General Discussion
In reply to the discussion: So let me see if I've got this straight... [View all]uppityperson
(115,997 posts)She was diagnosed late, had the steady progression, made it 15 yrs after the initial diagnosis. It sucked and continues to suck. I am glad they are working on more treatments to slow it down, hoping they will continue to do some research and wish it was a lot more.
Insurance companies exist for 1 reason and that is to make money by taking premiums and denying payment as much as possible. verifiable communication trail and lots and lots of patience which is extremely difficult when you are talking life, death, quality of life.
I hope you can get through to the insurance company, persevere with the calls and writing and work your way up and up and up. Keep copies of everything you send, having it is writing is the best as they way there is a verifiable trail.
There may be other medicines but finding what works for the person and being able to continue with it is so very necessary for longevity and quality of life. "there are other medicines" is like telling someone with high blood pressure to just cut out salt.
Best wishes to her and to you and let us know how it all proceeds.