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Orrex

(67,015 posts)

105. I have declared it to be my anecdotal experience

Wed Jul 31, 2013, 02:53 PM

Jul 2013

Therefore I'm under no obligation to offer up a study in support of it.

I used the phrase "in my experience," as a matter of fact. Was that not clear? I have, by a rough, back-of-the-napkin estimate, known about 150 people who've declared their self-diagnosed gluten intolerance versus two who've revealed an actual diagnosis by a medical professional. That's not to say that the self-diagnosers can't have the condition, but they would be well advised to seek formal diagnosis if only to eliminate the possibility of a more serious condition displaying similar symptoms.

Also, in case I was unclear, I don't perceive you to be broadcasting in this context, because you're relating personal experience directly relevant to the discussion.
I apologize for my imprecision in articulating this.

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Attack of the gluten intolerant sex addicts, Mark Morford [View all] madokie Jul 2013 OP

Mark Morford has a way with words. . . B Calm Jul 2013 #1

And yet I have a friend who nearly died before being (finally) diagnosed with celiac disease. SharonAnn Jul 2013 #129

My neighbor has now decided she is no loner gluten intolerant but has full blown celiac. hobbit709 Jul 2013 #2

This message was self-deleted by its author Cronus Protagonist Jul 2013 #25

I had the opposite situation. The doctor tested me for everything from parasites to cancer, pnwmom Jul 2013 #62

Is she rail thin? They usually are. MADem Jul 2013 #26

She's quite overweight hobbit709 Jul 2013 #29

If that's the case, her small intestine is likely working jus' finnnnnnne! MADem Jul 2013 #34

I knew that from day one. I've known her for over 20 years. hobbit709 Jul 2013 #37

You can't tell who has Celiac or gluten sensitivity by looking at them, pnwmom Jul 2013 #70

That's not true for adults. Many adults are overweight or even obese, unlike children with Celiac. pnwmom Jul 2013 #64

Wrong. In adults they're more likely to be overweight than underweight. It's the body's pnwmom Jul 2013 #71

I've never met an overweight celiac. nt MADem Jul 2013 #140

How many meetings held by Celiac organizations have you attended? pnwmom Jul 2013 #141

chiropractor!?! LMAO. didact Jul 2013 #98

Get thee to a Glutenry, MorFord Berlum Jul 2013 #3

+1. nt proverbialwisdom Aug 2013 #150

Hint: If you get a murderous diarrhea after eating bread, you are gluten-intolerant. DetlefK Jul 2013 #4

Depends on what else you ate. hobbit709 Jul 2013 #5

What's weird is that you can outgrow celiac. DetlefK Jul 2013 #9

Hint: If you get murderous diarrhea after eating bread, you should see a doctor. Pale Blue Dot Jul 2013 #16

Exactly. There may be a more serious diagnosis Ilsa Jul 2013 #27

They will often do a blood test first, because a lot of other problems can mimic celiac. MADem Jul 2013 #40

It involves a two step dance nadinbrzezinski Jul 2013 #80

Being underweight and unable to Ilsa Jul 2013 #116

It is a very serious disease nadinbrzezinski Jul 2013 #120

Or, SalviaBlue Aug 2013 #149

Or if you have irritable bowel symptoms, you might have gluten sensitivity pnwmom Jul 2013 #74

I thought this was going to be about Anthony Weiner. nt LisaLynne Jul 2013 #6

LOL B Calm Jul 2013 #7

Your not alone, it took me a while to realize what he was getting at. Katashi_itto Jul 2013 #33

Glad I wasn't the only one and actually glad it wasn't! LisaLynne Jul 2013 #41

:) Katashi_itto Jul 2013 #46

I love Mark Morford but rainy Jul 2013 #8

I am sensitive to the "modern" gluten JoDog Jul 2013 #14

Yes, anyone can be sensitive and not realize it. In fact we are all affected by it just like we are rainy Jul 2013 #21

I'm diabetic type II. That sounds like good reading, thanks! Katashi_itto Jul 2013 #47

My wife almost died. kchamberlin25 Jul 2013 #10

I was also undiagnosed for decades. I'm glad your wife is better. pnwmom Jul 2013 #75

I am, I read labels and cook a lot because of it nadinbrzezinski Jul 2013 #83

Wow. My brother went undiagnosed for over 20 years before he found the right doctor Neurotica Jul 2013 #124

