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w8liftinglady

(23,278 posts)

1. I have had many patients on romodulin home pumps.

Reply to EmeraldCityGrl (Original post)

Fri Mar 2, 2012, 06:46 PM

Mar 2012

An oral version would be a lifesaver in so many ways.The cost of Romodulin is very steep,and most of my patients with serious pulmonary hypertension are usually in their 20's and 30's (male and female).They are usually not a transplant candidate because of co-existing autoimmune issues,and this is the only thing that keeps them alive for their kids elementary school programs,high school graduation,etc.
Let the self-righteous walk a mile in these folks' shoes.

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Pulmonary Arterial Hypertension and Why Birth Control Matters [View all] EmeraldCityGrl Mar 2012 OP

I have had many patients on romodulin home pumps. w8liftinglady Mar 2012 #1

& there in lies the problem: for their xchrom Mar 2012 #2

You and others nvolved in the EmeraldCityGrl Mar 2012 #3