Dot Jul 2013 #18

Diagnosed full-blown celiac disease is just the tip of the iceberg of gluten sensitivity. pnwmom Jul 2013 #76

Yes there are loopy people who self-diagnose... uriel1972 Jul 2013 #15

I have a threshold for lactose products. Ilsa Jul 2013 #30

I knew a guy who was addicted to ice cream, AND lactose intolerant. MADem Jul 2013 #31

Thank you. The OP was infuriating to me, who suffered needlessly pnwmom Jul 2013 #77

It is interesting to see how they are selling things as gluten free treestar Jul 2013 #17

You don't need to have celiac to not want to have wheat products rainy Jul 2013 #22

There are many forms of gluten sensitivity besides Celiac disease. pnwmom Jul 2013 #78

I think he's making a larger point than gluten Orrex Jul 2013 #19

there is no financial motive involved Celebration Jul 2013 #28

That's simply an ad hominem objection Orrex Jul 2013 #39

well, it all comes down to how you view anecdotal evidence Celebration Jul 2013 #43

You're missing the point Orrex Jul 2013 #45

wait a minute! Celebration Jul 2013 #51

If you were the only person who made claims about gluten, then that would be fine Orrex Jul 2013 #52

well Celebration Jul 2013 #125

That's a difference in degree, not in kind Orrex Jul 2013 #130

it is a difference in kind Celebration Aug 2013 #146

That's a difference of funding, not of fact Orrex Aug 2013 #148

weird, but Celebration Aug 2013 #154

This is why you need to have it in your medical record nadinbrzezinski Jul 2013 #69

that is for the celiac crowd, though Celebration Jul 2013 #126

Wrong, I have it in my record nadinbrzezinski Jul 2013 #127

and coincides with the emergence of roundup ready wheat. n/t nebenaube Jul 2013 #53

And with increased crop circle occurrences. n/t Orrex Jul 2013 #58

You know the treatment in this case involves zero meds nadinbrzezinski Jul 2013 #68

I really am gluten insensitive. pnwmom Jul 2013 #81

I'm glad that you've found a treatment that helps you. Orrex Jul 2013 #87

It has a LOT to do with me, because it encourages people to pnwmom Jul 2013 #90

Well, the blame falls upon the people who dubiously self-diagnose Orrex Jul 2013 #99

Do you have a study to prove that many people mistakenly diagnosis themselves pnwmom Jul 2013 #101

Exactly nadinbrzezinski Jul 2013 #102

I have declared it to be my anecdotal experience Orrex Jul 2013 #105

But you have previously denigrated the value of anecdotal evidence pnwmom Jul 2013 #108

Ah. A fair question. Orrex Jul 2013 #117

Thank you for the clarification. Unlike Morford, you're not just mocking people pnwmom Jul 2013 #118

Thanks--I regret that my wording has caused confusion. Orrex Jul 2013 #121

I wish there was an unrecommend feature........nt Enthusiast Jul 2013 #20

This is one of those weird situations that I agree nadinbrzezinski Jul 2013 #134

There is a difference between "gluten intolerance" and "celiac disease" cbdo2007 Jul 2013 #23

Has anyone ever suggested that your mother-in-law might have pnwmom Jul 2013 #84

It's amazing! AlbertCat Jul 2013 #24

+1 nt MADem Jul 2013 #32

Yes. nt LisaLynne Jul 2013 #35

Why don't you help out those benighted readers, then? Orrex Jul 2013 #42

Why don't you help out those benighted readers, then? AlbertCat Jul 2013 #54

Well no shit. Orrex Jul 2013 #57

Pssssssst... AlbertCat Jul 2013 #59

pm sent! Orrex Jul 2013 #61

But people with a personal experience with gluten, pnwmom Jul 2013 #89

Gluten and almost lactose free here... ananda Jul 2013 #36

AMEN to all this! Celebration Jul 2013 #44

There are now many, many blogs w/ grain free recipes for donuts/cupcakes/bread. It's a Renaissance KittyWampus Jul 2013 #50

Right there with you. IMO, those of us who try to attain better health via diet/meditation are KittyWampus Jul 2013 #49

Life is not worth living.... AlbertCat Jul 2013 #55

it's possible to make both without grains. Or dairy, for that matter. And make food that's delicious KittyWampus Jul 2013 #73

Gluten intolerant? abelenkpe Jul 2013 #38

People hate others who insist on changing themselves for the better. Attaining better health through KittyWampus Jul 2013 #48

