General Discussion

pnwmom

(110,258 posts)

80. Except in her case, the term might actually apply.

Wed Feb 26, 2014, 05:50 PM

Feb 2014

The hospital, in a way, is binding her to the wheelchair by deliberately denying her the treatment that was helping her muscles to stay stronger and to keep her out of a wheelchair.

She isn't actually paralyzed, per se; she is just profoundly weak, and she's being denied the treatment that would help her.

Edit history

Please sign in to view edit histories.

Recommendations

0 members have recommended this reply (displayed in chronological order):

136 replies

= new reply since forum marked as read

Highlight:

Mom of Sick Connecticut Teen 'Collapses' in Court After Judge Sends Kid to Foster Care [View all] magical thyme Feb 2014 OP

Why is this a story? LeftyMom Feb 2014 #1

why is this a story? seriously? magical thyme Feb 2014 #3

How many kids in state custody haven't you heard of? LeftyMom Feb 2014 #5

mind you that the gag order directly violates the 1st amendment, and the ACLU is getting involved magical thyme Feb 2014 #9

The doctor at Tufts is risking his career by speaking out despite the gag order. pnwmom Feb 2014 #82

This message was self-deleted by its author PotatoChip Feb 2014 #44

I agree kcr Feb 2014 #13

This is a dispute in diagnosis between two top hospitals, with the state choosing the side pnwmom Feb 2014 #20

It is not a dispute between two hospitals kcr Feb 2014 #29

Tufts diagnosed and treated successfully for Mitochondrial Disease for 2 years. magical thyme Feb 2014 #40

I've read the Boston Globe articles kcr Feb 2014 #41

everything I've read on it says they did take her for no good reason. magical thyme Feb 2014 #43

I think you and I are interpreting things very differently kcr Feb 2014 #45

the simple fact that they totally excluded the initial diagnosing doctors from consultation tells me magical thyme Feb 2014 #47

What do they do where you work when they suspect child abuse? kcr Feb 2014 #56

suspected child abuse is one thing. but throwing out an existing diagnosis and treatment plan magical thyme Feb 2014 #59

How could they not throw it out? kcr Feb 2014 #65

Oh please. LisaL Feb 2014 #69

Talk about thin air kcr Feb 2014 #70

the parent's story is NOT the only story we are getting. Dr. Korson has been interviewed magical thyme Feb 2014 #76

Like I said kcr Feb 2014 #81

um, now you are accusing the Chief of Metabolism Service/Director of the Metabolic Disorder Clinic magical thyme Feb 2014 #71

Um, no, I didn't kcr Feb 2014 #72

If this was a case of Munchausen by proxy, the child should have improved LisaL Feb 2014 #108

Should but not always kcr Feb 2014 #111

Yours is the knee jerk reaction, responding as you do because Glen Beck is among pnwmom Feb 2014 #48

My non knee jerk knee jerk reaction happened before Glen Beck hopped on board n/t kcr Feb 2014 #53

It's a dispute between a top mitochondrial doctor at the Tufts hospital pnwmom Feb 2014 #46

No, I'm not kcr Feb 2014 #54

Yes, you are. You said this was "ginned up right wing outrage." pnwmom Feb 2014 #55

I said it was ginned up outrage because it is indeed ginned up outrage kcr Feb 2014 #57

The fact that they are wrong most of the time doesn't mean they're wrong THIS time. pnwmom Feb 2014 #60

It's not Boston Children's job to support the parents request to lift the gag order kcr Feb 2014 #63

If Boston Children's is doing the right thing, then lifting the gag order will support the hospital. pnwmom Feb 2014 #64

But that isn't up to Boston Children's kcr Feb 2014 #67

The judge issued the gag order in response to Boston Children's request for a gag order. pnwmom Feb 2014 #77

That may be, but it was still the judge who issued it. kcr Feb 2014 #83

Why should lifting the gag order help the parents if the hospital has nothing to hide? pnwmom Feb 2014 #85

It isn't about having nothing to hide kcr Feb 2014 #87

I can't believe that so-called progressives don't side with the ACLU on the 1st Amendment issue here pnwmom Feb 2014 #92