Good read malaise Jul 2013 #11

It's easy to poo-poo someone else's allergies. fasttense Jul 2013 #12

Exactly. nt pnwmom Jul 2013 #85

This guy is uninformed, to say the least. Dash87 Jul 2013 #13

He's not saying it's made up. He's saying it's rare. Pale Blue Dot Jul 2013 #18

Diagnosed full-blown celiac disease is just the tip of the iceberg of gluten sensitivity. pnwmom Jul 2013 #76

Yes there are loopy people who self-diagnose... uriel1972 Jul 2013 #15

I have a threshold for lactose products. Ilsa Jul 2013 #30

I knew a guy who was addicted to ice cream, AND lactose intolerant. MADem Jul 2013 #31

Thank you. The OP was infuriating to me, who suffered needlessly pnwmom Jul 2013 #77

It is interesting to see how they are selling things as gluten free treestar Jul 2013 #17

You don't need to have celiac to not want to have wheat products rainy Jul 2013 #22

There are many forms of gluten sensitivity besides Celiac disease. pnwmom Jul 2013 #78

I think he's making a larger point than gluten Orrex Jul 2013 #19

there is no financial motive involved Celebration Jul 2013 #28

That's simply an ad hominem objection Orrex Jul 2013 #39

well, it all comes down to how you view anecdotal evidence Celebration Jul 2013 #43

You're missing the point Orrex Jul 2013 #45

wait a minute! Celebration Jul 2013 #51

If you were the only person who made claims about gluten, then that would be fine Orrex Jul 2013 #52

well Celebration Jul 2013 #125

That's a difference in degree, not in kind Orrex Jul 2013 #130

it is a difference in kind Celebration Aug 2013 #146

That's a difference of funding, not of fact Orrex Aug 2013 #148

weird, but Celebration Aug 2013 #154

This is why you need to have it in your medical record nadinbrzezinski Jul 2013 #69

that is for the celiac crowd, though Celebration Jul 2013 #126

Wrong, I have it in my record nadinbrzezinski Jul 2013 #127

and coincides with the emergence of roundup ready wheat. n/t nebenaube Jul 2013 #53

And with increased crop circle occurrences. n/t Orrex Jul 2013 #58

You know the treatment in this case involves zero meds nadinbrzezinski Jul 2013 #68

I really am gluten insensitive. pnwmom Jul 2013 #81

I'm glad that you've found a treatment that helps you. Orrex Jul 2013 #87

It has a LOT to do with me, because it encourages people to pnwmom Jul 2013 #90

Well, the blame falls upon the people who dubiously self-diagnose Orrex Jul 2013 #99

Do you have a study to prove that many people mistakenly diagnosis themselves pnwmom Jul 2013 #101

Exactly nadinbrzezinski Jul 2013 #102

I have declared it to be my anecdotal experience Orrex Jul 2013 #105

But you have previously denigrated the value of anecdotal evidence pnwmom Jul 2013 #108

Ah. A fair question. Orrex Jul 2013 #117

Thank you for the clarification. Unlike Morford, you're not just mocking people pnwmom Jul 2013 #118

Thanks--I regret that my wording has caused confusion. Orrex Jul 2013 #121

I wish there was an unrecommend feature........nt Enthusiast Jul 2013 #20

This is one of those weird situations that I agree nadinbrzezinski Jul 2013 #134

There is a difference between "gluten intolerance" and "celiac disease" cbdo2007 Jul 2013 #23

Has anyone ever suggested that your mother-in-law might have pnwmom Jul 2013 #84

It's amazing! AlbertCat Jul 2013 #24

+1 nt MADem Jul 2013 #32

Yes. nt LisaLynne Jul 2013 #35

Why don't you help out those benighted readers, then? Orrex Jul 2013 #42

Why don't you help out those benighted readers, then? AlbertCat Jul 2013 #54

Well no shit. Orrex Jul 2013 #57

Pssssssst... AlbertCat Jul 2013 #59

pm sent! Orrex Jul 2013 #61

But people with a personal experience with gluten, pnwmom Jul 2013 #89

Gluten and almost lactose free here... ananda Jul 2013 #36

AMEN to all this! Celebration Jul 2013 #44

There are now many, many blogs w/ grain free recipes for donuts/cupcakes/bread. It's a Renaissance KittyWampus Jul 2013 #50

Right there with you. IMO, those of us who try to attain better health via diet/meditation are KittyWampus Jul 2013 #49

Life is not worth living.... AlbertCat Jul 2013 #55

it's possible to make both without grains. Or dairy, for that matter. And make food that's delicious KittyWampus Jul 2013 #73

