General Discussion
In reply to the discussion: More Thoughts on Woo - and How Doctors Don't Take Women Seriously [View all]IdaBriggs
(10,559 posts)Even though we aren't doing formal tracking anymore, I consider many of the people in this project friends at this point.
I just received a Facebook message from the mom of #74 (clonus disappeared). They accidentally ended up on a two week break, and just had a bunch more "dramatic changes" in cognitive and motor - right side affected, she put her hand down and caught herself when she tripped. (This is "inconceivable" - lol!) the mom wanted to know if there were any other kids who have been on it as long still seeing the periodic "big gains" - welcome to being one of the first fifty, because we lost some/don't have data. She's thrilled, but why does "taking a break" get followed by "huge gains" even after nearly a year? Are we still "building brains" or did getting startled enable her to use existing pathways --
We've got no one to talk to about these issues. Her doctor is supposed to call me back *real soon* two weeks ago.
At the same time, COGNITIVE IMPROVEMENT and MOBILITY - you go, girl!
Shaking my head at the ways of an amazing universe....