The ACLU, who haven't even decided if they're going to get involved in this case? kcr Feb 2014 #98

Where did I use the word kidnap? n/t pnwmom Feb 2014 #99

That is the parent's claim and those of those in the story speaking on their behalf kcr Feb 2014 #100

I completely understand how they feel that way. The doctors at Tufts are excellent doctors pnwmom Feb 2014 #101

The doctors at Tufts are excellent, but not at Boston Children's? kcr Feb 2014 #102

Both hospitals have excellent doctors, and it should be up to the parents, not the state, pnwmom Feb 2014 #104

You're right, it isn't up to the state to decide kcr Feb 2014 #105

But the only "abuse" is that the state has decided that the girl's illness is psychosomatic, pnwmom Feb 2014 #107

That's what the parents claim. kcr Feb 2014 #114

That is exactly what the state is doing. It has sided with one set of doctors over another. n/t pnwmom Feb 2014 #115

And the state just randomly decided to rip a child away from her parents because of this kcr Feb 2014 #126

The State decided to listen to the Harvard psychiatrists who had taken over her care, pnwmom Feb 2014 #129

but you're talking as if it's certain the child was abused... dionysus Feb 2014 #133

No, I'm not kcr Feb 2014 #134

If it turns out that the parents have abused this child Orrex Feb 2014 #73

Your question doesn't make a lot of sense. Want to try again? n/t pnwmom Feb 2014 #78

If you are once again shown to be wrong, will you admit it? Orrex Feb 2014 #88

Sure. Just as soon as you admit your question didn't make any sense pnwmom Feb 2014 #91

My mistake; you're advocating for Tufts Orrex Feb 2014 #103

Are you suggesting that advocating for care by the metabolic specialist at Tufts pnwmom Feb 2014 #106

I'm saying that I'd be interested to hear more than one side of the story Orrex Feb 2014 #117

Wrong. The hospital has been leaking its side of the story all along. That's why pnwmom Feb 2014 #125

We also have the judge's side. Orrex Feb 2014 #128

the child has been out of her parent's care for over a year magical thyme Feb 2014 #112

Well, since we have only the story of one interested party... Orrex Feb 2014 #116

we also have the story of Dr. Korson and the Globe was able to access medical records magical thyme Feb 2014 #122

It's interesting that the judge sees good reason to take the child from the parents Orrex Feb 2014 #127

not to me, based not only on what I've read about this case, but my personal experiences magical thyme Feb 2014 #131

Ginned up outrage? A top medical facility diagnosed her and treated her successfully for years magical thyme Feb 2014 #26

The implications are not staggering kcr Feb 2014 #75

I read about this in the MSM yesterday. You are the one all concerned about rw websites, not me. magical thyme Feb 2014 #79

You should be concerned about them kcr Feb 2014 #86

Ask the ACLU. Governmental overreach is as much a concern of liberals pnwmom Feb 2014 #17

Are you kidding? LisaL Feb 2014 #66

I would go crazy if that was happening to my family. GreenPartyVoter Feb 2014 #2

this reads like the beginning of a stephen king novel.... Adam051188 Feb 2014 #4

Agree Sgent Feb 2014 #6

yes, there is more than one doctor. but it started with one doctor. magical thyme Feb 2014 #10

There could well be an institutional mindset at work here. LiberalAndProud Feb 2014 #14

Anything is possible Sgent Feb 2014 #15

the ER physician at Children's started this magical thyme Feb 2014 #27

Good grief. enlightenment Feb 2014 #109

I don't know. But when I saw it I was absolutely sickened. nt magical thyme Feb 2014 #113

That is really distressing. enlightenment Feb 2014 #121

Yeah, there's something missing. The family is trying to get the gag order lifted. pnwmom Feb 2014 #19

The gag order is there Sgent Feb 2014 #22

There shouldn't be any question of IF. How can a judge not allow the girl's parents, pnwmom Feb 2014 #23

how is ordering a 15 year old to not talk about her own situation helping her? magical thyme Feb 2014 #61