Gluten intolerant? abelenkpe Jul 2013 #38

People hate others who insist on changing themselves for the better. Attaining better health through KittyWampus Jul 2013 #48

People hate others who insist on changing themselves for the better. AlbertCat Jul 2013 #56

A very strong correlation exists... Orrex Jul 2013 #60

You actually want to argue that simple carbs screw w/blood sugar? Really? KittyWampus Jul 2013 #65

Are you replying to me? Because you're arguing against a point that I didn't make. Orrex Jul 2013 #66

You asked what is my source for this medical claim. I gave it to you. KittyWampus Jul 2013 #72

Thanks. Orrex Jul 2013 #79

simple carbs screw w/blood sugar. AlbertCat Jul 2013 #82

no, I mean negatively effects. KittyWampus Jul 2013 #131

My favorite was when he wrote this: drokhole Jul 2013 #96

personal story...had bad digestion for years until i discovered WITHOUT doc's help it was caused by BREMPRO Jul 2013 #63

Ignorant piece of woo nadinbrzezinski Jul 2013 #67

I also read about a study where they looked at blood samples that had been stored pnwmom Jul 2013 #86

One of the culprits, and I know people hate to hear it, nadinbrzezinski Jul 2013 #91

Yup. If there are many people on the "bandwagon" (which I doubt pnwmom Jul 2013 #92

You like Mexican Food? A lot of it is gluten free nadinbrzezinski Jul 2013 #93

Yes, I do. The only problem with those restaurants sometimes pnwmom Jul 2013 #95

I mostly make this stuff at home nadinbrzezinski Jul 2013 #97

My beloved cousin died of celiac disease last year, aged sixty. He was like a wraith in his casket. WinkyDink Jul 2013 #88

I'm so sorry about your cousin. It's almost impossible to get that info from generic manufacturers. pnwmom Jul 2013 #94

Thank you; I appreciate your words. In the aftermath, I learned that celiac disease can lead to WinkyDink Jul 2013 #142

There's a higher risk of cancer and a host of auto-immune diseases. pnwmom Jul 2013 #144

I'm 60 and if I didn't ditch my generic BP meds Enthusiast Jul 2013 #139

How awful for you! Grrrr...it's stuff like this that makes my blood boil when I read jingoistic non- WinkyDink Jul 2013 #143

Thank you. Enthusiast Aug 2013 #145

I agree with the author that most people who claim they are gluten intolerant Vashta Nerada Jul 2013 #100

So you agree with ignorant woo nadinbrzezinski Jul 2013 #103

Ignorant woo would be believing you have a gluten intolerance Vashta Nerada Jul 2013 #106

Ignorant woo is believing that it is not real or that's extremely rare nadinbrzezinski Jul 2013 #109

Um, that's not the definition of woo. Vashta Nerada Jul 2013 #111

And Mordord's claim against scientific evidence to the contrary nadinbrzezinski Jul 2013 #112

You sure are confrontational. Vashta Nerada Jul 2013 #113

I belittle...that is so revealing nadinbrzezinski Jul 2013 #119

Individuals who have no training in the medical field have no business self-diagnosing. Vashta Nerada Jul 2013 #132

The take from my doctor nadinbrzezinski Jul 2013 #133

Anecdotes are meaningless to me. Vashta Nerada Jul 2013 #135

Is this anecdote as well? nadinbrzezinski Jul 2013 #136

I guess this is anecdote too nadinbrzezinski Jul 2013 #137

Increasing Incidence of Celiac Disease in a North American Population nadinbrzezinski Jul 2013 #138

Is that just your uninformed position, or can you point to studies backing you up? pnwmom Jul 2013 #104

Have you read any of the responses on this thread? SalviaBlue Aug 2013 #151

I know what it does. Vashta Nerada Aug 2013 #152

Only a medical dr can determine? SalviaBlue Aug 2013 #155

There are definitely a lot of people who self-diagnose this Just Saying Jul 2013 #107

So exactly what drugs do you take for this condition? nadinbrzezinski Jul 2013 #110

These were awhile back Just Saying Jul 2013 #114

You are confusing Celiacs, and wheat intolerance, both treated with diet nadinbrzezinski Jul 2013 #115

No Just Saying Jul 2013 #122

People are self diagnosing due to lack of good access to medical care nadinbrzezinski Jul 2013 #123

Mose Allison said it best olddots Jul 2013 #128

I met him once, a long, long time ago. Blue_In_AK Aug 2013 #147

It's all about selling books to nervous americans who think a $14.95 "system" will solve everything. Warren DeMontague Aug 2013 #153