People hate others who insist on changing themselves for the better. AlbertCat Jul 2013 #56

A very strong correlation exists... Orrex Jul 2013 #60

You actually want to argue that simple carbs screw w/blood sugar? Really? KittyWampus Jul 2013 #65

Are you replying to me? Because you're arguing against a point that I didn't make. Orrex Jul 2013 #66

You asked what is my source for this medical claim. I gave it to you. KittyWampus Jul 2013 #72

Thanks. Orrex Jul 2013 #79

simple carbs screw w/blood sugar. AlbertCat Jul 2013 #82

no, I mean negatively effects. KittyWampus Jul 2013 #131

My favorite was when he wrote this: drokhole Jul 2013 #96

personal story...had bad digestion for years until i discovered WITHOUT doc's help it was caused by BREMPRO Jul 2013 #63

Ignorant piece of woo nadinbrzezinski Jul 2013 #67

I also read about a study where they looked at blood samples that had been stored pnwmom Jul 2013 #86

One of the culprits, and I know people hate to hear it, nadinbrzezinski Jul 2013 #91

Yup. If there are many people on the "bandwagon" (which I doubt pnwmom Jul 2013 #92

You like Mexican Food? A lot of it is gluten free nadinbrzezinski Jul 2013 #93

Yes, I do. The only problem with those restaurants sometimes pnwmom Jul 2013 #95

I mostly make this stuff at home nadinbrzezinski Jul 2013 #97

My beloved cousin died of celiac disease last year, aged sixty. He was like a wraith in his casket. WinkyDink Jul 2013 #88

I'm so sorry about your cousin. It's almost impossible to get that info from generic manufacturers. pnwmom Jul 2013 #94

Thank you; I appreciate your words. In the aftermath, I learned that celiac disease can lead to WinkyDink Jul 2013 #142

There's a higher risk of cancer and a host of auto-immune diseases. pnwmom Jul 2013 #144

I'm 60 and if I didn't ditch my generic BP meds Enthusiast Jul 2013 #139

How awful for you! Grrrr...it's stuff like this that makes my blood boil when I read jingoistic non- WinkyDink Jul 2013 #143

Thank you. Enthusiast Aug 2013 #145

I agree with the author that most people who claim they are gluten intolerant Vashta Nerada Jul 2013 #100

So you agree with ignorant woo nadinbrzezinski Jul 2013 #103

Ignorant woo would be believing you have a gluten intolerance Vashta Nerada Jul 2013 #106

Ignorant woo is believing that it is not real or that's extremely rare nadinbrzezinski Jul 2013 #109

Um, that's not the definition of woo. Vashta Nerada Jul 2013 #111

And Mordord's claim against scientific evidence to the contrary nadinbrzezinski Jul 2013 #112

You sure are confrontational. Vashta Nerada Jul 2013 #113

I belittle...that is so revealing nadinbrzezinski Jul 2013 #119

Individuals who have no training in the medical field have no business self-diagnosing. Vashta Nerada Jul 2013 #132

The take from my doctor nadinbrzezinski Jul 2013 #133

Anecdotes are meaningless to me. Vashta Nerada Jul 2013 #135

Is this anecdote as well? nadinbrzezinski Jul 2013 #136

I guess this is anecdote too nadinbrzezinski Jul 2013 #137

Increasing Incidence of Celiac Disease in a North American Population nadinbrzezinski Jul 2013 #138

Is that just your uninformed position, or can you point to studies backing you up? pnwmom Jul 2013 #104

Have you read any of the responses on this thread? SalviaBlue Aug 2013 #151

I know what it does. Vashta Nerada Aug 2013 #152

Only a medical dr can determine? SalviaBlue Aug 2013 #155

There are definitely a lot of people who self-diagnose this Just Saying Jul 2013 #107

So exactly what drugs do you take for this condition? nadinbrzezinski Jul 2013 #110

These were awhile back Just Saying Jul 2013 #114

You are confusing Celiacs, and wheat intolerance, both treated with diet nadinbrzezinski Jul 2013 #115

No Just Saying Jul 2013 #122

People are self diagnosing due to lack of good access to medical care nadinbrzezinski Jul 2013 #123

Mose Allison said it best olddots Jul 2013 #128

I met him once, a long, long time ago. Blue_In_AK Aug 2013 #147

It's all about selling books to nervous americans who think a $14.95 "system" will solve everything. Warren DeMontague Aug 2013 #153