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mnhtnbb

(33,437 posts)
12. My 91 yo father was confined to a wheel chair,
Mon Dec 29, 2014, 03:28 PM
Dec 2014

could hardly feed himself, couldn't change channels on TV, could no longer read a newspaper,
and was living in a nursing home. He had dementia. This was 2002. On Friday when I was helping him eat his lunch, I told him my husband and I were going to Chicago for the weekend. On Saturday morning in Chicago I got a phone call from the nursing home saying that
my dad was refusing to eat and they wanted to put in a feeding tube. I told them, "no".
My dad had an advanced care directive. I figured it was his way of deciding he'd had enough.
He lapsed into a coma and when I returned on Sunday evening I went to see him. I went
to see him--and read to him on Monday--and told him it was ok to let go. I had kids
at home, went home to fix them dinner, planning to go back to see him after I picked up
my husband at the airport (he'd stayed in Chicago for meetings). At 8 PM I got a phone call
and by the time I got to the nursing home 20 minutes later he'd died. He had regained consciousness--briefly--
before he passed.

I've berated myself ever since for not going back there immediately after dinner. I do not
regret letting him make the decision not to eat, but I do regret not being there when he died.

Recommendations

0 members have recommended this reply (displayed in chronological order):

Ugh. Erich Bloodaxe BSN Dec 2014 #1
For real malaise Dec 2014 #4
I'm sorry that your uncle had pain. panader0 Dec 2014 #2
And he had an absolutely fabulous life malaise Dec 2014 #3
Why wasn't he in hospice care 840high Dec 2014 #5
A LOT of people misjudge exactly when to start hospice. Erich Bloodaxe BSN Dec 2014 #6
Also people don't realize that hospice care can be for a long time csziggy Dec 2014 #16
He wanted to die at home n/t malaise Dec 2014 #8
Thank you for 840high Dec 2014 #23
my father died a while ago, he was just entering the paralyzed state hollysmom Dec 2014 #7
Good children let their parents malaise Dec 2014 #9
good of you to say, still have guilt hollysmom Dec 2014 #10
Our mom had a living will malaise Dec 2014 #11
My mom had one too but hollysmom Dec 2014 #15
My 91 yo father was confined to a wheel chair, mnhtnbb Dec 2014 #12
My dad had dementia too. panader0 Dec 2014 #14
Why do you feel guilt? malaise Dec 2014 #20
If I had left immediately, I might have seen him still alive. panader0 Dec 2014 #21
Think about what you did for them that was right and get over the guilt malaise Dec 2014 #22
Let the guilt go . .. hugs 840high Dec 2014 #25
I'm sure you've heard this, but just in case... renate Dec 2014 #18
I've long believed it wasn't a coincidence when he chose to stop eating. mnhtnbb Dec 2014 #19
Yes. We knew Dad's time 840high Dec 2014 #24
They need us PasadenaTrudy Dec 2014 #13
yes hollysmom Dec 2014 #17
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