I've read numerous articles throughout the day at work magical thyme Feb 2014 #7

lawyers have been on this... magical thyme Feb 2014 #11

What is missing is because of the judge's gag order on the parents and the hospitals. pnwmom Feb 2014 #21

What the fuck? Beaverhausen Feb 2014 #8

If the teenager had the disease her parents say she has gerogie2 Feb 2014 #12

You are wrong. The disease isn't "easily confirmed by looking at her cells in a microscope." pnwmom Feb 2014 #18

Oh Yes the Doctors are wrong but the parents and you are right because of the Internet gerogie2 Feb 2014 #95

The doctor at Tufts -- the expert in metabolic disorders who was treating her -- pnwmom Feb 2014 #97

There are a number of illnesses and diseases that impair movement and cause neurological symptoms magical thyme Feb 2014 #24

Right! it's a conspiracy gerogie2 Feb 2014 #93

Dr. Korson's years of exams, evaluations and successful treatment outweigh magical thyme Feb 2014 #96

also, the reason "her parents say" she has this is because she was diagnosed 3 years ago with it magical thyme Feb 2014 #25

That's false. LisaL Feb 2014 #68

I know this family gaspee Feb 2014 #16

having no children myself, I can only begin to imagine what they are suffering. magical thyme Feb 2014 #36

That's awful! My Good Babushka Feb 2014 #28

from what I've read, the courts have pretty much forced Tufts out of it magical thyme Feb 2014 #31

It just seems like My Good Babushka Feb 2014 #33

here is an interview with Dr. Mark Korsen, Justina's (real) doctor magical thyme Feb 2014 #37

I'm promoting the story where I can. My Good Babushka Feb 2014 #38

here are some more links I just found, with much more backstory from the Globe magical thyme Feb 2014 #39

i am able to read both links off your post. nt alp227 Feb 2014 #62

HIPAA can be overridden by court order in cases where medical information is required. Warpy Feb 2014 #84

the judge is probably in the thrall of Children's and their Harvard ties magical thyme Feb 2014 #89

That doctor IS strongly advocating for her, but he's being deliberately excluded from pnwmom Feb 2014 #49

OK, so where is the RW link blaming Obama for this? Did the Feds do the kidnapping? nt kelliekat44 Feb 2014 #30

cute, but nobody is blaming Obama or the Feds. This is about state overreach combined magical thyme Feb 2014 #32

sickening--this happens with parents of kids with ehlers-danlos syndrome zazen Feb 2014 #34

for comparison, some background on Somatoform Disorder magical thyme Feb 2014 #35

I am reminded of the long fight needed to get chronic fatigue disorder hedgehog Feb 2014 #42

When I was growing up, they still thought asthma was psychosomatic. pnwmom Feb 2014 #50

and they thought "refrigerator mothers" caused autism! hedgehog Feb 2014 #135

Oh yes -- I remember that! n/t pnwmom Feb 2014 #136

Former fed prosecutor and BOD member of MSPCC calls for shut down of Bader 5 magical thyme Feb 2014 #51

Thanks, magical, for all your work on this. pnwmom Feb 2014 #52

I needed to. It is important for 1st amendment reasons, but also overreach and conflict of interest magical thyme Feb 2014 #58

Excellent post KamaAina Feb 2014 #74

Except in her case, the term might actually apply. pnwmom Feb 2014 #80

well, then I'll amend to say she is unable to walk due to ataxia and possible magical thyme Feb 2014 #90

Right. It's not ordinary paralysis. It's ataxia and profound muscle weakness as a direct pnwmom Feb 2014 #94

Dumb question: Blue_Tires Feb 2014 #110

Dr. Korson from Tufts has spoken out and did try very hard to be included magical thyme Feb 2014 #118

Instead of just the doctor speaking, Blue_Tires Feb 2014 #120

they aren't in a position to do anything legally. magical thyme Feb 2014 #124

Doesn't Children's realize they're setting themselves and the Commonwealth Blue_Tires Feb 2014 #130

they either totally believe they are in the right, or have so much power they can get away with magical thyme Feb 2014 #132

Is it just me? opiate69 Feb 2014 #119

and then there is this: Children's policy on Wards of the state magical thyme Feb 2014 #123