In early March, Judge Johnson put Justina Pelletier's medical care back with Dr. Korman/Tufts

[pnwmom]

221. My niece was even older and had general anesthesia for her biopsy. But you're ignoring

the fact that the muscle biopsy could be negative and that wouldn't rule out a mitochondrial disorder. Her doctor had plenty of clinical evidence -- the stroke at age 7, the problems with colon motility, the swallowing problems. And there's probably more -- that's just what we know about. And there was the fact that her sister had the positive muscle biopsy. There was a solid basis for a clinical diagnosis of mitochondrial disorder, and no important reason to do the biopsy instead of giving her the vitamin therapy and seeing if it helped.

Sometimes doctors will order an expensive or invasive procedure as much to satisfy their curiosity as anything. But if it won't lead to a significant outcome or change in her care, then it shouldn't be done. This metabolic specialist thought it would be better just to try the supplements, on the basis of his considered clinical diagnosis, and his opinion should have been respected by the M.Deities at Children's.

CT only knows whatever MA has told them because Justina has been out of state for more than a year. So CTs opinion at this point is next to worthless.