NF, the Pope and the 1:3000

[sabrina 1]

11. Thank you. She did impact so many lives, she was a given an award as 'young person of the year' for

her successful fund raising efforts for the hospital, but did not live to accept it. Her sister and dad accepted it for her. There were over 2,000 people at her funeral including bikers who heard her story. But it is a rare illness and not much is known about it and if, as in her case, a tumor forms in a critical area, inside the body, where most of her tumors formed, there is little that can be done about it as of now. From what we know, it is hereditary and her sisters, while free of the desease themselves, might pass it to their children.

She was a gift to everyone who knew her. I feel almost as if I am violating her privacy in saying as much as I have as she never wanted attention at all. But seeing this photo and some of the negative comments right here on DU, I think she would have wanted someone to explain what it meant to those who have suffered from this rare illness, and their loved ones.

I hope your family experiences peace and thank you again for your supportive comment.